Top Tweets for #DefyRARE
Happy #RareDiseaseDay advocates, clinicians & researchers! I advocate 4 discovery, treatments & cures, so we can get back 2 fully living! #RareDisease @GlobalGenes @RareDiseases @rarediseaseday @TheMightySite @NIH @ncats_nih_gov @KFS_Freedom #DEFYrare #WRDD2020 #ShowYourKFStripes
#NIHchat Thank you for inviting us as patients and families affected daily by #raredisease for #rarediseaseday. Together we #DEFYrare. π¦πππͺπΌ How can small rare organizations connect with you and create a partnership for progress? @KFS_Freedom which wants our foot in the door.
It's Rare Disease Month.
I'll be oversharing.
Why? It's π.
Saturday, Feb. 29th π¦
#raredisease
#rarediseaseday
#KFStrong
#DEFYrare https://t.co/QMeR6uItgT
Sometimes you just gotta cross out the first part, and be FREE! π Have freedom this weekend! It's yours! Live large. Go for it. #defyRARE π #crossoutraredisease #raredisease #klippelfeilβ¦ https://t.co/RkLCSTADED
Geoff, Jack, and Kent make a special trip in honor of Kent's son for Klippel Feil Syndrome awareness day! #KFStrong #KFS2018aware https://t.co/vUo7H2F7Ox
10 Ways to #DefyRare on #RareDiseaseDay: βWith #research, possibilities are limitless." @themightysite https://t.co/AfWGfNlcLd
Rare Disease Adults live a lifetime of unsolved mysteries that greatly impact life. #WRDD2017 #RareDC2017 #DefyRARE #KFStrong @KFS_Freedom
RT @TheEDSociet: Rare Disease Day is Feb. 28
https://t.co/ZkAGiW3KpX
#RareDiseaseDay #DefyRARE #EhlersDanlosSyndrome
Rare Disease Day is Feb. 28th!
https://t.co/PmERB3K1iw
#RareDiseaseDay #DefyRARE #EhlersDanlosSyndrome
Want a RARE DISEASE revolution? #RareDiseaseDay @TheMightySite @sick_chicks #spoonies #WRDD2017 #DefyRARE Heres how> https://t.co/sJA6eJDGsi
Children & adults take flight in unique beautiful ways #RareDisease #WRDD2017 #RareDC2017 @GlobalGenes @EveryLifeOrg @SanfordCoRDS #DefyRARE
Sending hope 2 @RarePOV @GlobalGenes @shirastrongin @emilygmuller @TheMightySite @bsyngap @Ilovepigenetics #DefyRare
Rare Disease Day let's DROP KICK IMPOSSIBLE! #WRDD2016 #RareDiseaseDay2016 #DefyRARE Care needed stat! @KFS_Freedom
Love this Rare Disease Day article @TheMightySite! Do U have 10 friends? Ok then. https://t.co/xsNJMdnuRp #DefyRARE
Article on @themightysite 10 Ways to Get Involved 4 #RareDiseaseDay2016 https://t.co/1gytJkoHX5 #WRDD2016 #DefyRARE
@IlanaJacqueline @TheMightySite Thank you for advocating with us! #WRDD2016 #DefyRare Rare Disease Day Feb 29th
Register for Rare Disease Day events now! #RareDiseaseDay #DefyRARE
https://t.co/weudcH4Feu @SanfordCoRDS @RareAdvocates @TheMightySite
Register for Rare Disease Day events now! #WRDD2016 #DefyRARE
https://t.co/weudcH4Feu @rarediseaseday @SanfordCoRDS @RareAdvocates
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