Top Tweets for #EBcare
If you or a loved one lives with #epidermolysisbullosa in Ireland, joining the #EBRegistry is a powerful way to support #EBresearch and advance #EBcare.
Learn more👉https://t.co/mjIQ3Bmgz1
@SkinRegs @cuttyla #EB #registries #HealthResearchMatters
We're proud to support not just #EBresearch but also Clinical Practice Guidelines (CPGs) to improve #EBcare.
The latest CPG focuses on managing oesophageal strictures in inherited #EB and is now available to help clinicians worldwide improve care.
👉https://t.co/WtznBUbXc8
💥📣 NEW! Management of Oesophageal Strictures in Inherited EB: a Clinical Practice Guideline now published!
🌍🙏We would like to thank everyone who contributed to this work, especially @debraireland who funded the CPG.
👉🏽 Download free here: https://t.co/xBsO0duFBj
We're so glad you shared this brilliant work at the #RareResearch25 Conference! A great example of progress and hope for #EBcare and #EBresearch in #RareSkin disease. Thank you for joining us and for everything you contribute to advancing rare disease research!
Debra's Head of Research @SSineadHickey and Registry Coordinator @cuttyla from @SkinRegs at the @rare_trial Conference. Where they presented on the #EBregistry - a vital resource for driving progress in #EBcare and #EBresearch.
#RDCTN @hrbireland @HRCIreland
Debra's Head of Research @SSineadHickey and Registry Coordinator @cuttyla from @SkinRegs at the @rare_trial Conference. Where they presented on the #EBregistry - a vital resource for driving progress in #EBcare and #EBresearch.
#RDCTN @hrbireland @HRCIreland
Members of our Research and Family support team had the opportunity to attend the #EBClinet Conference 2024.🦋
They connected with others in the #EB field and gained insights into #EBCare and #EBResearch.
👉https://t.co/9BWtolWGVD
#HealthResearchMatters #EpidermolysisBullosa
Do you have epidermolysis bullosa (#EB)? I'm researching people's experiences with medications they use to manage EB & I'd love to hear from you. Email me at [email protected] to find out more. Thank you!
@CharityDEBRA @denitzawilliams #epidermolysisbullosa #EBCare #EBResearch
Members of our Research and Family support team had the opportunity to attend the #EBClinet Conference 2024.🦋
They connected with others in the #EB field and gained insights into #EBCare and #EBResearch🌍🧬
#EBCommunity #HealthResearchMatters #EpidermolysisBullosa
EBCare หน้ากากอัจฉริยะ ตรวจโรคทางเดินหายใจแบบเรียลไทม์
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อ่านข่าวเพิ่มเติมที่ : https://t.co/RozFrVba2m
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#หน้ากากอนามัย
#หน้ากากอนามัยอัจฉริยะ
#EBCare
#การแพทย์
#โรคทางเดินหายใจ
#SmartLife
🚨LAST CHANCE!🚨
The EB Butterfly Review survey closes this Friday, Sept 27th! Help improve EB care in Ireland & you could win €500!💵
If you're part of the EB community, don’t miss out!
Take the survey👉email: [email protected]
#EBButterflyReview #YourVoiceMatters #EBCare
🚨Reminder!!🚨
The EB Butterfly Review survey is STILL OPEN!🦋
Help improve EB care in Ireland and you could WIN €500!💵If you're part of the EB community, don’t miss this opportunity!
Take the survey👉email: [email protected]
#EBButterflyReview #YourVoiceMatters #EBCare
🚨Reminder!!🚨
The EB Butterfly Review survey is OPEN.🦋
Help improve EB care in Ireland & you could WIN €500! 💵
If you're part of the EB community, don't miss your chance to take the survey 👉 email: [email protected]
#EBButterflyReview #YourVoiceMatters #EBCare
We're thrilled to welcome Dr. Jessica Gale, the new EB specialist @stjamesdublin. Dr Gayle fills a crucial gap in care for adults with EB, especially young people transitioning from children's services. We’re really looking forward to working closely with Jessica. #EBcare
🚀 The EB Butterfly Review survey is now LIVE! 🎉
Your input is crucial to improving EB care in Ireland, and you could WIN €500! 💵 🌟
If you are part of the EB community take our survey today.
👉email: [email protected]
#EBButterflyReview #YourVoiceMatters #EBCare
🚨 Exciting news! We're launching The EB Butterfly Review survey soon! Your feedback is crucial for improving EB care in Ireland. Plus, you could win €500! 💵 Stay tuned for the survey link!🙌
Learn more: https://t.co/MxUFiEGStv
#EBButterflyReview #YourVoiceMatters #EBCare
For the third year in a row, we're asking #Government to prioritise #EBcare.
"EB has shaped our whole lives because it's still in control." Liz, mum to Claudia.
Debra is calling for €600,000 for a nurse-led home care package. #prebudgetsubmission
https://t.co/heOcvZK1RI
In 2022, our support team made almost 500 support calls and nearly 60 home visits to EB patients.
As well as that meetings re housing and school issues, outreach nursing help and assisting families to secure medical cards were held on families' behalf.
#ButterflySkin #EBCare
Our EB Expert Panel includes those affected by EB, & their input is essential in decision-making for care, advocacy & research.
Their bravery & resilience in the face of adversity is inspiring. Thank you to all who came & for their dedication to improving #EBcare💙
Physiotherapy promoting activity & exercise working multiprofessionally huge contribution in management of chronic pain @thecsp @KMiddletonCSP @WCPT1951 @ekstokes @DrSportSante @PeteOSullivanPT @AGreenCovPhysio @NHSEngland Simon Stevens #EBcare Save £€$ & improve quality of care
Doctors around the country will be re-trained to prescribe exercise rather than medication to the millions of Aussies suffering from chronic pain, with experts hoping the strategy will be the answer to Australia’s opioid addiction. #9Today
Plus vital to #InternationalWomensDay2018 - @CHEOhospital nurses who give #ebcare high quality care for sick kids & their families every day https://t.co/9olHNJ0R1t
Meet some of the amazing women at #CHEO. Thanks for inspiring, leading and caring in everything you do, across our entire organization #InternationalWomensDay #IWD2018 #SHEO https://t.co/GytebFST7e
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