Top Tweets for #EBAware
25-31 Oct is #EBAwarenessWeek. Currently there's no cure for EB.
Awareness means more empathy, more compassion, more kindness, and more funding which leads to research. We're excited to be working with some Irish influencers this year to make them #EBAware. Watch this space🧐
The amazing Gunita and daughter Maria took part in the @VhiWMM for DEBRA Ireland on Saturday. Gunita pushed Maria the whole 10km in her buggy. It never ceases to amaze us the courage & determination of our families. We are SO PROUD of you Gunita & Maria #EBAware #EBWarriors🦋💙
Thank you for sharing @DisabilityFed 🙂
Please tune in to @RTEOne from 10.05pm to watch Alana (4), an incredibly brave superhero, and her family as they show us what life is like living with the debilitating condition #epidermolysisbullosa 🦋 #EBAware
This programme is just what we need, positive solutions to complex problems and tonight our members @debraireland in the spotlight. @RTE
DEBRA Ireland board member, @realBobbyHealy, will be on @WeekendOnOneRTE with Brendan O'Connor from 11am tomorrow asking our future politicians to make the rights of EB patients a priority & why he's challenged himself to spend 6 days in the 🥶Arctic🥶 this March #EBAware #GE2020
Some people are not famous to the world but they are famous to those around them. In addition to sending love and prayer, Google EB, help with awareness and research. So many deserve a chance. #WestonEBWarrior #EBaware
Weston Zucha 1994-2018
#EBWeek #SeeMeNotEB #seemenotEB #seemenoteb
#EpidermolysisBullosa #EBaware #EBawareness
🦋 🦋 🦋 🦋 🦋 🦋 🦋 🦋
Support @debraireland & pick up your butterfly tattoo at any @goapplegreen & text BUTTERFLY to 50300 to donate €4 to @debraireland
Would love a donation folks, if you can spare 4 euros!
Superheroes like Claudia live a life of constant pain. The constant starting hurts just as much. Help us stop the staring for… https://t.co/l8qcfZrBBi
Get out and grab a tattoo for @debraireland EB awareness week. Having met @emma_p_fogarty & Claudia over the last couple of years their positivity is amazing considering their daily pain. Help support this campaign to research for a cure.
#seemenotev #cureeb #ebaware
Just like @Deanrock14 of @DubGAAOfficial, you can support #EBWEEK by picking up your butterfly tattoo in @goapplegreen nationwide and texting BUTTERFLY to 50300 to Donate €4 #SeeMeNotEB #Cureeb #deanrock #ebaware #DublinGAA
Thank you for your support! #ebaware
Delighted to support our members @debraireland this morning at the launch of their new report on the optimum role and function of an #EB Outreach Nurse
Very pleased to have launched the report "Identifying the Optimum Role and Function of an Epidermolysis Bullosa (EB) Outreach Nurse" in Buswells Hotel this morning. Thank you @debraireland for your kind invitation to be part of this event. #ebaware
EB Mum Liz Collins on the importance of the role of a permanent EB Outreach Nurse #ebaware
Dr Sinead Hickey, Head of Research @debraireland presents the findings of the UCD study into the EB Outreach Nurse Role #ebaware
Minister for Disabilities @FinianMcGrathTD launching the @debraireland Report for the EB Outreach Nurse's Role study #ebaware
Our very own 🦋EB hero🦋 Maria heading off for her first day of preschool! This is a monumentous day for Maria and her family. Good luck Maria & all those heading back to school this week! #EBheroes #BackToSchool #EBAware
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