Top Tweets for #BloodStreamPod
Paralympian 🏊, medal-winner 🏅, and “all around great BLOKE” 🇬🇧 @JBridge125 speaks w/ @ljpembroke about the dark side of high achievement on the latest #ImFine segment, part of the #BloodStreamPod.
Listen to the episode now: https://t.co/Aaour6rGhD
#hemophilia #haemophilia #bleedingdisorders #rarediseases #chronicdiseases
#GeneTherapy for #Hemophilia B is a more popular #treatment option than I realized.
More from @boardo87 & I on the latest #BloodStreamPod.
🎙️📲🎧➡️ https://t.co/RKYqbagWKL
There are some pretty cool updates on how many folks have selected hemophilia B gene therapy as their treatment option. Hear more from Patrick on the latest BloodStream!
https://t.co/wxC4sqll06
Presenting Sponsor: #Takeda
It’s a Whole New World brought to you by @CSLBehring
Pro golfer and #hemophilia legend PERRY PARKER on the latest https://t.co/e3n9l06dav segment, part of #BloodStreamPod.
@KSwim33, i came across this today. ⏲️🪽🏌️♂️🩸🫂 https://t.co/urIrAhbnnW
🏌️♂️Perry Parker breaks down why golf isn't just about the swings—it's about navigating the highs and lows, making it an ideal sport for those with #bleedingdisorders. Catch his full story on the the BloodStream podcast.
Listen and Subscribe 👉 https://t.co/Ve6VOeUvLd
TBT to 3 years ago…
when #BloodStreamPod published
one podcast episode
every day
all month long
for BLEEDING DISORDERS AWARENESS MONTH
Check out this 15-min episode on CAREGIVERS: https://t.co/JAfBdFuTU3
#hemophilia #haemophilia #raredisease #bleedingdisorders #chronicdisease #bleedingdisordersawarenessmonth
⭐️ #BleedingDisordersAwarenessMonth ⭐️ is HERE! And with it we're bringing you a new episode of BloodStream Pod EVERY WEEKDAY of the MONTH!
Feast your ears on topics such as #mentalhealth, women & #bleedingdisorders, #LGBTQ, & more!
Listen wherever you listen to podcasts!

On Friday’s epi of #BloodStreamPod, my man @drzsicklecell joins me for a candid and challenging conversation about @nbcsnl’s recent #YankeeSwap skit featuring #sicklecelldisease.
This is one you won’t wanna miss.
Live on Friday via https://t.co/wY03Nv35Lx.
#sicklecell #scd #sca #blooddisorders @SCDAAorg @sicklecell101 @ConquerSCD
#SickleCell disease is not yours for entertainment @nbc @nbcsnl
There are 100,000 Americans and millions worldwide with this condition who are well informed and unified.
This is about to become a BIG problem for you!
https://t.co/hEeRD73D5w
What does resilience look like?
.
What about when resources are more sparse?
.
Producer/director @TheRobBradford shares his POV on resilience in the global #hemophilia community on the latest I'M FINE #mentalhealth segment from #BloodStreamPod.
.
Enjoy the segment, below.
Share it if it moves you,
then subscribe to BloodStream:
https://t.co/wY03Nv3DB5
.
Presenting Sponsor: @TakedaPharma
Segment Sponsor: @sanofi
I’m on the hot seat (thanks @boardo87) on today’s episode of #BloodStreamPod: https://t.co/ACOzIlKxvQ
#hemophilia #vwd #bleedingdisorders @BloodStreamInfo @theHemeNP
Head coach of the @SanJoseSharks 🦈🏒 David Quinn has #hemophilia B, and his unlikely journey in collegiate and professional hockey is front-and-center on the latest https://t.co/tlSDqcBndW segment on #BloodStreamPod🩸🎧!
Check out the video interview segment, below!
Subscribe to BloodStream: https://t.co/wY03Nv3DB5
Thank you to @sanofi for making this segment possible, and thank you @korneluk for producing & hosting this segment with such creativity and polish!
#hemophilia #haemophilia #bleedingdisorders #RareDisease #chronicdisease #hockey #NHL #BUHockey @BloodStreamInfo
🚨NEW POD: Dr. Akshat Jain (@akshatdoctor) and @SanJoseSharks coach @DavidQuinn join the latest #BloodStreamPod, which you can watch RIGHT HERE (thanks blue check mark!)
🎧Rundown🎧
0:01 Opening
2:40 I'm Fine @nbd_foundation 10/11 Webinar
3:38 https://t.co/mdf65nU3RF at @HemophiliaOR & @NYCHemophilia
5:45 Elite Athletes w/ #hemophilia featuring David Quinn
13:49 Dr. Akshat Jain interview
43:40 I'm Fine - Challenging Leadership w/ @boardo87
51:50 Preview of next episode
Thank you to presenting sponsor @TakedaPharma and segment sponsor @Sanofi!
Check out all of Believe Limited's podcasts for people impacted by rare and chronic disorders by visiting https://t.co/1Rv1iIY3yf
#raredisease #chronicdiseases #bleedingdisorders #haemophilia @BloodStreamInfo
Busy start to the week!
Just recorded for Friday's #BloodStreamPod, where @boardo87 & I will cover #Roctavian (#genetherapy for #Hemophilia A) now @US_FDA approved, along w/ conversation on #Hemgenix, #Altuviiio, & the broader landscape.
Subscribe now! https://t.co/SvGd3U5Uf7
Dr. Young on Fitusiran, Maya Bloomberg (@theHemeNP) returns, and new music from Shelby Smoak on this week's #BloodStreamPod Checkout this full episode and more on https://t.co/Q6ncOWlIhv
#hemophilia #vwd #bleedingdisorders #raredisease #chronicdisease #haemophilia #sicklecell

