Top Tweets for #EDSAware
Ed’s seen our latest TV ad, so now he knows that we regulate all ads, whether you love them, or hate them.
#EdsAware https://t.co/jkTHO9vQsP
The good ole W sit that I found in this pic yesterday. #eds #edsawareness #edsaware #ehlersdanlossyndrome
Had my #Hickmanline fitted today ready for chemo tomorrow. Was a breath of fresh air having a doctor perform it, that was aware of EDS & its affects. He made sure I had extra local anaesthetic & stitches but most importantly he talked to me! #EhlersDanlosSyndrome #EDSAware
@ZebraOrphans TBC I'm not criticising DrK or rheumatologists. It's that what we need is integrated multidisciplinary teams in every locality. #EDSaware
@bettyflorence23 @EDSAmanda @MattHancock @DHSCgovuk @NHSEngland @uclh @RNOHnhs @ehlersdanlosuk @BrineMinister @GavinWilliamson @HWStaffordshire @sessp_ccg But please don't blame individual doctors for the system. Rheumatologists are scared to be known as #EDSaware as they'll be deluged.
@BritishPainSoc It seems some say all diagnostic work must happen elsewhere, but some areas have so few #EDSaware doctors, folk and up at pain clinic.
💜✨🥄💜 #Repost @chronic_photographer
・・・
Fact: did you know that even a slight curve can cause pain? June is scoliosis awareness month, bring your green out!💚 #scoliosis #scoliosisawareness #green #ehlersdanlossyndrome #edsawareness #hEDS #edsaware… https://t.co/UHq8pRv9xQ
Thank you! #EDS #midwives @RCObsGyn @MidwivesRCM
#EDSaware care saves lives. https://t.co/QDXn3CUoDd
Two things I care about enormously #safebirth and awareness of and appropriate care for those with #EhlersDanlosSyndrome thank you so much @SallyPezaro @DrEReinhold and @GemmaSPearce this @BJMidwifery article is so important @ehlersdanlosuk https://t.co/RScsIC5FWf
@optimalclamping @midwife_lawyer @SallyPezaro @BJMidwifery @GemmaSPearce @WeMidwives @ehlersdanlosuk @HMSACharity @TheEDSociety @smithgillianbl @dunkleybent @FrankaCadee @SagefemmeSB @hannahdahlen @Yanarichens @Sanctummid @CovUniLecturers @Humanisingbirth It's great that you are #EDSaware ! So much still to learn, even for us so-called experts...
@jmcefalas @MellyHopper @ehlersdanlosuk Complex interactions between these 2 and much misdiagnosis. Glad you are getting good care with experts who are #EDSaware
Eyeballs fine, eye muscles screwed. Oh well. Been there done that, got the blindy tshirt. #EDSaware
Opticians today. See what my bendy eyeballs are up to #edsaware
Hate my body! Why can't you upgrade like you can with phones? Just want one that is pain free not bothered what it looks like! #EDSaware
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