Top Tweets for #EDSmaternity
It's absolutely fabulous that our @hEDStogether work on #EDSmaternity is being used to help develop some much needed guidance @TheEDSociety consortium.
Check out https://t.co/bmH09nWi4A for more info on the different research projects & tools we have created π
Pregnancy, Childbirth, and Postnatal Care in EDS and HSD. @TheEDSociety is supporting a team of international experts, led by Dr. @SallyPezaro who are producing much-needed guidelines in this area. 1/2
Great to finally see the @hEDStogether video infomercial on maternity care for hEDS/HSD being released here! https://t.co/5FTKbm3nB7
This was filmed during my internship @hEDStogether & it was such a pleasure to help organise it! Congrats to the @hEDStogether team! #EDSmaternity
Check out our NEW infomercial on Hypermobile EDS & HSD!
https://t.co/UkkOED0lWC
This was co-created by lots of fabulous people with a range of experience and expertise. https://t.co/lRMgTOouSq
@GemmaSPearce @SallyPezaro @Paul_CIH #EDSmaternity #Pregnancy #maternity
Please share this great resource from @hEDStogether.
Some of our volunteer team are hypermobile and they said this would have really helped them during their labour and births. Brilliant resource!
#edsmaternity #pelvicgirdlepain #pelvicgirdlepainmatters #pgpistreatable
Check out our NEW infomercial on Hypermobile EDS & HSD!
https://t.co/UkkOED0lWC
This was co-created by lots of fabulous people with a range of experience and expertise. https://t.co/lRMgTOouSq
@GemmaSPearce @SallyPezaro @Paul_CIH #EDSmaternity #Pregnancy #maternity
Check out our NEW infomercial on Hypermobile EDS & HSD!
https://t.co/UkkOED0lWC
This was co-created by lots of fabulous people with a range of experience and expertise. https://t.co/lRMgTOouSq
@GemmaSPearce @SallyPezaro @Paul_CIH #EDSmaternity #Pregnancy #maternity
@SallyPezaro showcasing the importance of our #EDSmaternity research for International Women's Day #IWD2022
From their work within our @CovUniResearch centres, to their educational and artistic achievements, women at Coventry University take action. Find out how some of our pioneering women are using their platforms to do amazing things π #IWD2022 #BreakTheBias
https://t.co/leWKRCcFBJ
Poster added to website resources! Presented @TheEDSociety conference on our #EDSmaternity interview research. It's a useful visual representation of what we did and found on one colourful page π
https://t.co/eebrMMMQKS
@GemmaSPearce @SallyPezaro @DrEReinhold
NEW! "A clinical update on hypermobile Ehlers-Danlos syndrome during pregnancy, birth and beyond" @SallyPezaro @GemmaSPearce @DrEReinhold https://t.co/7iQhYNXqmR
The free maternity tool referred to in the @BJMidwifery abstract can be downloaded from our website. This was co-created to support conversations between perinatal staff & those who are pregnant to go in pregnancy notes π #hEDS #HSD #EDSMATERNITY https://t.co/lRMgTOouSq
@ndmedstudent @SallyPezaro has written a fab blog with 10 top tips for maternity staff caring for people with hEDS & HSD https://t.co/YhRAjbcDrj
#EhlersDanlosSyndrome #Hypermobility #EDSmaternity @GemmaSPearce @DrEReinhold
@ndmedstudent Thanks for this thread on the #EDSmaternity paper @hEDStogether
We listened to language feedback & launched a new research project on how transpregnancy can be better supported. π π https://t.co/HZMPYpXeou
@SallyPezaro @abonnieday @DrAdamJowett @godfrey_isaacs @KongadiSahana
Woop! Celebrating the presentation of our research on birthing in the trans community. This was inspired from our #EDSmaternity research @hEDStogether after we received feedback about the need for inclusive language & support needs #whywedoresearch #WeListen #StrongerTogether
Thanks for a fab thread on the #EDSmaternity paper @hEDStogether
We listened to language feedback & launched a new research project on how transpregnancy can be better supported. π π https://t.co/HZMPYpXeou
@SallyPezaro @abonnieday @DrAdamJowett @godfrey_isaacs @KongadiSahana
EDS and pregnancy. Wish the language weren't so gendered, but great article nonetheless. Summary 𧡠for #MedTwitter to follow
Happy anniversary! πππ
A summary of our first #EDSmaternity publication can be found on the #hEDStogether website https://t.co/ovi0o62334
alongside @SallyPezaro's fantastic blog about our journey so far https://t.co/brbVkEaMyc
@GemmaSPearce @DrEReinhold
In April 3 years ago, we published our 1st #EDSmaternity paper on childbearing for people with hEDS & HSD. With huge demand, the journal made it freely accessible to all & we won an award for making a REAL difference @SallyPezaro @GemmaSPearce @DrEReinhold https://t.co/r8fxKr0p42
Woop! Celebrating the presentation of our research on birthing in the trans community. This was inspired from our #EDSmaternity research @hEDStogether after we received feedback about the need for inclusive language & support needs #whywedoresearch #WeListen #StrongerTogether
First topic of the day at the @BJMidwifery conference! Exploring the educational needs of staff in caring for those birthing in the trans community by Dr Sally Pezaro
#BJMConference2021
Congratulations Sally! Great to see you recognised for all the hard work you are doing, including #EDSmaternity research @hEDStogether πππ
CAMC Associate Researcher Dr Sally Pezaro has been awarded a Royal College of Midwives Fellowship for her continued contributions to midwifery research. Read more: https://t.co/cnq1CuAGeU #CovResearch
The @HMSACharity have a bi-annual journal you can get as a member! Me and @GemmaSPearce wrote an exclusive article together for the next issue telling the story of the #EDSmaternity teams research @hEDStogether. Become members to read it and you'll be supporting the charity too!
Here is a sneaky preview of the next HMSA journal!
Everyone who is a paid member of the HMSA Charity, up to and including the 15th November, will receive a copy!
Not a member? Don't worry, there is still time to join.
Details/benefits etc here https://t.co/j8N77ZiBcx
We have now launched @laurenmpurdy's profile page on the website! π
Lauren is an excellent part of the #EDSmaternity research team & did her Masters research on parents of children with hEDS/HSD supervised by @GemmaSPearce....more info coming soon! https://t.co/S9YXAiDk9A
Excellent to see this tool made for shared decision making in maternity has been cocreated using the @CocreateWelfare methods by @GemmaSPearce and the #EDSmaternity team.
Check it out on the @hEDStogether website https://t.co/SveOUtrCA5
If you have hEDS/HSD and are currently pregnant, use this maternity tool to open dialogue with maternity staff! Simple way to have your concerns taken seriously and for you to get any extra support you might need. Tool is free to download on @hEDStogether! https://t.co/2b3hHQDq5A
FREE FULL COPY of publication on people's experiences of pregnancy, birth & beyond with hEDS & HSD https://t.co/ScFsgVGL7L
@SallyPezaro @DrEReinhold @hEDStogether #EDSmaternity #hypermobile #EhlersDanlosSyndrome #Hypermobilityspectrumdisorders
Great blog describing post-partum complications associated with #EDS/#HSD. This is why we advise caution in the use of McRoberts position (when your knees are pushed up towards your body by birth assistants) in #hypermobility
#EDSMaternity @SallyPezaro @GemmaSPearce @SabeehaMalek
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