Blood brother John Christen talks about what led him to document his life experience living in China with a bleeding disorder on the latest episode of #BloodStreamPod https://t.co/Nr7HRAfn7H #bleedingchina #bleedingdisorder #china #hemophilia
Have you ever gotten a call from your doctor that you just didn't know how to properly process? You are not alone - this happens all the time to all kinds of people. Check out Josh's full story on the #BloodStreamPod https://t.co/Nr7HRAfn7H
Reaction to @pjlynch viral #warning to the Community, @theHemeNP discusses #anemia, Blood Brother John Christen sharing his work, #Bleedingchina, and the latest #LetsTalk on this week's #BloodStreamPod
Listen now: https://t.co/l9vMdijKWM
TY #Takeda 🙏
#hemophilia

🚨NEW EPISODE🚨 What does taking ownership of your bleeding disorder look like? Check out this week's episode of the #BloodStreamPod https://t.co/Nr7HRAfn7H
TY #Takeda 🙏 #hemophilia

Living in the "almost" can mean as much as living in the moment - check out this week's Let's Talk segment on the #BloodStreamPod https://t.co/Nr7HRAfn7H
Special segment on Friday's #BloodStreamPod features @Clive_Smith_ providing video comments on the conclusion of the Inquiry. Stay tuned! #haemophilia #hemophilia
"When truth is denied and justice delayed an entire community is denigrated."
On Monday, Kate Burt (@katehaemophili1) talked in parliament on the importance of compensation and redress for people infected and affected by contaminated blood products.

Expert hematologist and researcher Dr Steven Pipe explains how #genetherapy for #hemophilia is designed to work on a recent episode of #BloodStreamPod.
🚨 NEW EPISODE🚨 (and it's a big one!)🤯
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Dr. Steven Pipe, expert researcher & clinician joins @pjlynch and @boardo87 to discuss #HEMGENIX, the first @US_FDA approved #hemophilia B #genetherapy!
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Listen & share the episode: https://t.co/yoKia1Dmcx
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TY Sponsor: @TakedaPharma

🚀 Today's #BloodStreamPod features:
🎙️ Let's Talk #mentalhealth w/ @ShuaBragg featuring Mike Hargett
🎙️ #BlackHistoryMonth & #bleedingdisorders interview of Connie Montgomery by James Maple
📲 Listen, share & subscribe: https://t.co/iPDbaIhmr6
#hemophilia #raredisease

This is big.
What does the first #genetherapy product in the USA mean for the greater #hemophilia community?
The 12/9 epi of #BloodStreamPod features @pjlynch & @boardo87 offering first reactions to #Hemgenix approval.
Subscribe🎧 to BloodStream🩸 now: https://t.co/C1i11OCkdL
NHF CEO @LenValentino1 is featured in this @BusinessInsider article from @AndrewE_Dunn that explores reactions to the recent Hemgenix approval. https://t.co/RRb8fwtBus
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