Top Tweets for #ActionForME
Youngster on this who's symptoms became evident after catching covid. Really is criminal what the mishandling of a pandemic did to our future generation. #ActionForME
I had to check that it wasn’t April 1st.
Jeremy Hunt has joined Action for ME’s Parliamentary Champions network.
The man who wanted to privatise the NHS and force chronically ill and disabled people into work with threats of benefit sanctions.
#PwME #ActionForME
https://t.co/rU8FI33Ai7
By donating today, you can provide hope for tomorrow for people affected by ME. Thank you!
#BigGive #ChristmasChallenge #ActionforME #DoubleTheImpact
New Learna/StudyPRN resource invites GPs to test clinical knowledge of #SevereME
📋Developed by Dr Nina Muirhead supported by #actionforme @MEAssociation @meactionscot
📋Based on NICE guideline
📋Can earn 0.5-hour CPD points
https://t.co/Ot6CulbaNM
#SevereMEDay #MedEd #MECFS
Happy #BlueSunday2024
#TeaPartyforME #MEAwarenessMonth
I'm donating to #ActionForME, who were there for me from the very beginning (2003) & always are there for #pwME
Donate what you'd pay for a cuppa & 🎂 to yr fav M.E. charity: https://t.co/HTklADY64F
👇🏼
@TheChronicColab Surely one of the ME charities could get it together to get a legal team on this. We are witnessing a young woman with #VerySevereMyalgicEncephalomylitis being murdered, slowly. #ActionForME #MEAssociation - Do something! Do more. Please.
The Controversial Cure for ME: Unproven Hope or False Promise?
🎬Visit my Youtube Channel to see this video - https://t.co/nsdmKGXnkl
#MEAwareness #dragonsden #earseeds #MyalgicEncephalomyelitis #themeassociation #MEAction #actionforME #DrCharlesShepherd
Learn about M.E. is a #MedEd project by #actionforme @MEAssociation @meactionscot https://t.co/au4MyT4QF4 and Dr Nina Muirhead, funded by @scotgov
Hear more podcasts and access the FREE CPD-accredited module on #MECFS at https://t.co/mRBI2bSZAe
https://t.co/MkmsnpYN3H
𝕀𝕥’𝕤 𝔸𝕝𝕚𝕧𝕖
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…well it’s live and ready for your ears
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Episode 6 DecodeME special is up and available via the podcast station of your choice
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Link in bio
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#chatwithmepodcast #LearnFromME #countMEin #blog #parentingwithME #decodeMEstudy #actionforme #millionsmissing
PEM got the better of me yesterday, yet it was still a pleasure to be able to join in the #TeaPartyForME2023 #BlueSunday2023.
I am donating to #ActionForME who were there for me from the start (2003) & always are there for #pwME
https://t.co/0zmM1WVV3B
@actionforme @MartinSLewis Could you share details of Wednesdays demo for #pwME organised by @TheChronicColab please
https://t.co/vUK2EjoFnl
From @SianGotME and Andy Devereux-Cooke’s presentation on @DecodeMEstudy Patient and Public Involvement, from Wed's first #actionforme @mrc_hgu @CGATist #MECFS genetics research summit. Hear more at our AGM, 4pm, Tue 20 Sep, all welcome. Register now at https://t.co/n0InqQIhBh
Thank you, on behalf of Ella and her warrior Mum, Joanne.
#standup4ellacopley #MECFS #MEAction #MillionsMissing #actionforme #dogood #ELLASARMY @Jomckee131144
If you have personal experience of how badly the NHS is treating pwME, please contact Sonya Chowdhury #actionforme
Action for ME is gathering data on how hospitals (such as Leeds General Infirmary) are blatantly IGNORING the new NICE Guidelines on the treatment of #pwME.
IF YOU ARE A LAWYER WHO CAN HELP ELLA, PLEASE MAKE CONTACT WITH US
Please help Ella by sharing this post!
#standup4ellacopley #MillionsMissing #actionforme #MECFS #MEAction #dogood #nonprofit #leedsgeneralinfirmary #activism @Jomckee131144
URGENT! Please Retweet or GoFundMe
Witnessing medical negligence, whilst still mostly bedbound from historical medical negligence, is very distressing. Poor Ella 😢
https://t.co/r3l079S5TO
@Jomckee131144
#MECFS
#SevereME
#MedicalNegligence
#DavidTuller
#actionforME
#POTSUK
“Can you look into Ella’s case and ensure that she is provided with the correct pain medication. Thank you”
#standup4ellacopley #activism #humanrights #nonprofit #MillionsMissing #MECFS #MEAction #dogood #leedsgeneralinfirmary #actionforME
C would definitely be the most effective option, offered on @ValeriEliotSmit ‘s post, sadly, based on past experience this is unlikely to happen.
Surprise us @MEAssociation #ActionforME @MEResearchUK @MEActNetUK
🧵 Thread follows (9 tweets):
1/ I have been asked about possible responses by the #ME patient community to the chapter on "ME/CFS" in the recently-published book, "Beyond the Hype", by Fiona Fox. These are my observations and comments:
@ruth_lampard @PutneyFleur @actionforme We hope you all have a great day and much progress is made! 🙏 #pwME #actionforme
ps. great outfit!
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