Top Tweets for #BANMesh
W/O my Pain Meds, my Quality of Life has slowed down tremendously & causing underlining side effects, my body isn't doing well & it's scary to think what will happen once it's all taken away in October! I am nt an opioid addict, I am mesh injured 4 life. #banmesh #ChronicPain
@JanUrban12 It's horrific the underlining side effects, the infections, chronic pain debilitating quality of life, slow torture, especially now that pain management is being stripped away frm us. #chronicpainpatientsmatter #mesh #banmesh
@SusanMorgan19 100% Correct! Living w/some mesh pieces still inside, my CP, overall health is debilitating, hard to have dr's who understand the complexity of this disability, lifetime sentence of hell #mesh #BanMesh
@PhilipD88584969 @ibdgirl76 @ravensspirit68 As a TVM patient living w/debilitating CP😟self care can only go so far, it helps, whn u live w/CP that is constant🥺high levels of pain/OTC meds wnt help, it tks it's toll, all aspects,day 2 day=level of pain😫when I wake up😧#DontPunishPainPatients #banmesh #mesh #chronicpain
@ravensspirit68 @netflix 🦄Thank You! I didn't know they had a new doc on this, I will check it out! I suffer with Chronic Pain from a Medical Mesh & Pain Meds are essential to having any sort of life that dosn't require me to stay in bed. #mesh #BanMesh #ChronicPainPatientsMatter
2/3 @PSCommissioner @MBLacey @DrGregorSmith @Neilsocialist @ScotGovFM @NHSGGC @WRNH63 @InjuredMesh ( @KeirLowSNP plz tell Jenni I'm STILL awaiting a pre-op date for IRH )😪 @ladymcbeth2 @PoliceScotland @jk_rowling @hrw #meshruinslives #BANMESH
PUBLIC ENQUIRY IS NEEDED NOW 💜💪
@Dar_Morrison I know that the underlining side effects, complex w/ Mesh, what is scary is what is happening on the inside, what we can't see! The Mesh Implants made of plastic-breaking apart, moving, causing so much pain. Stay Strong sending blessings, comfort, and prayers to you! #banmesh
Too many patients have been needlessly damaged, left with devastating yet preventable injury.
When will the @MHRAgovuk use it's power to take action, how many more must suffer?
It's wilful neglect.
#BANSSRIsSNRIs
#BANperinealpost
#BANmesh
@ThomasKlineMD Yes, I am not afraid 2 say, I tk opiods, I tk it responsibly & as directed by my Pain Mngemnt Specialist! We hv an understanding of the cause, TVMeshImplant! I am alive, I choose it so I can hv some quality of life or stay in bed, My Choice, which is how it shld be! #BanMesh
@lil23rdss I suffer w/CP & the US HC system? is set up where the patient will suffer while they figure out their opsies, it's not right, it's the insurance co's who control who gets it & when. 1 time a month 2 the day frm last month, no exceptions! 😢#ChronicPainPatientsMatter #BanMesh
@Dar_Morrison @ThomasKlineMD @CDCDirector 🦄CPP's have 2 fight for Pain Meds whn our Perm disability calls 4 it! I live w/CP in various areas frm a TVMeshImplant, I can't put in2 words the pain & suffrng, w/all we know, Med Mesh Patients who suffer w/CP shld nt be denied Pain Meds! #MeshLivesMatter #BanMesh
There should always have been a partnership with patients, informed consent is a human right.
Too many patients have been left needlessly damaged because of the surgeon #godcomplex
#NotYourBodyNotYourChoice
#BANtheperinealpost
#BANmesh
It was great to speak with @DrNuthana and to share my goals for a better culture with true patient partnership, shared and supported decision making and improved #PatientSafety
In 5/2009 I made the regrettable decision 2 get a Transvaginal Mesh Implant! It has cost me my independent life, disabled me 4 life by a CA, US Court. It took 3yrs, 👩⚖️said she needed to see 4 herself, I respect that & was granted my full disability. #BanMesh
100% Agree! I have a YT channel, that goes over certain underlining side effects ex-Pain Management, something I stress 2 every patient who suffers Chronic Pain frm TVM. Regular Doc's are not prescribing pain meds, this referral is essential to hving a life living w/CP! #BanMesh
What was done to women was wrong
Ive tried to support many,listening to their cries of pain & fear for years
#mesh #campaigners are not only witness to their own demise but that of many others - we tried to help when no one else was listening
@mariacaulfield @PSCommissioner
This is OUTRAGEOUS 🤬
When will they bloody well learn that #mesh #maims 😭😭 @BBCLucyAdams @BrendanOHaraMP @PSCommissioner @MBLacey @Jackson_Carlaw @DrGregorSmith @ScotGovFM @jenni_minto @LouiseScottITV @GillianW7 @nursenormski
This #poison has ruined my life 😭💔 #banmesh
Lead at Glasgow Mesh Centre is ambushing patients before surgery to talk them into a new ‘softer mesh.’ Who is looking out for patients? Who gains out of this? Certainly not us!! Does she?? @HumzaYousaf @NHSGGC @MathesonMichael @MarGarland16 @mazzakay49 @GillianW7 #mesh
More proof the @MHRAgovuk Yellow Card System fails patients.
'Despite our relentless campaigning, the MHRA still refuses to make it mandatory for clinicians to report complications to the Yellow Card system.'
#BANtheperinealpost
#BANmesh
#NOconsent
https://t.co/vWHIiG4bRp
"Mesh never stops giving even when it’s out. They damaged me the day it went in. I woke up in agony and haven’t been out of pain since." Chrissy Williams NZ #LivedExperience
Too many patients are ignored. I provided numerous studies to @MHRAgovuk regarding the risk to patients sexual function from the #perinealpost
When will patient care be a priority over profit?
#BANthePerinealPost
#BANMesh
#PatientsBeforeProfit
#FirstDoNoHarm
A lot less than 3 out of 5 #mesh implant victims were listened to or taken seriously by the medical profession, probably less than 10%. Many #mesh victims still are not being listened to after all the publicity! @PSCommissioner @SteveBarclay @BrineMP @APPGFDNH
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