#CFStorm - Twitter Hashtag

over 2 years ago

What a milestone! We are now 80%✨ of the way to reaching the #CFSTORM recruitment target💛! We have welcomed an amazing 28 recruits already into the trial this month👏! @livuni_LCTC @cftrust @NIHRresearch #cysticfibrosis

0

8

2

0

285

Cystic Fibrosis Trust @cftrust

about 4 years ago

#ECFS2022 Gwyneth Davies opened the main conference talking studies that are looking at simplifying treatments after Kaftrio, including an update on #CFStorm. Follow the link for more information, and contact your CF Team to learn how to get involved. https://t.co/alQ2Xds6J5

cftrust's tweet photo. #ECFS2022 Gwyneth Davies opened the main conference talking studies that are looking at simplifying treatments after Kaftrio, including an update on #CFStorm. Follow the link for more information, and contact your CF Team to learn how to get involved. https://t.co/alQ2Xds6J5 https://t.co/UhEF6sSYvH

0

13

0

1

0

Gwyneth Davies @DaviesGwyneth

over 4 years ago

Impactful drawings by @smizz from the 2022 UK @cftrust clinical trials conference yesterday. Great to have the opportunity to talk on challenges and solutions for investigator-led trials! #cf #clinicaltrials #cfstorm

sarah smith smizz ✏️✏️✏️ スミッツ @smizz

over 4 years ago

Had a brilliant day live drawing the @cftrust conference on clinical trials today. I met many incredible people & was great to re-meet amazing doctors like professor @AlanRSmyth. I was amazed how much CF research has moved on in 4 years since I was last here. Amazing work

smizz's tweet photo. Had a brilliant day live drawing the @cftrust conference on clinical trials today. I met many incredible people & was great to re-meet amazing doctors like professor @AlanRSmyth. I was amazed how much CF research has moved on in 4 years since I was last here. Amazing work https://t.co/EG38OMY0l7

0

9

0

3

1

0

Gwyneth Davies @DaviesGwyneth

almost 5 years ago

Exciting to hear great progress in recruitment to #SIMPLIFY, #QUEST and #HERO2, & give update on #CFSTORM trial in ‘Studying changes in chronic therapies in the era of highly effective modulator therapies’ at #NACFC (OD03–CLIN). Thanks Clement Ren and @GregSawickiMD! #NACFC2021

0

9

0

CF Trust Youth @CFTrustYouth

almost 5 years ago

7PM TONIGHT! #CfStorm #clinicaltrial for ppl with #cysticfibrosis age 12+ designed to find out if people receiving #Kaftrio can safely start to reduce the number of treatments they have to manage as part of their daily healthcare routine. Register here: https://t.co/eKEuGdMxUo

CFTrustYouth's tweet photo. 7PM TONIGHT! #CfStorm
#clinicaltrial for ppl with #cysticfibrosis age 12+ designed to find out if people receiving #Kaftrio can safely start to reduce the number of treatments they have to manage as part of their daily healthcare routine. Register here: https://t.co/eKEuGdMxUo https://t.co/hO206j4xha

0

2

0

Naomi Dayman @DaymanNaomi

almost 6 years ago

The thought we maybe able to withdraw treatments and not keep adding to a patients medication list/ treatment burden shows there’s hope on the horizon for patients with CF #cf #ecfsgoesdigital #cfstorm @cftrust

DaymanNaomi's tweet photo. The thought we maybe able to withdraw treatments and not keep adding to a patients medication list/ treatment burden shows there’s hope on the horizon for patients with CF #cf #ecfsgoesdigital #cfstorm @cftrust https://t.co/S545JXebNF

0

34

4

1

0

Louise Warnock @warnock_loopy67

almost 6 years ago

Fantastic to be able to watch #ECFS2020 from home. Excellent first session hearing about the exciting stop trials to reduce treatment burden for our patients and discussion about the importance of adherence data in carrying out this work #cfstorm #ecfsgoesdigital

warnock_loopy67's tweet photo. Fantastic to be able to watch #ECFS2020 from home. Excellent first session hearing about the exciting stop trials to reduce treatment burden for our patients and discussion about the importance of adherence data in carrying out this work #cfstorm #ecfsgoesdigital https://t.co/WldXxzKmo5

0

2

0

Catherine Fordyce @Cath4dice

almost 6 years ago

Exciting times ahead looking at the effects of treatment withdrawal for those on Highly effective modulator therapy ⛈ #CFStorm #ecfsgoesdigital

Cath4dice's tweet photo. Exciting times ahead looking at the effects of treatment withdrawal for those on Highly effective modulator therapy ⛈ #CFStorm #ecfsgoesdigital https://t.co/otwpK5Ekg0

0

3

0

Emma Raywood, PhD @Fizzy_Emma

almost 6 years ago

Great talk by our colleague @DaviesGwyneth expanding the findings from @questionCF and looking to the future #CFSTORM study (and others) to reduce and simplify treatment burden. #Treatmentburden #UKCFRegistry #ECFSgoesDigital

Fizzy_Emma's tweet photo. Great talk by our colleague @DaviesGwyneth expanding the findings from @questionCF and looking to the future #CFSTORM study (and others) to reduce and simplify treatment burden.

#Treatmentburden #UKCFRegistry #ECFSgoesDigital https://t.co/O1PmTsBvxr

1

8

2

0

Sian Bentley @SianABentley

almost 6 years ago

Really v exciting - looking for evidence to underpin simplifying treatment burden in CF in era of modulators #cfSTORM @UkCFPG @ECFSConference @ecfpg @cftrust

SianABentley's tweet photo. Really v exciting - looking for evidence to underpin simplifying treatment burden in CF in era of modulators #cfSTORM @UkCFPG @ECFSConference @ecfpg @cftrust https://t.co/Rnuvf7frS4

3

39

4

0

Bertha's Army @berthasarmy

almost 6 years ago

Really important this is done soon I think👏🏼👏🏼 #cf #kaftrio #cfstorm

Cystic Fibrosis Trust @cftrust

almost 6 years ago

The arrival of Kaftrio for many people w/ #cysticfibrosis has raised the potential for reducing treatment burden by stopping other therapies. We've been working with a team of academics to plan a national study to assess stopping some nebulised therapies after commencing Kaftrio