Top Tweets for #EBWC2020
Did you know the first Global Congress on EB was organised by an ALL-FEMALE core team?!
๐๐ผ๐ฉ๐ป๐ฉ๐พโ๐ผ๐ง๐ผโ๐ฆฐ๐ฉ๐ฝโ๐ป๐ฉ๐ปโ๐ฆณ๐ฉ๐ปโโ๏ธ๐ฉ๐พโ๐ฆฑ๐ฉ๐ผโ๐ซ๐๐ฝ
#EBWC2020 #InternationalWomensDay #WomensDay2020 #equalityforall #womenempowerment #womeninscience
Did you capture any photos at the 1st Global Congress on EB? We want to see EBWC 2020 through your eyes! Be sure to continue using #EBWC2020 when sharing, or feel free to post your pictures in a comment below! ๐ฆ๐ธ
Nice opportunity to visit St Thomas' Hospital with Su Lwin during the #EBWC2020 and also to meet some collaborators from @ViapathUK all of them participants at the Spanish clinical trial #MesensistemEB for #RDEB based on the use of #MesenchymalCells. #EBresearch @BioInn_CIEMAT
Thank you for sharing your expertise with us at #EBWC2020, @nic_schrader!
This ground-breaking meeting brought together all global knowledge in EB research, clinical management, and the EB Community.
@ebworldcongress
Thank you to everyone who attended the 1st @ebworldcongress this week!
Over 700 delegates from researchers, medical professionals, healthcare and the EB Community from 50 countries met to discuss how we can strive forward to find a cure.
Together we can do more. #EBWC2020
Awareness of EB is growing which means researchers are making EB a priority. We met many passionate researchers @ebworldcongress determined to cure EB. More importantly we heard from EB patients asking us to keep fighting for them
#CureEB #EBWC2020 #healthresearchmatters
Such an important question. Sounds like important conversations were had at @ebworldcongress.
#EBWC2020 #HealthResearchMatters
How do you emotionally support a patient who is part of a clinical trial if the treatment they're receiving doesn't work?
Psycho social support is a vital part of clinical trials and life with EB in general
@ebworldcongress #EBWC2020 #healthresearchmatters #cureEB
It's been a busy day, my body is aching but nothing beats making your team proud ๐ฅฐโค ps, met @mrdavidhaye ๐คฉ๐ so worth it ๐ #EBWC2020 you've been a pleasure, until next time ๐
Wonderful week at #EBWC2020 finishing with speaking on patient parent perspectives of participating in clinical trials with Lena Reidl. Thank you to @CharityDEBRA for organising and running it so well and for inviting us to be partners. Lots of momentum towards treatments! ๐ฆ
็ฌฌไธๅEB World Congressใ
ใพใใชใใใฃใใผใฌโฃ๏ธ
ๅคงไผไผ้ทใฎUffitoๆๆใจใ็ไบๅ
ไบบๅ
็ใจใใใใใจใใ็ด ๆดใใใๆ้ใงใใใๆฅๆฌใซใใใใใฎใใจใๆใกๅธฐใใพใใ
๏ผEBWC2020
Look who stopped by today! #EBWC2020
We've really enjoyed meeting everyone at the first @ebworldcongress ๐ฆ
Thank you to everyone that has signed our pledge to #FightEB
#StrongerTogether #ConvaTec #EB2020 #EBWC2020
Great to be invited to @BaxterStoreyIre @debraireland event last night @ArnottsDublin
for such an amazing cause! Well done to all involved ๐๐@chefgavinmcd #eb #articchallenge ๐ฆ๐#EBWC2020 ๐@jimmyfearon ๐ฆ#healthresearchmatters #cureEB
Proudly representing ๐ฎ๐ชIreland๐ฎ๐ช and our EB families at @ebworldcongress in London - our CEO Jimmy Fearon and Head of Research Sinead @ssineadhickey ๐ฆ๐#EBWC2020 ๐๐ฆ#healthresearchmatters #cureEB
How do you emotionally support a patient who is part of a clinical trial if the treatment they're receiving doesn't work?
Psycho social support is a vital part of clinical trials and life with EB in general
@ebworldcongress #EBWC2020 #healthresearchmatters #cureEB
Groundbreaking gene therapy research into treatments for EB is happening worldwide but we need to remember it takes ten years to bring a drug to market. More investment is still needed @ebworldcongress #EBWC2020 #healthresearchmatters #cureEB
SFU News vom EB World Congress 2020 @ebworldcongress in #London! ๐ #EBWC2020 #EB
https://t.co/mAShttQRHl
We are back for our final day, Community Day! We will be discussing A global approach to EB, Updates in EB research, Current dilemmas, Living with EB, Updates in clinical care and finally an EB Community open forum! Be sure to tune in for a live stream this morning ๐ฆ๐#EBWC2020
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