Top Tweets for #CFMama
This is why we fight!!
Until CF stands for Cure Found. For all mutations. For all ages. For all fighters everywhere!
#cfmama #cfirl #cff #GreatStrides
The @US_FDA has approved Kalydeco for infants with cystic fibrosis ages 1-4 months who have certain mutations. Research indicates that early intervention with modulators can help slow or even prevent the irreversible progression of this disease. https://t.co/2VwPmx0WjN
https://t.co/4oLqUgpmKp
This is my son. Cystic fibrosis is part of his life...fighting every ...
I LOVE YOU JD
Proud #cfmama #cf #cysticfibrosis #fivefeetapart #love #kalaharikind #cysticfibrosissa
Young people with CF are stuck in a Catch-22.
They fight with all they got to keep their lung function from deteriorating.
But they cannot access life-saving medication until they drop below 90% lung function.
@CADTH_ACMTS, please stop this senseless suffering!
#TrikaftaNOW
I said I would and I did! You can still donate https://t.co/hhKPlWEb6V dolars assist in funding the science working to find a cure for #cysticfibrosis This #CFmama went bald for a #CFcure in honor of my girl Andrea with the help of her #Andreasangels @CF_Foundation @NIHDirector
The day has arrived this #CFmama is going bald in the name of a #CFcure Join us virtually live vía FB Susie Rider & IG @andreasangelscf today at 7p CT #CF #cysticfibrosis #locksbegone @CF_Foundation @IowaCFF donate at https://t.co/hhKPlWEb6V
.@SenAlexander @votemarsha @repjohnrose People with #cysticfibrosis shouldn’t have to choose between their health and their paycheck during #COVID19. Please act to expand paid leave for people with chronic conditions and their caregivers!
#cfmama #cfirl
This could just as easily be MY child with CF...people...please take this seriously. This is not just a typical cold or flu virus. No one is immune. It could be extremely dangerous for some!
#cfmama #stayhome #SocialDistancing
SIX YEARS OLD with cystic fibrosis and now diagnosed with COVID-19.
This is WHY you need to take social distancing seriously.
https://t.co/ysXdzez2Lr
I have felt every emotion portrayed in this and have told myself to “get up” and that my girls will “be ok” and “will get through it” many times. Bravo on this emotionally raw ad. #CFMama #CysticFibrosis #SickKids https://t.co/O6xVdM8rV2
Can’t believe the 3rd annual Strike out CF softball tourney is this coming weekend! Who knew this small idea we had would become reality! 10 teams, one field, camping, raffle prizes, concession, HR derby - great cause! #StrikeOutCF #CysticFibrosis #CFMama #CFWarrior #CureCF
May is Cystic Fibrosis Month:
A Pulmonary Function Test (PFT) measures how well your lungs are doing. Our girls are normally 60-70% (age 13) and 30-40% (age 10) #cysticfibrosis #cf #endCF #CFCanada #AWorldWithoutCF #PFT #CFWarrior #CFAware #CFMama
Excited to be here. Looking forward to hearing about the research, advancements, and what is next in our fight to #endCF ##CFLVF2018 #cysticfibrosis #cfmama #toronto
Thank you #BMO #Kamloops for donating your BBQ proceeds (over $500) to help find a cure for #cysticfibrosis #cf #worldwithoutCF #cfmama
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