#ERNlung - Twitter Hashtag

5 months ago

Honoured to join the 10th ABM of @ErnLung🌍 Frank Willersinn & Marion Wilkens shared how the Alpha-1 Europe Alliance was built 🤝 Now uniting 13 organisations across 14 countries 🇪🇺 Grateful for this space to collaborate & improve rare lung disease care 💙 #ERNLUNG #RareDiseases #AATD #Alpha1Europe

alpha1europe's tweet photo. Honoured to join the 10th ABM of @ErnLung🌍
Frank Willersinn & Marion Wilkens shared how the Alpha-1 Europe Alliance was built 🤝
Now uniting 13 organisations across 14 countries 🇪🇺
Grateful for this space to collaborate & improve rare lung disease care 💙
#ERNLUNG #RareDiseases #AATD #Alpha1Europe

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Alpha-1 Europe Alliance asbl

@alpha1europe

6 months ago

Our March Newsletter is out! ⚡ Discover updates from across Europe, including ePAG ERN-LUNG news, an interview with Marion Wilkens, and highlights from #Ireland #Germany & #Spain. 📬 Stay connected: https://t.co/RMVSvg3GAg #Alpha1Europe #AATD #PatientAdvocacy #ERNLUNG

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ERN-LUNG @ErnLung

12 months ago

The #ERSCongress2025 is taking place from 27 September – 1 October 2025 at the #RAIAmsterdam and #ErnLung is very excited to join this event and is looking forward to connecting with many experts and patient representatives from around the world

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Alpha-1 Europe Alliance asbl

@alpha1europe

over 1 year ago

Strengthening the voice of #Alpha1 at @ErnLung Frank Willersinn represented the Alpha-1 community at the 9th ERN LUNG Board Meeting, alongside patient advocates & experts. Kudos to the new Alpha-1 Core Network leadership! 👏 #ERNLUNG #LungHealth #RareDiseases #EARCO

alpha1europe's tweet photo. Strengthening the voice of #Alpha1 at @ErnLung
Frank Willersinn represented the Alpha-1 community at the 9th ERN LUNG Board Meeting, alongside patient advocates & experts. Kudos to the new Alpha-1 Core Network leadership! 👏
#ERNLUNG #LungHealth #RareDiseases #EARCO https://t.co/jPXZggZM7E

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St Vincent's University Hospital (SVUH) @svuh

over 1 year ago

🚨 BREAKING NEWS SVUH has been named Europe’s top-performing centre for rare lung disease by ERN-LUNG! This #RareDiseaseDay, we celebrate our commitment to excellence in patient care, research & innovation. 🔗 Read more: https://t.co/0luAoQ7pon #SVUH #ERN #ERNLUNG

svuh's tweet photo. 🚨 BREAKING NEWS

SVUH has been named Europe’s top-performing centre for rare lung disease by ERN-LUNG!

This #RareDiseaseDay, we celebrate our commitment to excellence in patient care, research & innovation.

🔗 Read more: https://t.co/0luAoQ7pon

#SVUH #ERN #ERNLUNG https://t.co/62k64439lH

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ERN-LUNG @ErnLung

over 2 years ago

Don´t miss the #ERS Virtual school on rare lung diseases in collaboration with #ERNLUNG coming up tomorrow, January 30! Find out more: https://t.co/aXNVFJORBw

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Dott.ssa Maria Elisa Di Cicco @DrMariaDiCicco

about 3 years ago

On my way to the PCD annual research meeting 💪🏻 #PrimaryCiliaryDyskinesia #PCD #ERNLung #BEATPCD

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HipertensiónPulmonar @ANdHP

over 5 years ago

Aceleración de la investigación de la UE sobre enfermedades raras: el caso de la hipertensión pulmonar 21 April 2021 15:00–16:30 CET Online Organizado por @EuropePHA y @EuropeanRespiratorySociety #EURORDIS #ERNLung #EU #BreatheVision Registration link:👇 https://t.co/CKtPZRGj1K

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HTaPFrance @HTaPFrance

over 5 years ago

Save the date! on 23rd. March, Pr Marc Humbert from #ERNLung and @EuroRespSoc and French PH networl will moderate a webseminar including a live panel discussion. It is also for Patients and carers. Go to https://t.co/lmh8bV2EPx

