L.A. Porphyria Treatment Center

Our mission is to make sure that no one with porphyria is left behind by increasing awareness, advancing testing, and promoting research for porphyria.501c3 org

[L.A. Porphyria Treatment Center @usporphyria]

@GavinNewsom

[L.A. Porphyria Treatment Center @usporphyria]

@NIH @DrJBhattachary@SecKennedy
We need the Nih to investigate PI wrong doing & abuse of patients!
Me & my families DNA was used in research w/o consent by R. Desnick, & his colleague Dr K. Anderson repeatedly vio our hippa & lied about our results. We have govt rulings & i told nih

[NIH @NIH]

NIH Common Fund announces 4️⃣ new funding opportunities for NIH Director’s High-Risk, High-Reward awards supporting exceptionally creative researchers with bold, innovative, high-impact ideas.

👉 Find the opportunity that fits your research: https://t.co/M1PieNJ4lc

[L.A. Porphyria Treatment Center @usporphyria]

@GavinNewsom Just talked to a
California highway patrol officer a few days ago, he said he wonders why he even writes up reports because crimes are NOT prosecuted.

[L.A. Porphyria Treatment Center @usporphyria]

@NIH_Innovates Especially in acute porphyria.

[L.A. Porphyria Treatment Center @usporphyria]

@GavinNewsom You missed what happened in Simi Valley CA @target store last week..
A woman was almost choked to death by a violent man who just got out of jail and another woman and several men jumped in to save her.

[L.A. Porphyria Treatment Center @usporphyria]

@EkGaetan @JohnCornyn Praying for justice.

[L.A. Porphyria Treatment Center @usporphyria]

@SenGillibrand That's dishonest gaslighting.
His civil rights were violated repeatedly.
Should we just ignore that?
Ugh.

[L.A. Porphyria Treatment Center @usporphyria]

@GavinNewsom This ratio of yours....

[L.A. Porphyria Treatment Center @usporphyria]

@ScienceMagazine @ScienceTM "Humanized mice" a horrifying headline.
@RobertKennedyJr
@NIHDirector_Jay

[L.A. Porphyria Treatment Center @usporphyria]

@laurahudson1961 @GavinNewsom As politely as I can, please set aside political differences, and see your grand children. Agree not to discuss politics. President's come and go, as you probably have lived through 10 if you're anywhere near my age (54), but your grand children are forever yours.

[L.A. Porphyria Treatment Center @usporphyria]

@KUHospital @ChildrensMercy @KUMedCenter Is the uni of Kansas & Children's Mercy aware that Nord keeps member orgs who have illegally breached patient health info?
Nord refused to remove The American porphyria foundation after our data was breached to their foundation w/o consent. This was NOT the only hippa breach

[L.A. Porphyria Treatment Center @usporphyria]

@TheGeneral_0 94 year old lady with severe vision loss and history of 2 broken hips.
Or
30 yr old hospitalized 20 times, currently in hospital.
Both get food stamps.
Please explain how either can "work".

[Science News @ScienceNews]

Our normal cellular processes can emit tiny bits of light. While most of these photons get absorbed in our bodies, some escape our skin.

https://t.co/hS0KP1m0Ac

[L.A. Porphyria Treatment Center @usporphyria]

@ScienceNews And still they haven't released all the dead Israeli hostages bodies.
Hostage taking is a war crime crume.

[L.A. Porphyria Treatment Center @usporphyria]

@GavinNewsom Please focus on lowering costs for your constituents, and less on attacking the @POTUS.

[L.A. Porphyria Treatment Center @usporphyria]

@JAMA_current Why such a high percentage of children that are from families that are so poor?

[L.A. Porphyria Treatment Center @usporphyria]

Dear @KensingtonRoyal
Thank you for the tremendous honor you have extended towards our @POTUS @FLOTUS and @SecRubio. The table settings are truly lovely. From our porphyria charity (where we help with out charge to anyone who asks) we say thank you!

[L.A. Porphyria Treatment Center @usporphyria]

@ChrisVanHollen You're welcome to donate your money to any foreign charity you like.

[L.A. Porphyria Treatment Center @usporphyria]

@marklewismd Asymptope?