Top Tweets for #CDKL5FORUM
It’s great to be back in Cambridge and at MIT. It has always been a special place for me. I attended a fantastic #CDKL5Forum, and gave a talk at #SCSB. It was so nice to catch up with the @SurLabMIT.
We will return again next year for #CDKL5 Forum 2025!
🎯 Meta alcanzable: una comunidad unida hará realidad la cura 💚 El #CDKL5FORUM muestra la fuerza de familias, investigadores y empresas, todos avanzando juntos. Gracias a Loulou Foundation, nuestro sueño se hará realidad…la pregunta es ¿cuándo?
#CDKL5 #EsperanzaCDKL5
¡Felicidades Dra. María del Carmen Martín Carrascosa del @CIPFciencia por el premio de la Loulou Foundation! Su trabajo con Drosophila es un gran avance en la investigación del Síndrome de Deficiencia CDKL5. ¡Enhorabuena por este merecido reconocimiento! 👏 #CDKL5 #CDKL5Forum
Bellísimo el testimonio de una hermana #cdkl5 para toda la comunidad internacional. 💚 Los hermanos son esa parte de nosotros que decidió nacer otro día, y en situaciones difíciles, como una #EERR , nos enseñan lecciones de vida. 🙏 ¡Gracias! #cdkl5 #cdd #CDKL5FORUM
MªCarmen Martín del @CIPFciencia presenta en el #CDKL5Forum el modelo de #CDD en moscas que empezó hace unos años gracias a la #AACDKL5. Gran ejemplo de cómo el trabajo de la asociación puede tener un gran impacto internacional para toda la comunidad #CDKL5.
¡Movemos montañas!
Empieza el Fórum CDKL5 2024 en Boston, organizado por la Loulou Foundation. Esta décima edición reúne a más participantes y países que nunca para conocer los últimos avances en investigación y compartir las experiencias de familias y afectados/as.
#CDKL5 #CDD #CDKL5Forum
Here are the news about therapy development for #CDKL5 that we learnt at the #CDKL5Forum 2023
- new findings about the disease
- CDD rats with epilepsy
- 8 trials in 8 years
- biomarkers
- gene therapies update
- two new therapeutic avenues
… and more
https://t.co/0wyxRa6qvM
Girl's power from @unito and @CDKL5_IFCR attending the #LouLouFoundation dinner of the #cdkl5forum 2023 in London. We are deeply grateful to Lynn and @MajidHamidJafar, @djlavery and the LLF team for offering us this yearly unique opportunity. #CDKL5 @PatientIntv
Delighted to represent the RSZ-TNC #HumanNeuronCore and participate in such an engaging workshop on #iPSC technologies in #CDKL5 #research at the #CDKL5Forum2023 #CDD #CDKL5DeficiencyDisorder #CDKL5Forum
What an incredible line up at the #CDKL5Forum today! Very privileged to be here and we’re especially looking forward to hearing from @DrStanleyCrooke of the n-Lorem Foundation and @KyNeurosciGuy representing @FinkLab #genetherapy #CASKresearch #cureCASK
Our Founder Laura was thrilled to finally meet Dr Kyle Fink of UC Davis @FinkLab at the #CDKL5Forum in London this week and is excited to meet more of our CASK champions in attendance! We share so much in common with #CDKL5, this is a great forum to learn from this community!
Dr. Michela Fagiolini, of @FMKirbyNeuro @BCHNeuroRes @harvardmed, hosts a session on #CDKL5 dependent brain function and physiology at #CDKL5Forum #CDKL5DeficiencyDisorder #CDKL5research
Dr. Mustafa Sahin, @sahin_m, chairs a session on #CDKL5 function and regulation during the #CDKL5Forum. #LouLouFoundation #CDKL5DeficiencyDisorder #CDD #research #CDKL5Forum2023
Dr. Daniel Lavery @djlavery, CSO of the #LouLouFoundation and Director of the #CDKL5Forum, highlights the recent developments from the #CDKL5 #research community at the #CDKL5Forum2023.
Mr. Majid Jafar @MajidHamidJafar, co-founder of the #LouLouFoundation, delivers the opening remarks at the #CDKL5Forum. We are grateful to the Jafar family for their inspiration and support, through the foundation, for our efforts in #CDKL5 #research #CDKL5DeficiencyDisorder #CDD
✨We are very grateful to the LouLou Foundation for the continuous support of our research on CDD.
#ulsesneuroscience #PatientCentricity #translationalrsearch #neurodevelopment #neurodevelopmentaldisorders #cdkl5 #CDKL5Forum #CDD #wegivevoice #wedoscience #ThinkRare
✨We were delighted to be back in person at the #CDKL5Forum 2022.
✨We had the chance to hear the patients' community voice and interact with them which is always very important for the benefit of the patients.
Amazing couple of days at CDKL5 Forum in Boston. As a parent, it is really inspiring to see so many bright minds working with a common goal.
I’ll be back home with my bags full of hope in a brighter future for our kiddos.
#cdkl5forum
Stay tuned for more details.
🗓November 7-8, 2022
📍Boston, MA
#ulyssesneuroscience #PatientCentricity #neuropsychiatry #neurodevelopment #cdkl5 #CDKL5Forum #ThinkRare #WeGiveVoice #wedoscience
@ITA_CDKL5_IVLC @CDKL5USA @calanne @CDKL5UK @CDKL5Alliance @CDKL5Cad @CdklFr @cdkl5mom @cdkl5_nl #cdkl5forum
Great to hear at cdkl5 forum that visual assessment is so useful for CDD. Years of work were not wasted!
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