Top Tweets for #EBRegistry
If you or a loved one lives with #epidermolysisbullosa in Ireland, joining the #EBRegistry is a powerful way to support #EBresearch and advance #EBcare.
Learn more👉https://t.co/mjIQ3Bmgz1
@SkinRegs @cuttyla #EB #registries #HealthResearchMatters
Debra's Head of Research @SSineadHickey and Registry Coordinator @cuttyla from @SkinRegs at the @rare_trial Conference. Where they presented on the #EBregistry - a vital resource for driving progress in #EBcare and #EBresearch.
#RDCTN @hrbireland @HRCIreland
Celebrating our Irish #EBCommunity this week during #SeachtainnaGaeilge. Let’s beat EB together by signing up to the Irish #EBRegistry. Happy #StPatricksDay to you all 🦋☘️
For more information on the registry, please contact [email protected]
This is wonderful we are very excited to build an #EBRegistry with you! Thank you to everyone who donated! #watchthisspace
Thrilled to be awarded funding from #RteComicRelief @CommunityFound for our #EBRegistry in collaboration with National and International Skin Registries (NISR) Solutions.
Thank you to everyone who supported this campaign. Christmas kindness is very much present in Ireland!
Thrilled to be awarded funding from #RteComicRelief @CommunityFound for our #EBRegistry in collaboration with National and International Skin Registries (NISR) Solutions.
Thank you to everyone who supported this campaign. Christmas kindness is very much present in Ireland!
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