Top Tweets for #CFers
Huge thanks to everyone who liked & shared details of this study & to the fantastic participants (adults with #cysticfibrosis) for giving up their time to share their views with me. I’m pleased to say the results of this study are now published - https://t.co/Jzfda3xCSY #CFers
Are you an adult with #cysticfibrosis who attends a UK CF centre? If so, I’d be delighted to hear from you for my doctoral research study on how treatment-taking is discussed in healthcare - more info below! ⬇️ Please DM or email me if interested, and please RT 🙏 #CFers @cftrust
This #qualitative interview study explored the views of adults with #cysticfibrosis on how treatment-taking (or adherence) is discussed in healthcare @HealthPsyStaffs
@NUH_CFUnit @cftrust @CFAware #CFers @divhealthpsych https://t.co/Jzfda3yaIw
Noble with John on #CapitolHill — his 1st year as a #TeenAdvocate for @CF_Foundation — & especially for his brother Worth 🙏
Noble met with @thomtillisnc, @repjamesclyburn, @repdeborahross @repadams
You can support #CFers too!
https://t.co/xv2yjBFNKf
@CFF_Carolinas
Offered up some raw dog food on Olio; persons messaged me and asked if I'll do a 10 mile round trip to deliver it to them #CFers
Hey quick question to any #CFers out there: who else still gets hemoptysis episodes even after being on #Trikafta for a while?
So annoying 🙃
-just a drowning in her own blood.
#cysticfibrosis
#cysticfibrosisawareness
Please check out my recent preprint on computational modeling the most important CFTR mutation F508del. #cysticfibrosis #CFers Soon CF may be treated using computer-aided, AI driven drug design!
https://t.co/gsoIaWijpN
Had my 1st dose of Covid vaccine. Was given the Pfizer one. Pleased to have gotten it, little concerned about not getting the next dose for 11 weeks when Pfizer & WHO recommended 4-6 weeks between doses. Still any protection is better than no protection #CFers
Looking for English-speaking participants for research exploring the impact of #cysticfibrosis on #relationships! It will involve a 60
minute virtual interview. Please contact me if interested and share! #cf #cfers
Research into the impact of #CF on relationships is so important. I am looking for English-speaking participants to take part in my research! Please DM/email me if interested and please share! #cfers #cysticfibrosis @CF_Foundation @CFAware @cftrust
Are you an adult with #cysticfibrosis who attends a UK CF centre? I’m looking for a few more participants for my doctoral research study on how treatment-taking is discussed in healthcare! Please RT, & DM or email me for more info - I’d love to hear from you! 😀🙏 #CFers @cftrust
Thanks so much to everyone who’s liked & shared my post, and to the people with CF who have been in touch 🙏 I’m still looking for participants so please continue to share, and DM or email me if interested in taking part or would like to find out more 😀⬇️ #CFers #cysticfibrosis
Are you an adult with #cysticfibrosis who attends a UK CF centre? If so, I’d be delighted to hear from you for my doctoral research study on how treatment-taking is discussed in healthcare - more info below! ⬇️ Please DM or email me if interested, and please RT 🙏 #CFers @cftrust
Are you an adult with #cysticfibrosis who attends a UK CF centre? If so, I’d be delighted to hear from you for my doctoral research study on how treatment-taking is discussed in healthcare - more info below! ⬇️ Please DM or email me if interested, and please RT 🙏 #CFers @cftrust
I’ve barely coughed at all today. I can’t remember a time in the last 20 years that I’ve coughed so little. My breathing is definitely easier too. I’m taking that as a sign that Kaftrio is working for me. Not even been on it a week yet. #CFers
My Kaftrio has finally arrived. Get to take my 1st dose tomorrow, once my involvement in the Symkevi trial is ended. Can’t wait to see what impact it has on my health. 😁 #CFers
Receive bad news
Curse
Hang up on your nurse
Cry
Receive E-mail from nurse beginning with "Shelby, I know you're very frustrated..."
😂😂😂
#RebelCFer #CysticFibrosis #CFers
fill in this template https://t.co/6ZaQZEulah tell the government time is now for making life changing medication accessible for people with cystic fibrosis
#CFers !!
All #cysticfibrosis patients
Can we start a PostCard/PenPal thing for hospital stays?
Maybe make a group message or something to share addresses to hospitals (or homes if you'd like)??
DM me!
#RebelCFer #CF @CFAware #cysters #fibros
We are like puzzles made up of many pieces but our puzzle never ends so why not join us and become a pice of the puzzle that helps us complete our mission of #addingtomorrows for #cfers msg us or checkout our… https://t.co/9024lcoQ1l
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