Top Tweets for #EBAwarenessweek
To truly understand EB, you have to hear it from those who live it every day.
As part of #EBAwarenessWeek last year, we shared this video of people from around the world who came together in at @IADPO in Prague to share their stories 🌍
https://t.co/hO46t84E4d
With special thanks to @ChiesiGRD 🦋💙
🎗️ حملة إنسانية مفعمة بالأمل 💜
تشرفنا بالمشاركة في الحملة التوعوية المتميزة التي نظّمتها جمعية الفراشة @Eb_org1 للتعريف بمرض انحلال الجلد الفقاعي (الفراشة)، ضمن فعاليات الأسبوع العالمي #EBAwarenessWeek، في @mujanpark - خميس مشيط.
كانت الحملة مثالًا رائعًا في التنظيم، الأثر، والتفاعل المجتمعي، جسّدت روح العطاء والعمل التطوعي الحقيقي، ولامس�� قلوب الزوّار برسالتها النبيلة في دعم المصابين بهذا المرض النادر.
كل الشكر والتقدير لـ:
💠 رئيسة الجمعية أ. ريناد آل عثمان @RHG55
💠 نائب الرئيس أ. حامد الغامدي @ghamd_h
💠 المُلهمة أبرار آل عثمان @bror_20
على جهودهم المشرّفة في نشر الوعي وإلهام المجتمع.
💝وشكر خاص لدكتورنا وصديقنا سيف @bdxo_ على عطائه وإخلاصه ودوره الكبير في إنجاح الحملة.
#نحلق_لنحقق_الأمل 🦋
#الفراشة #التطوع_الصحي
سعيد جدًا بالمشاركة في اليوم التثقيفي والترفيهي لأطفال انحلال الجلد الفقاعي (EB) وعائلاتهم🦋
بتنظيم مجمع الملك عبدالله الطبي بجدة و الجمعية السعودية للطب المخبري.
شكر خاص ل��ل من ساهم في إنجاح هذا اليوم، وعلى رأسهم: د. نانسي و د. زهير . جهودكم عظيمة !
#EBAwarenessWeek
We did it—$57,302.80 raised for EB research! 💙
From butterfly art to bold stories, your creativity helped accelerate life-changing science for Epidermolysis Bullosa.
🦋 When we fly together, we’re unstoppable. #UnstoppableMigration #EBAwarenessWeek
It's #EBAwarenessweek! So do it like Damian Lewis and help @CureEBorg raise awareness for EB (Epidermolysis Bullosa) 🦋 https://t.co/bkLp20fvkr #CureEB #EBAwareness #DamianLewis #SohanaCollins #BinkysTimeToFly #EBAwarenessWeek #EBAwarenessWeek2025 #EpidermolysisBullosa
This #EBAwarenessWeek, #INmuneBio honors those living with RDEB, a rare condition causing fragile skin and chronic wounds.
We thank @debraOfAmerica & @EBResearch for their advocacy and support. Together, we’re advancing better treatments and brighter futures.
#EBweek #WeFightEB
It's #EBAwarenessweek! So do it like Damian Lewis and help @CureEBorg raise awareness for EB (Epidermolysis Bullosa) 🦋 https://t.co/bkLp20fvkr #CureEB #EBAwareness #DamianLewis #SohanaCollins #BinkysTimeToFly #EBAwarenessWeek #EBAwarenessWeek2025 #EpidermolysisBullosa
It's #EBAwarenessweek! So do it like Damian Lewis and help @CureEBorg raise awareness for EB (Epidermolysis Bullosa) 🦋 https://t.co/bkLp20g39Z #CureEB #EBAwareness #DamianLewis #SohanaCollins #BinkysTimeToFly #EBAwarenessWeek #EBAwarenessWeek2025 #EpidermolysisBullosa
It's #EBAwarenessweek! So do it like Damian Lewis and help @CureEBorg raise awareness for EB (Epidermolysis Bullosa) 🦋 https://t.co/bkLp20fvkr #CureEB #EBAwareness #DamianLewis #SohanaCollins #BinkysTimeToFly #EBAwarenessWeek #EBAwarenessWeek2025 #EpidermolysisBullosa
Katelyn is unstoppable with her family, her fiancé, and the doctors fighting beside her.
