Top Tweets for #ALSFreeWorld
Thank you to the @iamalsorg team for placing this flag in memory of my dad who passed away from ALS last year, less than 3 months after he was diagnosed. The #ALSinDC flag display is a reminder to those who have the power to make change that we can’t afford to wait. #ALSFreeWorld
This flag was placed in memory of Nelson Cooper @F3_PapaSmurf. Seeing him honored on the National Mall along with thousands of others as part of the #ALSinDC flag event was profoundly sad, but also brings hope that someday, we will create an #ALSFreeWorld.
#PressOn
I am proof that ALS can affect anyone, at any age. This flag at the #ALSinDC event on the National Mall was one of 6,000, representing the 6,000 people diagnosed with #ALS each year. Join us as we work toward an #ALSFreeWorld. Thank you @iamalsorg for all that you do. #EndALS
I submitted this flag in memory of my Granny, who passed away from ALS at 81. Seeing them honored on the National Mall along with thousands of others as part of the #ALSinDC flag event was profoundly sad, but also brought me hope that someday, we will create an #ALSFreeWorld.
Today, Cherryl Goldstein, @alsagoldenwest VP of Development proudly joined @iamalsorg co-founder @bsw5020 at their #ALSinDC flag display in Washington, DC. We are grateful for the opportunity to collaborate to raise #ALSawareness and support for #ourALScommunity. #alsfreeworld
It’s almost time for the speaker series! Head to our Instagram page to watch the live stream – we will begin shortly. #ALSinDC #ALSFreeWorld https://t.co/3AY6SNC8CG
And just like that, the flag display is complete! If you submitted a name for a flag, keep an eye on your email in the next couple of days for a link to the photo album containing all of the flags. Thank you for allowing us to honor you & your loved ones. #ALSinDC #alsfreeworld
FDA approval isn’t the only realm in which the ALS community has made amazing progress since last year’s #ALSinDC flag event. Federal funding for ALS has skyrocketed in the last year, in no small part due to appropriation of funds via ACT for ALS. #ALSFreeWorld
The ALS community has accomplished so much since last year’s #ALSinDC flag event. In the last year, TWO new ALS treatments have been approved by the FDA – Relyvrio and Qalsody. Read more about Qalsody, granted accelerated approval in April: https://t.co/juTCPpTgVj #ALSFreeWorld
May is ALS Awareness Month! Time to raise awareness about this disease that can affect anyone, anywhere, at any age.
Spread awareness, educate others, and support those affected by this disease. #ALSAwarenessMonth #ALSFreeWorld
May is ALS Awareness Month in the US. While our keynote this month will be the #ALSinDC flag event, we will also be reaching new audiences on social media to raise awareness and educate the public about ALS. You can help by sharing our posts! Help us create a #WorldWithoutALS.
It’s hard to pick the worst part of ALS, but this might be it: there has not yet been a survivor. While some may progress slowly and live for many years after diagnosis, ALS will eventually claim the life of every person diagnosed.#ALSFreeWorld Learn more: https://t.co/OQ7cgMRjJN
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