Top Tweets for #ALSCaucus
Thx to @ChrisCoons & #ALScaucus members for reintroducing the #Justice4ALSVets Act
Today, many #veterans dx'd w #ALS don't survive 8 yrs the VA requires for loved ones to receive full benefits. This bill would fix that inequity!
https://t.co/G4cycyhOqA
#alsawarenessmonth
Thx to @bsw5020 @sabrevaya @dantate2 @nicolecimbura for idea of an #ALSCaucus plus @SandyMorris333 & the @iamalsorg Legislative team for building relationships with Congress to make it happen.
Passage of bills & $500M in appropriations for #ALS happened bc of the Caucus' support
“We are now incredibly hopeful about the future because of the efforts of the caucus.” - Brian Wallach, I AM ALS co-founder
We couldn't agree more @bsw5020! Thank you to Senator @ChrisCoons and @SenatorBraun for reestablishing the ALS Caucus!
https://t.co/DEBnrod4Qo
In America, if you have a
100% fatal #RareDisease like #ALS
& a safe trial drug helps you STOP DYING,
you can #DieWaiting for @US_FDA approval.
@POTUS & #ALScaucus
We must overhaul regulatory laws
The #ALSclock waits for no one
#TypeIIErrorsKill just like unsafe drugs
Thank you to all #ALSAdvocates who urged their senators to add their names to the Senate ALS Research Dear Colleague letter introduced by Sen. @ChrisCoons & @SenBillCassidy. You can still take action by urging your legislators to join the #ALSCaucus TODAY: https://t.co/NXwaCNDPVD
@Markbedwell11 @brainmatters10 @RepMikeQuigley @ChrisCoons @JohnBoozman @BrianFitzUSA @STAT Thanks @JohnBoozman for being such a staunch advocate for the ALS community & one of the original members of the #ALSCaucus.
Now let's get #NurOwn approved for people like Mark!
@glen_rouse Congratulations @lisamurkowski
Our country is lucky to have you back in the Senate. Thanks for being such a staunch supporter for people with #ALS & for leading the #ALSCaucus.
Any Congresspeople show @ALSAIndiana?
#Indiana = lowest % cosponsoring #ACTforALS
▪️331 House cosponsors & only 3/9 from IN
▪️@RepJimBaird only House member on #ALScaucus
▪️Braun didnt sponsor til end
▪️ #Veteran & @NavalAcademy grad Todd Young never sponsored
@RepMikeQuigley
⬇️ So grateful for @RepMikeQuigley
He was main sponsor of #ACTforALS & helped us get it funded for 2022.
We need more partners like him in #ALScaucus who help us fight to change #ALS
Thx also to @EnergyCommerce for leading its passage out of committee!
#healthcare
Right now there is no cure for ALS. In fact, there isn't even treatment for the disease.
I helped secure $27.5 million for ALS research & expanded access to experimental treatment through #ACTforALS in last year's appropriations package.
We cannot give up until we #EndALS.
Thx @JohnBoozman for taking time to honor your constituents fighting #ALS like @MarkBedwell11.
Thx for serving on #ALScaucus & walking the walk with your ACTIONS.
#Arkansans are lucky to have you!
#NationalMall
#ALSflags
#ALSAwarenessMonth
#Arkansas #Razorbacks
@Boozman4AR
ThX #ALSCaucus members @ChrisCoons & @lisamurkowski for being champions for the #ALS community & for being the lead sponsors on the #ACTforALS.
Looking forward to Appropriations Committee funding the law so we can start getting #DrugsInBodies!
@bsw5020 @iamalsorg @als_now
My heart and gratitude go out to Brian Wallach and Sandra Abrevaya.
Their advocacy within the ALS community will impact many going forward—and I was proud to work with Senator @ChrisCoons on the ACT for ALS bill (now law) with their help.
.@iamalsorg, is it worthwhile to update the House and Senate #ALScaucus members on your site?
Just a thought since so many have contacted members of Congress for #ACTforALS. If you advise, many could use the relationships to grow the caucus.
@nicolecimbura @thompsontweach
As co-founder of the Senate #ALScaucus & a member of @GOPHELP, we need your leadership to #ScheduleTheVote on #HR3537 that passed 423-3
The #ALS clock is unforgiving
8800 ALS patients have #DiedWaiting for regular order
#ACTforALS
@SenatorBraun @SenJohnThune @LeaderMcConnell
The #ALS community is grateful for your leadership in sponsoring #ACTforALS & founding #ALScaucus
423-3 votes in House & 58 sponsors in Senate
Please #ScheduletheVote on #HR3537
The #ALS clock is Unforgiving
The Time to Vote is NOW
@HELPCmteDems @ChrisCoons
@SenatorDurbin
Thank you to the co-founder of the Senate #ALSCaucus, @SenatorBraun for cosponsoring #S1813, the #ACTforALS.
Massive thanks to @SenatorBraun for cosponsoring #S1813, the #ACTforALS
As the co-founder of the Senate #ALSCaucus, your leadership is critical for our community.
@SenatorBurr @SenJohnThune
Please #ScheduletheVote to get #DrugsinBodies.
#Hoosiers #Indiana @MommaJillB
. @SenTomCotton
▪️ @USArmy #Veteran
▪️ #ArmedServices
▪️ #ALSCaucus
You campaigned on protecting #healthcare for Vets.
Vets get #ALS from serving our country & need access to drugs stuck in clinical trials
Sponsor #S1813
@TomCottonAR @MilitaryTimes @VFWHQ @MilitaryOfficer
"Better health care for America's heroes... No veteran should ever be denied the benefits they've earned."
@SenTomCotton
#Veterans get #ALS from service. Pls sponsor #S1813 so they can get all drugs in #MedicalArsenal
https://t.co/53guJAHbkK
@ArkansasBlog @ryantarinelli
@SenTomCotton Sadly tens of thousands w #ALS may not be alive next Thanksgiving bc some Senators have not yet sponsored #S1813.
You are on #ALSCaucus, a #Veteran & on #ArmedServices. Vets have up to 10x higher risk & need access to drugs stuck in trials.
Heed Gen Mik's words to @SVACGOP
As an #ALScaucus member, you honored Gleason w Medal of Honor
@SenatorCantwell #Washington constituents w #ALS NEED you to honor their lives by sponsoring #S1813, improving access to #healthcare & furthering #ALS research
https://t.co/0hofolqhk4
@seattletimes @SpokesmanReview
Once again… why be a member of the #ALSCaucus if you aren’t going to support those with #ALS? @SenTomCotton The sound of the hypocrisy is deafening 🙉🙉
2 choices… support #S1813 #ACT4ALS or withdraw your name as an #ALSCaucus member. I vote for #S1813 🙋♀️ #MakeADifference
EVERY Legislator in #Arkansas has sponsored #ACTforALS except for #ALSCaucus member @SenTomCotton
Post GWV @USArmy #Veterans have up to 10x risk of getting #ALS. They need Senator Cotton to honor his oath to fight for them & sponsor #S1813
@KNWAFOX24
https://t.co/1bsPolUrDW
EVERY Legislator in #Arkansas has sponsored #ACTforALS except for #ALSCaucus member @SenTomCotton
Post GWV @USArmy #Veterans have up to 10x risk of getting #ALS. They need Senator Cotton to honor his oath to fight for them & sponsor #S1813
@KNWAFOX24
https://t.co/1bsPolUrDW
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