Top Tweets for #EBResearch
Nagoya signed Eddie Vedder poster by @oliverbarrett for @EBResearch @eddievedder #Nagoya #Japan #Poster #EddieVedder #EBResearch
Eddie Vedder turns solo vulnerability into a powerful plea in Netflix’s ‘Matter of Time’ @eddievedder @EBResearch @seattletimes @netflix @NetflixPL #MatterOfTime #EBResearch https://t.co/JFkh3BiNbK
Eddie Vedder and his wife, Jill, have become involved in the fight to find a cure for a rare genetic disease. If you're going to use your popularity for good, this is how you do it. @eddievedder @EBResearch #MatterOfTime #EddieVedder #EBResearch
https://t.co/PlEn3R85EA
UNITED: From Sydney to Seattle, EB families led the way. 🦋
We were proud to stand with them and grateful to the @gwsgiants, @padres, @mariners & every fan whose support lifts families across oceans. 💙
#HealEB #EBResearch #RareDisease
What started as a playful fan nickname is now an official West Coast rivalry, and it’s bigger than baseball.
⚾ Round 2 is coming up Aug 25–27 at T-Mobile Park.
Learn more → https://t.co/gVCPlt8iGC
#VedderCup #EBResearch @Mariners @Padres @MLB
HAPPENING: Patients, partners, and advocates joined us to ring the Opening Bell at the @NYSE yesterday.
From Wall Street to every home impacted by EB, this moment shines a spotlight on the urgent need for research and the unstoppable hope for cures. 💙🦋
#EBResearch #VentureIntoCures
“Really all we can do is speak out.” — Shane DiGiovanna 🗣
July’s powerful Town Hall on rare disease advocacy is now on YouTube. 🎥
Don’t miss Shane + Rep. Landsman’s moving conversation.
📺 Watch: https://t.co/FVfEX1E2hJ
🗓 Next: Aug 19 — Get EB Active
#HealEB #EBResearch #RareDisease
Courage met care on the red carpet.
10-year-old Rowan walked alongside her doctor, Dr. Jamie Feinstein—reminding us how close we are to a cure, and why we can't stop now.
🦋 https://t.co/BnvHU7bhOc
#HealEB #MatterOfTimeFilm #EBResearch
Brooklyn was born with junctional EB. Her journey hasn’t been easy—but her strength is undeniable.
“She’s a warrior,” says her mom, Morgan. “And I’ve learned I am too.” 💗
Support EB research and help fund a cure: https://t.co/CzZhJdegwn
#EBResearch #HealEB
865 voices. 55 countries. 1 global roadmap for EB research, shaped by patients, families & care teams.
Swipe through to see the top priorities of those who live with EB
🦋 Donate at https://t.co/j33cb7RNC7
#EBResearch
We’re proud to share our 2025 Research Report — showing how your support is driving #EBresearch that brings real hope, improves lives, and ensures the voice of the #EB community is at the heart of the research process.
🔗Read here: https://t.co/LVOSfw2yjE
#HealthResearchMatters
You did this, Graham’s Gang! 💙 $61,355.35 is going to EB research because of you! Thank you for believing in a cure. Let’s keep going! Donate at https://t.co/9l1JcCOybC
#GratefulForGraham #EBResearch
We hit our $250K match! 💙 Thanks to Dr. Jeff Heddles' incredible generosity, and every supporter who showed up, we're one step closer to curing EB. Let’s keep going. Donate now: https://t.co/tYJOnWhSnP
#HealEB #EBResearch
2,355 miles in 32 days, he made it to the Continental Divide. 💪 After biking cross-country to raise awareness for those with EB, Rich Parnell has raised $11,577.05 of his $20K goal. Help him go the distance: donate now at https://t.co/JoQM7PTok5 💙🦋 #HealEB #EBResearch
From film to FDA approval 🎬
At the Matter of Time Tribeca panel, Dr. Jean Tang shared that Stanford’s gene therapy for recessive dystrophic EB is now FDA approved, a breakthrough powered by patients & donors. 🦋
Help us keep going: https://t.co/T4MeCO1T7z
#HealEB #EBResearch
If you or a loved one lives with #epidermolysisbullosa in Ireland, joining the #EBRegistry is a powerful way to support #EBresearch and advance #EBcare.
Learn more👉https://t.co/mjIQ3Bmgz1
@SkinRegs @cuttyla #EB #registries #HealthResearchMatters
In 2024, the global #epidermolysisbullosa community spoke — and now we have the top #EBresearch priorities, chosen by the #EBcommunity, for the #EBcommunity. @CharityDEBRA
📝Read the report 👉https://t.co/veC46NvD0b
👇See the top topics from both #livedexperience & #HCPs:
We’re excited to share the final reports on the #EB Priority Setting Partnership (#PSP) — a global effort to identify what matters most in #EBresearch, shaped by people living with EB, families & clinicians.
👉https://t.co/veC46NvD0b
#HealthResearchMatters #JLA @CharityDEBRA
Matt Finlin & Karen Barzilay on “Matter Of Time,” Tribeca, Eddie Vedder, Broken Social Scene & EB @eddievedder @EBResearch #EddieVedder #EBResearch #MatterOfTime #TribecaFilm https://t.co/zII1LmYfLY
Last Seen Hashtags on Sotwe
momson()* filter:videos
Seen from Germany
techHr18
Seen from United States
lives
Seen from United Kingdom
นัดเย็ดอ่อนนุช
Seen from Thailand
นัดเย็ดจันทบุรี
Seen from Thailand
自慰
Seen from Germany
pawsocks
Seen from United States
pushto
Seen from United Arab Emirates
incestkink
Seen from India
GamingTattoos
Seen from United States
Most Popular Users
Elon Musk 
@elonmusk
240.7M followers
Barack Obama
@barackobama
119.2M followers
Donald J. Trump
@realdonaldtrump
111.7M followers
Cristiano Ronaldo
@cristiano
110.7M followers
Narendra Modi
@narendramodi
107M followers
Rihanna
@rihanna
97.7M followers
NASA
@nasa
92.2M followers
Justin Bieber
@justinbieber
90.9M followers
KATY PERRY
@katyperry
87.7M followers
Taylor Swift
@taylorswift13
81.6M followers
Lady Gaga
@ladygaga
73.1M followers
Virat Kohli
@imvkohli
70M followers
Kim Kardashian
@kimkardashian
69.8M followers
YouTube
@youtube
68.7M followers
Bill Gates
@billgates
63.9M followers
Neymar Jr
@neymarjr
62.7M followers
The Ellen Show
@theellenshow
62.4M followers
CNN
@cnn
61.9M followers
X
@x
60.8M followers
Selena Gomez
@selenagomez
60.8M followers