HTaPFrance's tweet photo. Save the date! on 23rd. March, Pr Marc Humbert from #ERNLung and @EuroRespSoc and French PH networl will moderate a webseminar including a live panel discussion. It is also for Patients and carers. Go to https://t.co/lmh8bV2EPx https://t.co/TdUCiQfbZx

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EMBARC @EMBARCnetwork

almost 7 years ago

New guidance on travel for patients with bronchiectasis - a collaboration between clinicians and patients with #EMBARCnetwork #ERNlung #Europeanlung @mihcalshteinber https://t.co/yf3FoyG4zB

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Thierry Troosters @troosters

over 7 years ago

Risk stratification has improved outcome for patients with #pulmonary_hypertension says Prof Marc Humbert during ⁦@ERSTalk⁩ #ersadvocacy presidential summit in #Hannover. Still work ahead though, best done throug large collaboratory networks like #crc or #ERNLung

troosters's tweet photo. Risk stratification has improved outcome for patients with #pulmonary_hypertension says Prof Marc Humbert during ⁦@ERSTalk⁩ #ersadvocacy presidential summit in #Hannover. Still work ahead though, best done throug large collaboratory networks like #crc or #ERNLung https://t.co/mLY8re1tmq

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European Alpha-1 Awareness Day @Alpha1_EPevent

over 7 years ago

Networking with other physicians through #ERNliver and #ERNlung improves the diagnosis of #Alpha1 according to PD Pavel Strnad @Alpha1_Global @ERN_RARE_LIVER

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HTaPFrance @HTaPFrance

over 7 years ago

@RespiFIL savez-vous que l'Hypertension Pulmonaire fait l'objet d'un réseau européen de référence, avec d'autres maladies pulmonaires rares? #ERNLung #PulmonaryHypertension #Raredisease

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Domenica Taruscio @DTaruscio

over 8 years ago

NEW "Italian Cystic Fibrosis Registry. Report 2011-2014" Sections: Demography, Diagnoses & New diagnoses, Genetics, Lung function, Nutrition, Complications, Transplants, Microbiology & Mortality. https://t.co/dWPdzTHYhu #ERNLung

DTaruscio's tweet photo. NEW "Italian Cystic Fibrosis Registry. Report 2011-2014"
Sections: Demography, Diagnoses & New diagnoses, Genetics, Lung function, Nutrition, Complications, Transplants, Microbiology & Mortality. https://t.co/dWPdzTHYhu
#ERNLung https://t.co/VNYpmcLl9l

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Yann Le Cam @yann_eurordis

over 8 years ago

ERNs patient centricity and focus on improving patient's health outcomes starts with a meaningful participation of patient representives (ePAGs) in the governance and activities of ERNs. Thank you #ERNLung ! https://t.co/YGNPumpmmo

matt johnson @mattbolzjohn

over 8 years ago

Fantastic ERN-Lung Annual Meeting #ERNLung #Eurordis and ePAG reps. Unlocking the potential of ERN for RD Community!

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matt johnson @mattbolzjohn

over 8 years ago

Fantastic ERN-Lung Annual Meeting #ERNLung #Eurordis and ePAG reps. Unlocking the potential of ERN for RD Community!

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Ines Hernando @inesernando

over 8 years ago

At the #ERNLUNG Board meeting. 2 days full of good discussions, plannning next steps and taking stock of the work done in year 1. #ShowYourRare @eurordis @EuropeanLung

inesernando's tweet photo. At the #ERNLUNG Board meeting. 2 days full of good discussions, plannning next steps and taking stock of the work done in year 1. #ShowYourRare @eurordis @EuropeanLung https://t.co/979eGEHiQV

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Bambino Gesù @bambinogesu

over 8 years ago

Favorire l'accesso alle cure per i pazienti con #malattierare polmonari è l'obiettivo di #ERNLUNG A, il network che riunisce i massimi esperti europei. In questa intervista a Renato Cutrera vi raccontiamo il contributo del Bambino Gesù: https://t.co/CErCjyZ6bw

bambinogesu's tweet photo. Favorire l'accesso alle cure per i pazienti con #malattierare polmonari è l'obiettivo di #ERNLUNG A, il network che riunisce i massimi esperti europei. In questa intervista a Renato Cutrera vi raccontiamo il contributo del Bambino Gesù: https://t.co/CErCjyZ6bw https://t.co/emjgOhPOvp

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