This #EBAwarenessWeek, we’re flying together toward a future where every person with EB has the treatments they deserve.
💙 Join the Unstoppable Migration → https://t.co/Umi4oURiRr?
🦋 100% of every dollar from this fundraiser goes directly to advancing EB research.
Years ago, I met Rafi, a girl born with an agonizing skin condition called epidermolysis bullosa. EB causes extremely fragile skin, widespread & painful blisters and constant scarring.
As work to #CureEB continues, see my reso. marking #EBAwarenessWeek🦋:
https://t.co/fJ27isGuCb
It's #EBAwarenessweek! So do it like Damian Lewis and help @CureEBorg raise awareness for EB (Epidermolysis Bullosa) 🦋 https://t.co/bkLp20fvkr
#CureEB #EBAwareness #DamianLewis #SohanaCollins #BinkysTimeToFly #EBAwarenessWeek #EBAwarenessWeek2025 #EpidermolysisBullosa
It's #EBAwarenessWeek to raise awareness about #EpidermolysisBullosa and the impact it has on patients’ lives. So do it like #DamianLewis and help @cureeb raise awareness for EB 🦋
https://t.co/1v27Bk1ZJW
#CureEB #EBAwareness #SohanaCollins #BinkysTimeToFly #EBAwarenessWeek #EBAwarenessWeek2025
#نحلق_لنحقق_الامل
فعاليات #جمعيه_الفراشه
بمناسبة الأسبوع العالمي
ل مرض إنحلال الجلد الفقاعي
انتهينا من الفعاليات التوعوية
بمركز الصيرفي ميجا مول - جدة
ونلتقيكم باذن الله في مدينة الرياض
الثلاثاء والاربعاء 28 - 29 اكتوبر 2025
#EBAwarenessWeek
It's #EBAwarenessweek to raise awareness about the terrible skin condition Epidermolysis Bullosa and the impact it has on patients’ lives. So do it like Damian Lewis and help @CureEBorg raise awareness for EB 🦋
https://t.co/1v27Bk1ZJW
#CureEB #EBAwareness #DamianLewis #SohanaCollins #BinkysTimeToFly #EBAwarenessWeek #EBAwarenessWeek2025 #EpidermolysisBullosa
Today marks the start of #EBAwarenessWeek 🦋 — a time to shine a light on Epidermolysis Bullosa, a rare disorder causing fragile skin that blisters easily.
Learn more and show your support Oct 25–31 ➡️ https://t.co/OMBUMtWQeP
#EpidermolysisBullosa
#نحلق_لنحقق_الامل
فعاليات #جمعيه_الفراشه
بمناسبة الأسبوع العالمي
ل مرض إنحلال الجلد الفقاعي في مركز الصيرفي ميجا مول جدة
وتستمر الفعالية لهذا اليوم السبت 25 اكتوبر 2025
#EBAwarenessWeek
👕 Turn your clothes #InsideOut this #EBAwarenessWeek (Oct 25–31)!
Join Debra International & GlobalSkin to raise awareness for #EB - a painful, incurable condition - and support those living with it. 💜
👉 Learn more & get free resources: https://t.co/xQqgEvE5qO
Behind every statistic is a person with EB living with daily pain.
Today, their voices are being heard at Leinster House.
#EB #butterflyskin #EBbutterflyreview #EBAwarenessWeek
Ring-fenced, annual funding would make a world of difference to the EB community.
We are working with the Government and the @HSELive to make it happen.
#EB #butterflyskin #EBbutterflyreview #EBAwarenessWeek
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