#AcutePorphyria - Twitter Hashtag

British Porphyria Association @BPA_Porphyria

over 2 years ago

@RareRevolutionMagazine thank you for helping us myth bust, as we share insight into how patients are affected by the different porphyrias! #careforrare #acuteporphyria #erythropoieticprotoporphyria #porphyria #takeovertuesday

RARE Revolution Magazine®

@RareRevolutionM

over 2 years ago

"Did you know ❓ The skin porphyrias cause extreme sensitivity to sunlight & visible light, while the acute porphyrias can cause severe pain, paralysis and sickness requiring hospitalisation. https://t.co/PGznWXgL6A #TuesdayTakeover #CareForRare #RareDisease" @BPA_Porphyria

RareRevolutionM's tweet photo. "Did you know ❓
The skin porphyrias cause extreme sensitivity to sunlight & visible light, while the acute porphyrias can cause severe pain, paralysis and sickness requiring hospitalisation.
https://t.co/PGznWXgL6A
#TuesdayTakeover #CareForRare #RareDisease"
@BPA_Porphyria https://t.co/4UArUSHXYP

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@authorlriddle @AuthorLRiddle

over 2 years ago

@1MuddPuppy Me and @usporphyria Love this. Because attacks in Aip follow Fibonnaci findings 1.6-4 increase over Base line. #fibonacci #Acuteporphyria

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Patient Worthy @PatientWorthy

over 4 years ago

Patient Story: Rock Star Tommy Steele Talks Childhood Porphyria Diagnosis https://t.co/EfgItY2GSH #Porphyria #AcutePorphyria #CutaneousPorphyria @UnitedPorphAssc

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paula aguilera @pauleta18

over 6 years ago

https://t.co/H54pvCKI4a Givosiran for Acute Hepatic Porphyria #porphyria #alnylam #givosiran #acuteporphyria

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Medical Xpress

@medical_xpress

over 7 years ago

Promising results for new #acuteporphyria treatment @nejm https://t.co/KP0fuLDReO

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@authorlriddle @AuthorLRiddle

almost 8 years ago

@jusbgun1 @akuscg @TT197 @Treason4Trump @abytw @SantasTavern @Darb_Dude @tony_tonyt @Butter_flyFree @FoundOne14 @road_kill13 @jose_noname @instinctnaturel @esta_joy @Shaun_Girk @Diaper777 @provdcrumblover @truckrogers1 @akvawe66 @Brian_Kitchener @GhostOfTick @imvala @WillTrumpYou @AwulKimberly @LeonWhi63670221 @HappyTimes4Ever @Rainbows_Brite @dwhfarmall @lockagain33 @nomar_ab @di_zin @prellim @34FryingpanA22 @JReynol88287361 @IVotedBlue @BushWashington1 @NoBrainsTRUMP @HavokHawk @rick_rcb863 @penblogger @aeroflame62 @ArktinenJenkki @SamanthaSJones4 @gwyn_becker @Sisterpersista1 @GopYouKnowMe @chevyboy271 @kiwitri1 @cranky_Cathy @DanFoc77 I don't want nationalized health care my Canadian friends and my British friends have so much trouble #Fabrys #AcutePorphyria #Charliegard

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paula aguilera @pauleta18

over 8 years ago

The end of a nightmare??? #porphyria #acuteporphyria @hospitalclinic @porfiria_org a major scientific breakthrough that happens once every decade or so https://t.co/cvpBLwsA9u

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