EBWorldCongress

Join us for the 1st Global Congress on Epidermolysis Bullosa in London 19-23 January 2020. Registration now open. #EB2020 or #EBWorldCongress to get involved.

[World Health Organization (WHO) @WHO]

Media briefing on #COVID19 with @DrTedros. #coronavirus https://t.co/gnY5tw6pVX

[DEBRA UK @CharityDEBRA]

We have now added FAQs to our online Coronavirus (COVID-19) support section for people living with EB, covering topics raised by members. We'd love to hear of tips from the EB community to help others living with EB, please share your experience and tips! https://t.co/KA2VZ7P6es

[EBWorldCongress @ebworldcongress]

$75M Funding to Advance Gene Therapy for RDEB Entering Phase 3 Trial https://t.co/PghPtF9NHF

[DEBRA International @InterDEBRA]

Informations et recommandations pour la communauté EB sur le virus COVID-19. La brochure informative est maintenant disponible en français 🇫🇷! Merci à @DEBRACanada et à @DebraFrance de nous avoir aidé à fournir la traduction française de la brochure! https://t.co/W7fsHiQALo

[InMed Pharmaceuticals @inmedpharma]

InMed Pharmaceuticals today announced that all subjects participating in its 755-101-HV Phase 1 clinical trial have completed treatment and clinical evaluation.

Read more: https://t.co/1P2aWqBko6

#Phase1 #clinicaltrial #epidermolysisbullosa #CBN #cannabinol #rarecannabinoid

[EBWorldCongress @ebworldcongress]

Well done @AuthorLucyBeall!! 👏

[DEBRA UK @CharityDEBRA]

Grab a cuppa and take a seat, the amazing @AuthorLucyBeall spoke to @domholland and @HarryHolland99 from @Tbrotherstrust!

We are so honoured to have Lucy as one of our many fantastic ambassadors 💜

Watch now! ⬇️ https://t.co/rzpK1G211w

[EBWorldCongress @ebworldcongress]

“InMed Pharmaceuticals does not expect that the COVID-19 pandemic to significantly affect data collection in its Phase 1 trial testing INM-755, a potential epidermolysis bullosa (EB) treatment, in healthy volunteers.”
https://t.co/oliiJ2tBMJ

[InMed Pharmaceuticals @inmedpharma]

InMed announces the filing of a Clinical Trial Application ("CTA") in the Netherlands to initiate a second Phase 1 human clinical trial for INM-755 in healthy volunteers. https://t.co/F5vpFKeLvl

#INM755 #clinicaltrial #epidermolysisbullosa #cannabinol #CBN #rarecannabinoids

[Flen Health @FlenHealth]

Anxiety & stress are expressed in many ways these days. We would like to encourage you to keep talking & taking care of each other. Even if we need to avoid physical contact to prevent #COVID19 we can still be kind!👐👋🙏 #bekind #TogetherStronger @tvn2gether #coronavirus

[EBWorldCongress @ebworldcongress]

Amazing news!! 😄🦋

[AbeonaBio @AbeonaBio]

Today, we announced that the first patient has been treated in the pivotal phase 3 VIITAL study evaluating our #genetherapy for #RDEB. Learn more: https://t.co/9SARyu2fd4

[EWMA @EWMAwound]

UPDATE: #EWMA2020 RESCHEDULED! In light of the #COVID19 situation & with the #health of the global community as main priority, we have decided to reschedule the #EWMA2020 Conference to 18-20 Nov 2020. Thank you for your understanding & support.
Read more➡️ https://t.co/VroVUn7jTC

[EBWorldCongress @ebworldcongress]

“Children comprise half of the people affected by rare diseases.” 🦋 https://t.co/tYOsNY27Lf

[InMed Pharmaceuticals @inmedpharma]

InMed Pharmaceuticals today reported completed enrollment in its first Phase 1 clinical trial with INM-755 in healthy subjects (Study 755-101-HV).

https://t.co/I2YVpBNVx7

#epidermolysisbullosa #EBnews #cannabinol #CBN #cannabinoids #pharma #clinicaltrial

[EBWorldCongress @ebworldcongress]

Did you know the first Global Congress on EB was organised by an ALL-FEMALE core team?!
🙌🏼👩🏻👩🏾‍💼🧑🏼‍🦰👩🏽‍💻👩🏻‍🦳👩🏻‍⚕️👩🏾‍🦱👩🏼‍🏫👏🏽
#EBWC2020 #InternationalWomensDay #WomensDay2020 #equalityforall #womenempowerment #womeninscience

[EBWorldCongress @ebworldcongress]

“Chapters from notable scientific books and clinical review articles covering rare disorders will be available free-of-charge from Elsevier.” https://t.co/Vd6th0gIDz

[DEBRA International @InterDEBRA]

Save the date! We are very excited to announce that the 2021 DEBRA International Congress hosted by @debrarussia will take place in Moscow from 16 to 19 September 2021. https://t.co/VhOi1gf5kS

[EBWorldCongress @ebworldcongress]

Well done @DermaKIDSeV for helping raise EB awareness on #RareDiseaseDay!! Is your organisation taking part in Rare Disease Day? Be sure to comment below or tag us in a post! #epidermolysisbullosa

[EBWorldCongress @ebworldcongress]

Did you know tomorrow is Rare Disease Day? Help raise EB awareness by sharing your photos and stories about EB through the link below! 🦋

https://t.co/geGT2OyABp

#RareDiseaseDay #EpidermolysisBullosa

[EBWorldCongress @ebworldcongress]

Have you read our latest blog? Click below to discover how one mother’s journey caring for her daughter living with EB inspired her to create an EB organisation in Egypt. 🦋

https://t.co/nfe2bqx7fz

[EBWorldCongress @ebworldcongress]

Did you have a great time at the Congress? Were you unhappy with something at the event? We value your constructive feedback, and will use it to help plan future events.

Survey closes Saturday, 29 February!

https://t.co/u5VU3g0fOe