#CauseTheWave Pearl Jam Fan Movement

#CauseTheWave Pearl Jam Fan Movement is a Wishlist Foundation division that raises awareness and funds to #HealEB benefiting @EBResearch since 2014.

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

EB warrior, Mikey, owning The Ohana Fest encore weekend celebrating his 15th birthday like a rockstar!

You can help us #CauseTheWave to #HealEB by donating to EB Research Partnership. We appreciate you! 🦋

Many thanks to our friend, Tiffany, who c… https://t.co/af95nJb1dY

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

Just posted a video @ Dana Point, California https://t.co/SVe4wRuuLJ

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

Happy, happy birthday Mikey! Have the BEST time at @theohanafest!
🥳1️⃣5️⃣❤️

#Repost @j__vedder with @make_repost
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If anyone sees my buddy Mikey at @theohanafest tonight be sure to wish him a HAPPY 15th BIRTHDAY 🥳 and please check out @ebresearch… https://t.co/af95nJb1dY

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

Happy, happy birthday Mikey! Have the BEST time at @theohanafest!
🥳1️⃣5️⃣❤️

#Repost @j__vedder with @make_repost
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If anyone sees my buddy Mikey at @theohanafest tonight be sure to wish him a HAPPY 15th BIRTHDAY 🥳 and please check out @ebresearch to learn more about Mike…

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

https://t.co/af95nJb1dY

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

4️⃣! #Repost @comesayhitoeli with @make_repost
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Hello 4th grade!

#EBRP #EpidermolysisBullosa #PearlJam #EddieVedder #JillVedder #ComeSayHi #EBwarrior #RareDisease #VenturePhilanthropy #Donate #GeneticDisorder

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

💞 #Repost @ebresearchaus with @make_repost
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It’s the FINAL DAYS of our special EB merchandise Sale. 😍

Visit the link in our bio to show your support for helping to #HealEB by shopping our awesome range.

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

Happy, happy birthday Easton! 🥳 https://t.co/af95nJb1dY

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

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[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

https://t.co/af95nJb1dY

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

🌹 #Repost @fragileskinariana with @make_repost
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Nothing attracts attention like a red dress so wear the dress. Show of those scars or features that you’re insecure shout and the next time you’re doubting yourself or your body, remember that we ALL have the right to we…

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

🦋#Repost @ebmom with @make_repost
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My hero has Epidermolysis Bullosa. What he goes through on a daily basis puts Superman to shame. Truly!!! #teamnicky #epidermolysisbullosa #rdeb #recessivedystrophicepidermolysisbullosa #ebawareness #myhero #ilovemyson #heroesjourney

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

Happening now! There’s still time to share and donate at link in bio.

Help #CauseTheWave to #HealEB for EB Research Partnership! 🦋👟

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

Happening now! There’s still time to share and donate: https://t.co/l7ejLtJDKt

Help #CauseTheWave to #HealEB for EB Research Partnership! 🦋👟 https://t.co/af95nJb1dY

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

🤗 #Repost @brady.thebrave with @make_repost
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I remember this long afternoon and evening. I remember it being really tough. But this is one of my favorite photos, nonetheless. Because it shows how strong our bond is, despite my causing Brady pain to feel better. We lov…

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

🦋#Repost @caresforethan with @make_repost
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So we have a new challenge.
Ethan tested positive for Covid yesterday,
But hey here we are going through this challenge.
We can add Covid-19 to our bucket list🤦🏻‍♀️

Ethan: Why me mama, I didn’t want Corona virus.
Me: I don’t…

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

💞 #Repost @victor.hq with @make_repost
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Happy 2 year anniversary to my better half, thank you for being my main motivation & support, for pushing me to be a better version of myself & for always believing in me more than I believe in myself. We’ve accomplished so much…

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

Always superoheroes in our eyes. 👋🦋❤️🙌 https://t.co/af95nJb1dY

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

🦋#Repost @lifewithshardai with @make_repost
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July is #disabilitypridemonth. Flying with a disability is hard. Especially when you have #epidermolysisbullosa and are dependent on a #wheelchair.
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The adventure starts at check in. I can’t check in ahead of arriving a…

[#CauseTheWave Pearl Jam Fan Movement @WishlistCTW]

EB Research Partnership's annual #TakeFlight 5K has begun! Please join us to help #HealEB by walking or running to find a cure. Donating or sharing is also greatly appreciated!

Registration for the event includes an EBRP-branded water bottle to keep you hydrated and your …