Top Tweets for #ChRCC
@KidneyCancerDoc @hchristofk @UCLAHealth @KotechaMD @MSKCancerCenter @PavlosMsaouel @MDAndersonNews @TiansterZhang @UTSWMedCenter @HasanovLab @OSUCCC_James 🌟 @BraunMDPhD @YaleMed studies chromophobe RCC #chRCC a rare kidney cancer that often resists immunotherapy. With a 2022 KCA grant, his team investigates tumor biology to improve treatment strategies. #ResearchMatters: https://t.co/CMjgFTyh4A
🗓️ Something big is coming.
This September, we’re launching a first-of-its-kind day just for the chromophobe kidney cancer community.
More soon.
#chromophobeday
#kidneycancer #chRCC #chromophobe

chRCC can donate their tumors while it’s still viable to institutions studying it
🌟 A blog series highlighting the voices of those affected by #chRCC
🌟 Ongoing efforts working toward a patient registry and biobank
🌟 A dedicated virtual support group held every 8 weeks for
had the honor of opening our first virtual patient support group for chRCC by sharing how far we’ve come since then.
🌟7 funded grants, awards, or initiatives dedicated specifically to #chRCC since 2022. Supported by several foundations including @kidneycoa @KidneyCancer @kcCURE
Breaking out of the group chat💥
Four years ago I was recovering from surgery and messaging my support system, the “chromophobe six”, about the lack of research, info, and community for #chRCC. There wasn’t a singled funded foundation grant for chRCC at the time.
This evening I

Huge credit to André Figueiredo (PhD, Biochem
@laqv_requimte ) Collaboration with @UPMC fueling clinical impact. 📎 Full story: https://t.co/9ZBxJ3CeQ9 #Proteomics #ccRCC #pRCC #chRCC #Oncocytoma #CancerDiagnostics #PROTEOMICSNOVA

Proud of all @kaydaustin does to raise awareness for #kidneycancer, fund #chRCC research through @kidneycoa, and manage her own diagnosis and health to the point where she can loudly advocate for patients and researchers alike!
#worldkidneyday #kidneycancerawarenessmonth
After Katie Coleman was diagnosed with a rare form of advanced #KidneyCancer in 2020, she received treatment through an NCI #ClinicalTrial. Today, she’s an author who raises awareness about rare kidney cancers. https://t.co/zMAYoXnkQD #WorldKidneyDay

Thrilled to have our friend Teri Wight covering the March issue of Cancer Health! She shares her #chromophobe #kidneycancer journey and what she's learned along the way. Read her story: https://t.co/pHJk5TnkSj
#chrcc #patientadvocate #kidneycancerawarenessmonth

March is #KidneyCancerAwareness Month! Did you know that chromophobe RCC makes up roughly 5% of all kidney cancers? Though rare, our community is strong. We'll be sharing all month, so keep an eye out to learn about #chromophobeRCC and join us in raising awareness! #chRCC

Excited to check out the FOUR abstracts for #chRCC tomorrow at #GU25 #chromophobe (H31, H18, E21, E36)



Learn more about #ChRCC Focus Awardee @Dr_Liz_Ellis_MD who works to identify biomarkers to assess if #chromophobe tumors will respond to treatments targeting cancer cell metabolism, helping clinicians decide the best way to manage this rare #kidneycancer. https://t.co/EfD4vARyD3
@LauraBukavinaMD @ClevelandClinic 🎉Congratulations @Dr_Liz_Ellis_MD @MDAndersonNews!
She received KCA’s #ChRCC Focus Award in partnership with @kidneycoa to identify biomarkers that might indicate if #chromophobeRCC will respond to treatment.

Teri Wight was diagnosed with #chRCC in 2014. In a guest blog post, Teri described things she wished she knew, including:
🙌 Be your own advocate
🙌 You're not alone
🙌 Having cancer is hard
Read Teri's guest blog post: https://t.co/avn0RjzF3O

📺 We talked with Sahil Doshi, MD, of @MSKCancerCenter, about his retrospective analysis presented at #ASCO24 that sought to better understand the effects of first-line #systemic therapy in #metastatic #ChRCC.
👉 Watch Now: https://t.co/3Hgphni1NY
📊 At #ASCO24, researchers conducted a #retrospective analysis of patients with metastatic #ChRCC to better understand the effects of first-line #systemic therapy.
👉 Read More: https://t.co/iHQaMc2VkU

Check out this great work about transformation mechanisms in chromophobe renal cell carcinoma!
#chRCC
Congratulations to @PayalKapur5 @genentech @dinesh_rakheja @KCPUTSW and all on https://t.co/VcslWHwumN reporting mechanism of transformation of #chRCC #sarcomatoid

Congratulations to @PayalKapur5 @genentech @dinesh_rakheja @KCPUTSW and all on https://t.co/VcslWHwumN reporting mechanism of transformation of #chRCC #sarcomatoid

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