Top Tweets for #EDSunplugged
Have you read our book yet?
#BrOKen #BrOKenthebook #BrokenbutOK #chronicillness #chronicconditions #EDS #fibromyalgia #autobiography #EDSawarenessmonth #zebras #spoonies #spooniesisters #NEISvoid
#edsunplugged
https://t.co/YRy42s755b
We share our stories of living with #ehlersdanlossyndrome & other conditions. We understand how hard it can be to speak your truth when living with a #chroniccondition
Reviews help us know we are doing the right thing #chronicillness #chronicpain #EDSawarenessmonth #NEISvoid
I'm so blessed to have someone I can laugh with about my crazy, dysfunctional body. Alternative is to just lay here and cry all day and night by myself. Been there, done that.
#laughteristhebestmedicine #EDS #Fibromyalgia #ChronicPain #subluxation #NEISvoid #edsunplugged
Flare ups have no time limit and are different for everyone.
How do you deal with yours?
#edsunplugged #brokenbutok #raynaudssyndrome #chronicillness #authors #triggers #flareups #zebra #livingwitheds #neisvoid
https://t.co/EWis7dRipY
Some people with chronic illnesses have to learn how their body works all over again.
Read all about our experiences in BrOKen.
Head to Amazon now! https://t.co/SXUaUTYBpA
#BrokenbutOK #EDS #edsunplugged #fibromyalgia #raynaudssyndrome #ehlersdanlossyndrome #chronicpain #CFS
When your mind wants to do something, but your body has other ideas π
Read all about our frustrations over the years in BrOKen. Paperback & Kindle https://t.co/SXUaUTYBpA
#BrokenbutOK #edsunplugged
#EDS #ehlersdanlossyndrome #fibromyalgia #chronicillness #invisibledisability
Chronic illness can affect is mentally and emotionally, just as much as physically.
#EDSunplugged #brokenbutok #mentalhealth #authors #amazon #bloggers
#review #bookclub #readergroup #autobiography #fibromyalgia #zebra #EDS #mobility #invisibleconditions
"How are you?"
"Yeah, I'm fine"
Always a lie.
#edsunplugged
Never judge a book by its cover.β
What you SEE is not always a true reflection of what IS.β
You may have no idea of what someone has been through or goes through, so don't judge or assume without knowing the facts. #edsunplugged #BrOKenthebook
#invisibleillness #abuse #trauma
What @Cassandra_a_campbell and @Marcia_brock #edsunplugged have been getting up to during lockdown. Your opinions please!!!!! Vote for your preferred book cover!
Hereβs something we filmed earlier ... pre lockdown.
Corona Creative!
Social distance book writing!
We completely agree that more awareness for #EhlersDanlosSyndrome #eds is needed. International awareness definitely needed. #BendOrBreak #EDSunplugged https://t.co/5yRoN7NNX7
We are a group of young filmmakers who have come together to make a documentary to create awareness about Ehlers Danlos Syndrome or EDS.
@TheEDSociety @EDSawareness1 @EDS_Today @EDSWellnessSol @nyitedscenter @ehlersdanlosuk @Ehlers__Danlos
In #EDSunplugged we (@ConsciousCass) speak about living with #EhlersDanlosSyndrome we would love to see this TedX talk @BendOrBreak2
How we stumbled upon this idea was nothing short of a cosmic coincidence. We attended Mitch Martow's TedX talk, where we learned about the struggles of an EDS patient. We learnt how this chronic illness creates huge, colossal impacts on life of every suffering individual.
20 yrs with no diagnosis.
But I battle through like the #edswarrior & #fibromyalgiawarrior I am, because #chronicillness #itdoesntdefineme
#invisibledisabilitiesweek
#edsunplugged
www.cassandraacampbell/blogs/
https://t.co/LSOodoiLQ7
Me: Back, hip, knee and feet feeling like something hit it with a cricket bat!
However having young people who feel exactly the same every day become confident today means itβs all been worth it. Brilliant impactful day with @ehlersdanlosuk and @ConsciousCass #edsunplugged
Exhausted, brain fog, back pain and aching all over, but worth it after meeting some lovely, courageous young people while delivering the Confidence Building workshop for teens in Exeter with @Marcia_Brock for @ehlersdanlosuk #edsunplugged #eds #chronicillness #confidence
Exhausted, brain fog, back pain and aching all over, but worth it after meeting some lovely, courageous young people while delivering the Confidence Building workshop for teens in Exeter with @Marcia_Brock for @ehlersdanlosuk #edsunplugged #eds #chronicillness #confidence
We're looking forward to meeting and supporting young EDS-ers in Exeter this weekend with our confidence building workshop π @Marcia_Brock #edsunplugged #eds #EhlersDanlosSyndrome #invisibleillness #chronicillness #chroniccondition #support #safespace #confidence
Getting ready for the @ehlersdanlosuk teens workshop this weekend with @ConsciousCass and @Marcia_Brock, supported by @Happy_Days_UK. Looking forward to meeting some of our young community in Exeter.
We love to laugh! Helps release endorphins (the bodies natural painkiller), relieves stress, relaxes muscles, boosts immune system, increases immune cells, helps you forget the bad stuff for a bit #smile #laugh #live #edsunplugged #EDS #chronicpain #MentalHealthAwarenessWeek
Check out #edsunplugged vlog re living with #ehlersdanlossyndrome
#fibromyalgia #invisibledisability #invisibleillness #ChronicPain #Chronicfatigue
ππΎ https://t.co/9bkjKjFAE8
@DrEReinhold I have shared your tool kit so many times as too many people are still undiagnosed. It was our pleasure to share and give a review. #EDSAwareness #EDSAwarenessMonth #eds #EhlersDanlosSyndrome #EDSunplugged #EDSToolkit
@ConsciousCass @Marcia_Brock @ehlersdanlosuk Thanks so much for this guys! I really appreciate it. Can't believe it is nearly one year since the #EDSToolkit launched.
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