Top Tweets for #EDSZebra
I feel like an actual zebra in the car when someone else is driving. Neck just flyin everywhere!
#EDSzebra
I’m so sorry I’ve been very quiet. I’m just dealing with some irl stuff and it’s really frustrating because I feel like I’m letting you all down. Anyways I hope everyone is doing okay and miss you all #MayDay #KickStreaming @kick @KickHelpers #edszebra #eSports
#NewProfilePic I’m back squad and miss my peeps. #streamergirl #twitch #KickStreaming #edszebra #sa29squad 💜🔥🇬🇧
✨ I wish i could use Max Revive on myself and others who suffer with Chronic diseases or mental diseases ❤️🩹 ❤️🩹 ❤️🩹 ❤️🩹 ❤️🩹 ❤️🩹 ❤️🩹 ❤️🩹 ❤️🩹 ❤️🩹
#maxrevive #PokemonGOfriends #chronicillness #mentalillness #noshame #everybodymatters #Warriors #pokemoncommunity
Been another crazy day. Now run out of time for crochet though tonight as I’m off to bed! 🧚♀️ Happy Midweek Madeness 👩💻 #midweekmadness #iosdev #iosdevelopment #iosdeveloper #swiftui #100daysofcode #sewing #sewist #nerdgirl #codergirl #devlife #edsawareness #edszebra
We love it when Occupational Therapists tell us what they really think about EazyHold! #MyHSDChallenge #MyEDSChallenge #EDS #HSD #ehlersdanlos #jointhypermobility #hypermobile #hypermobility #chronicpain #perisistentpain #ehlersdanlossyndrome #edszebra #zebrastrong #finemotor
May is Ehlers-Danlos Syndrome awareness month. I’ll be posting information on the syndrome along with my journey and my treatments so far. 💗 🦓 #edsawarenessmonth #ehlersdanlossyndrome #edszebra #eds #potssyndrome #mcas
I Am What Ehlers-Danlos Syndrome Looks Like | The Mighty https://t.co/2gUa1uYxUJ
#EhlersDanlosSyndrome #EDSZebra #EarningMyStripes
Ahem, just an example of Nicola's work with my boudoir photoshoot! Book her, and subscribe to my onlyfans while you're at it!! She's fucking epic!!
#Onlyfans #onlyfangirl #hiddendisabilities #edszebra #EhlersDanlosSyndrome #professionalphotoshoot #bodypositivity #boudoir
Tomorrow's the last day of my Black Friday sale!
Take a peek at my #photography packages and book a session today to secure your discount!
Nicola Auckland Photography https://t.co/JsmQyQSv7R
#gift #giftideas #Christmas #Grantham #Lincolnshire #photoshoot #sale #ideas #family
Our members @AJsChallenge works to help raise awareness for and support people with #vascular #EDS. Give them a follow to find out more of the amazing stuff they do.
#EDS #EDSzebra #EhlersDanlosSyndrome #vEDS #Rare #RareCondition #FollowFriday #FF
So I’ll leave this open-ended. The uncertainty is one of the worst parts of this. Hopefully I’ll be updating again in a few weeks with a better understanding of what day-to-day life looks like for me.
#EhlersDanlosSyndrome
#EDSZebra
#POTS #MCAD #hypermobility
#hEDS
So now how do we balance ‘listening to our body & its pain’ with pushing through the pain or becoming completely inactive? #stillConfused #painBafflesMe #EDSZebra @TheEDSociety
Q. If the nervous system can learn to be over protective can it also learn to be under protective?
Loz: Absolutely yes, if the system doesn't keep your tissues safe its being under protective. The majority of stress fractures should hurt before they do.
#LEPUBHB
I DO MY HAIR TOSS
CHECK MY NAILS
BABY HOW YOU FEELIN’?
FEELIN ᵒᵛᵉʳʷʰᵉˡᵐᵉᵈ
#EhlersDanlosSyndrome #EDS #EDSzebra #edsawareness #spoonie #chronicillness #chronicpain #invisibleillness #Chiari #MCAD #POTS #spoonieproblems #Epilepsy #mastcellactivation #lizzo #GoodAsHell
And the other side, which I had no idea about until I bought it, is zebra print which is perfect for the Ehlers Danlos zebra that dazzles inside of me #EDSzebra #lovethyzebra #zebraprint #EhlersDanlosSyndrome #EhlersDanlos #cushion #homeware #zebracushion
If I was a rich girl
Na-na-na-na-na-na-na-na-na-na-na-na
Then I'd spend all the money in the world
To become a healthy gi-i-i-irl
#EhlersDanlosSyndrome #EDS #EDSzebra #spoonie #chronicillness #chronicpain #invisibleillness #Chiari #MCAD #POTS #spoonieproblems #pain #GwenStefani
For those of you who haven’t heard, Sia has so bravely named Ehlers Danlos as one of her diagnoses in this tweet. This is a huge win for us! Keep spreading the word!!
#EhlersDanlosSyndrome #EDS #EDSzebra #edsawareness #chronicillness #chronicpain #invisibleillness #pain #chiari
Thank you so much for coming out with your diagnosis. Because of this tweet alone, thousands of people who have never heard of EDS now have 💜🦓
To all my zebras out there, keep spreading awareness and fighting the good fight. Big things are coming for us!
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