Top Tweets for #EDSProblems
Nothin like starting the day off with a nose bleed π« #edsproblems
Gettin my humidifier goin now π¦
Kaitlin Bennett has my dream job but Iβm disabled & canβt be around these nut jobs bc they love violence too much & I tore my meniscus sitting down π
#EDSproblems
No Kings Protestors went absolutely NUTS in Orlando π€¦ββοΈ
I do not think my right shoulder is in its assigned seat. How do I get it to go back?
#EDSproblems
Mr. Wee has complete his mission of obtaining a repaired pacemaker atrial lead and he liked it so much he bought a new Biotronik pacemaker generator too.
#EhlersDanlosShoppingSpree
#EDSproblems
Our fiance(s) massaged our shoulders last night & pushed in on a spot that's been hurting us for a year. (massive shoulder pain, low mobility/ROM) We felt/heard a huge grinding pop with sharp pain then instant relief & tingling feeling down our arm. It was SUBLUXED! #edsproblems
Just sitting on my recliner minding my own business and my foot falls asleep. I look down and realize I'm more twisted up than a pretzel π€£ #EDSproblems
@LilithFairYYC Agreed. But also, I sit down and my knees pop out sometimes and I have to pop them back in. So if you ever see me doing it, itβs my normal π€£π€£π€£ #EDSproblems
#EDSlife fell in the garden yesterday, twisted my ankle and landed on my hands and knees. Today they are fine, my tailbone however hurts like crazy and I don't even understand why, like dude I didn't even touch you, why you mad? #EDS #DisabilityTwitter #EDSProblems #Spoonie
@AHinkle628 I often wonder how much better I would feel if I were perfusing my brain. #Dysautonomia #EDSproblems
TW/CW: dentist
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Going to the dentist this morning. Been dreading it. #EDSproblems
Wish me luck! π¦· πͺ₯
@BluesteinLinda If someone could tell me how to fix my throat so I can stop choking on my own spit out of nowhere, that would be fantastic. #EDSproblems (Not even going to get into swallowing food, that feels like too much to ask!)
They wouldn't approve my second surgery until 12 months post-op. I've been on the waitlist for 8 months (with no surgery date in sight). Now I'm finding out my broken ankle from summer didn't heal right so another surgery. Now accepting nicknames ππ» #EDSproblems
@DiaryofaSickGrl I had a hip replacement surgery in 2020 and woke up 4 times during the surgery! #EDSproblems
I just realized I am NOT giving a normal thumbs up here π€£ #edsproblems
Coughing fits should not cause an intense need for kneecap adjustment.
#EDSProblems
I have now been introduced to the idea of using yoga blocks to limit how far my body gets to move.
This seems brilliant.
This yoga person might have helpful things.
I will update if I actually manage to try it, if there is interest.
#EDSProblems
(3/3)
Things heard in our house:
(I asked him to assess muscles/soft tissue ick. Context seemed particularly important.)
"That is Bad Meat. That meat is so bad that if it was in the fridge I would throw it out."
#EDSProblems
Fellow EDSers: do you ever wake up with strained muscles & have no idea why? Like, all the muscles up the back of my right thigh feel like I tried to run a marathon yesterday, but my left leg is totally normal (well...my normal, lol).
Wtf, body??
#EDSLife
#EDSProblems
What a day I had yesterday, I have pneumonia, no one wants me in hospital so I opted to stay home & get an ambulance if anything worsens. I'm on the right meds & biBAP. Today breathing is a bit less painful. So eyes crossed, as my fingers dislocate if I cross them. #EDSProblems
I was 17yo when I found out that sneezing is something that most ppl do NOT find extremely painful and that does NOT cause most ppl to bleed from the upper back of their throat π
#EDSLife #EDSProblems #ChronicLife
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