Top Tweets for #CFSTRONG
Thank you @ArcturusRx for being part of our team! Our friends at Arcturus assembled 80 Hospital Bags for The Bonnell Foundation and delivered them to 8 hospitals in support of our program. The CF Community is a close one. We all support one another. #CFStrong #cfcommunity @LauraTbonnell Photo credit: Arcturus.
Celebrate Affordable Access: https://t.co/Nn1oybwz4t
A new FDA approval is making treatment more affordable for people with cystic fibrosis.
#CysticFibrosisNews #CFCommunity #Tobramycin #CFResearch #CysticFibrosis #CFWarrior #CFStrong #Bionews #RareDiseaseCommunity
Last week, #BEFAthlete Victoria Rapley celebrated her soccer senior day at SUNY Cobleskill! ⚽ To top it off, Victoria (#7) scored the 7th goal of the game! Go Victoria! 👏
#BoomerEsiasonFoundation #CysticFibrosisAwareness #BEFAthlete #CFStrong #Collegesoccer
From NY Social Worker: "Katie, an Amish woman w/ CF, couldn’t access grants online. We applied on her behalf and thanks to the Bonnell Foundation, she now has the oxygen support she needs to keep farming."
Community. Compassion. Access.
#CF #BonnellFound #HealthEquity #CFstrong
So many great discussion @ECFSConference conference! The most recent on registries and their importance was very interesting. #CF #Milan getting to see and mingle with so many amazing people!! #CFstrong
My heart. It’s here in Egypt with these beautiful CF families. My second family/home.Thx @NasrSamya Dr. Nasr changing the world for the better and getting families the meds they need. Much more to do. More details to come about this trip. #CF #inthistogether #cfstrong
Today’s podcast will inspire caregivers and have you bursting with hope! Why? Podcast host Laura Bonnell and guest @BobCoughlin (his son has CF) talk about advancements in treatment, a cure on the way, and the importance of advocacy. Bobs energy is infectious! #CFSTRONG #CFpower
We tried. The RDAC is dead. We will try again. Thanks to everyone who gave their voice to get try and get this passed. We will get it done in 2025. #CFstrong #rarestrong @RareDiseases @michbio @JasonMorganMI
In our #CFStrong series, Mel Cutler shares his #cysticfibrosis journey, finding purpose in music and entrepreneurship. Now, he advocates for the CF community so that no one is left behind. Read Mel's story>> https://t.co/k9c7pwBfpK #CrossOutCF #CFAwarenessMonth #DareToDream
Throughout May, our #CFStrong series shares stories from those affected by #cysticfibrosis. From parents to adults living with CF, these stories offer intimate insights into daily life with CF.
Congratulations!!!! We are so proud!!!
#CFStrong #cysticfibrosis
@mghfc @MassGeneralNews @bostonmarathon
.@RepHaleyStevens @SenStabenow @SenGaryPeters please support the HELP Copays Act to help people with #cysticfibrosis afford the high-quality care they need. #CFadvocacy #CFstrong #rarediseasestrong
CF is always a challenge. Caroline Heffernan talks about taking the disease head on. She climbed Kilimanjaro. What' you're Kilimanjaro? It could be the stairs in your house. Celebrate any success. Be inspired by Caroline in today's podcast. #cfstrong https://t.co/F6sOBwCM0Z
It’s out! If you subscribe to the Living with cystic fibrosis podcast then you know!! Thanks for all the positive feedback back from everyone who has listened. Carre Callaway @QueenKwong tells her amazing story of diagnosis, advocacy and plans for the future! #CFstrong
Join us on November 15th for the Walk Away Cystic Fibrosis Event 💜✨
#rowanprad #cysticfibrosis #walk #rowanuniversity #CFWARRIOR ##cfawareness #cfstrong
The trip to West Palm Beach was wonderful! Pipers Angels CF warriors were impressive! Glad to make new friends! Fingers crossed my flight gets me home later today! #pipersangels #CFstrong
Thank you to our generous 2023 #CFAwarenessMonth Tier 1 sponsor, Vertex Pharmaceuticals Inc, for helping us share real stories of people with CF in our #CFStrong series all month long!
#CFAwarenessMonth #CFAwareness #cfadvocate #cysticfibrosis #CFStrong
Our #CFStrong series continues with a post by Ela Castillo!
Read it here >>> https://t.co/NiZMihAppK
Thank you to our 2023 #CFAwarenessMonth Tier 1 sponsor, @VertexPharma
#CrossOutCF #CFAwarenessMonth #CFAwareness #cfadvocate #cysticfibrosis
In today’s #CFStrong post, guest blogger @drewdotson asks the question, “what will you do with your new lease on life?”
https://t.co/87idoMNOfe
Thank you to our 2023 #CFAwarenessMonth Tier 1 sponsor, @VertexPharma for supporting our #CFStrong series!
#CrossOutCF #CFAwareness
Cystic fibrosis awareness month ! Shoutout to me for battling a life threatening disease ❤️‼️ everyday #CFStrong
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