Top Tweets for #Chance2Live
CureSMA India wishes a very happy #IndependenceDay2022 #IndiaAt75 to one n ALL.
May every child/ patient get chance to live better quality of life n get access to life saving treatments. #BattleAgainstSMA #everylifeisprecious #everylifematters #Chance2Live #SupportCureSMAIndia
@curesmaindia @CDSCO_INDIA_INF @drvgsomani @drharshvardhan @NITIAayog Thanks so much @drvgsomani n Dr. A. K. Pradhan 4 all d support 2 patients of #SpinalMuscularAtrophy. Tks also 4 draft rules on compassionate use program 2 enable patients with life threatening disease 2 get #Chance2Live with import of life saving drugs 🙏 #EveryLifeIsPrecious
This year 2021 is #NewYearWithNewHope towards #HealthForAll #EveryLifeIsPrecious #LeaveNoOneBehind @WHO @WHOSEARO @doctorsoumya @UNICEFIndia @UNinIndia @UNHumanRights @UNDP @un @UN_PGA pls ensure all children get #Chance2Live #right2live when there r treatments on dis planet.
We take great pride in presenting our 2021 calender with paintings made by our #SMArtWarriors demonstrating tenacity to create these art work despite hardly any strength to hold the brush. #BattleAgainstSMA
@PMOIndia @drharshvardhan @MoHFW_INDIA @AyushmanNHA @moayush @AmitShah
@PPHF_Asia @Lkpalo @ORDIndia @TakedaPharma @MoHFW_INDIA @NITIAayog Tks Dr. Palo @Lkpalo n @PPHF_Asia 4 regional consultantion initiative n opportunity 🙏. V hope d decision makers intervene asap n our children n patients get #Chance2Live. #BattleAgainstSMA #HealthForAll #EveryLifeIsPrecious #SupportCureSMAIndia @saumitra_mohan @MamataOfficial
The pain of losing children to debilitating diseases like SMA is unparalleled; it’s more when the medicine is so near, yet so far.
All kids deserve a #chance2live. We look forward to @narendramodi ji, for bringing the medicine to India ASAP
https://t.co/ZTAHkga8vJ
August 2020 SMA Awareness month-Day 3- Case Story of Naeema- Hyder and their child Aiza Maryam. All kids deserve #Chance2Live. We urge government to help us get treatment
@narendramodi
@PMOIndia
@MoHFW_INDIA
@CDSCO_INDIA_INF
@ICMRDELHI
@drharshvardhan
#BattleAgainstSMA
August 2020 SMA Awareness month-Day 3- Case Story of Naeema- Hyder and their child Aiza Maryam. All kids deserve #Chance2Live. We urge government to help us get treatment
@narendramodi
@PMOIndia
@MoHFW_INDIA
@CDSCO_INDIA_INF
@ICMRDELHI
@drharshvardhan
#BattleAgainstSMA
August 2020 SMA Awareness month-Day 2- Kartikeya #SMAWarriorSpeaks abt his challenges n wisges to play cricket n run like other kids. All kids deserve #Chance2Live. V urge Govt 2 intervene 2 get treatment @narendramodi @PMOIndia @MoHFW_INDIA @CDSCO_INDIA_INF #BattleAgainstSMA
August 2020 SMA Awareness month-Day 2- Danish, #SMAWarriorSpeaks abt his challenges n his hobby of reading. All kids deserve #Chance2Live. V urge Govt 2 intervene 2 get treatment @narendramodi @PMOIndia @MoHFW_INDIA @CDSCO_INDIA_INF @ICMRDELHI @drharshvardhan #BattleAgainstSMA
@drharshvardhan @WHO @PMOIndia @MEAIndia @MoHFW_INDIA @WHOSEARO @DrTedros @narendramodi Many Congratulations @drharshvardhan. V hope 2 see huge positive impact in #UniversalHealthCoverage, #HealthForAll, #Affordability n #Access 2 life saving drugs across boundaries. If dere is a drug on dis planet, it MUST reach d patient 2 give #Chance2Live. #BattleAgainstSMA.
@reddogsusie Oh Raymond. You are only 2. You haven't been given a CHANCE for a real LIFE. You have had a horrible start. I'm gonna try to help change your future....we ALL are. You need your 2nd chance. You were robbed of your first one. #Chance2Live #NeedTLC
@ScholarRock @NMahanthappa Dear Sir, on behalf of #SpinalMuscularAtrophy community in India, v request u 2 please bring clinical trials 2 India 4 Indian #SMA patients so dat they get #Chance2Live. V r losing kids every month 2 dis draconian disease #SMA #BattleAgainstSMA #SupportCureSMAIndia
@GlobalFund #StepUpTheFight 4 #lifethreatening #SpinalMuscularAtrophy. All children deserve #Chance2Live #right2live #right2health when there is treatment n cure on dis planet. #BattleAgainstSMA #HealthForAll #EveryLifeIsPrecious #SupportCureSMAIndia
CureSMAIndia celebrates #smaawarenessmonth on dis #IndependenceDay2019 with a hope to have #SMAfreeIndia @narendramodi @drharshvardhan @PMOIndia @MoHFW_INDIA @CDSCO_INDIA_INF @biogen @Novartis @Roche #HealthForAll #BattleAgainstSMA #EveryLifeIsPrecious #Chance2Live #right2live
@asgari_samira @10xGenomics Hope your work helps in eliminating genetic diseases. It's so heartbreaking 4 parents 2 see thier innocent kids being pushed 2 death slowly without any of thier fault. #SpinalMuscularAtrophy battling kids deserve #Chance2Live. #SupportCureSMAIndia #BattleAgainstSMA #HealthForAll
CureSMAIndia - hope beyond boundaries. August is #SMAAwarenessMonth. Every child battling #SpinalMuscularAtrophy is an Achiever n Asset to d nation. They all deserve #Chance2Live. @drharshvardhan @narendramodi @PMOIndia please get #spinraza #ZolGenSMA n SAVE lives.
70 million Indians live with some form of rare genetic disease. But for global drug makers, India isn’t a priority. Unless local firms step up R&D and tame obscene prices, many will continue to suffer, says @VikasReports Now a #FREEREAD https://t.co/jb7CRJspcv
@nsitharaman @arunjaitley Request you to work out Economics for funding these life saving treatment n Cure for ALL Indian patients, mainly children to get #Chance2live @narendramodi @PMOIndia @drharshvardhan @smritiirani
INR14 crore for a single #drug shot: the unfair price of living with a deadly #raredisease in #India... @curesmaindia https://t.co/WfdpqsmJdI
@AveXisInc @US_FDA V hope that all d other children n adults too get this cure asap. Hope all patients get #Chance2Live. #HealthForAll #EveryLifeIsPrecious #UHC #SupportCureSMAIndia #BattleAgainstSMA
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