Top Tweets for #ExtrapelvicNotRare
@DrCindyCooper @madlovequotesi @BrownHospMed It’s a tricky disease. 🤷🏼♀️ But I have been very amused by how easily clinicians have accurately identified this when it is presented above….. and yet in the confines of a consultation room it often takes years to reach the same conclusion. #extrapelvicnotrare @XtraNotRare
@EndoWhat 29+ yrs after first symptoms appeared. #extrapelvicendometriosis #extrapelvicnotrare #catamenialpneumothorax
#endometriosis #extrapelvicendometriosis #extrapelvicnotrare #200millionaffected #earlydiagnosis #laparoscopy #pathology #medical #doctors #gyn #sideeffects #health #whereisourspecialtyfield ? #excision not ablation. #education #wholebodydisease Found in 11 body systems.
Endometriosis: How advocacy, awareness and algorithms could shorten the long wait for diagnosis and treatment https://t.co/1lEzNSYRMV
@acog more outcomes evidence complete #excision superceeds #ablation tx of #endometriosis. #endometriosis needs ID as a #specialty w/in #Gynecology w/ the Gyn as Captain @ the Helm of surgical disciplines to remove ALL disease #ExtrapelvicEndometriosis #ExtrapelvicNotRare
This. To clarify, incl. persons premenarche, transgender male, identify non-binary & rare cis-males. Its a disease NOT confined to reproductive tissues, has been ID’ed in (11) major body system. Menstrual dysfunctions oft co-occur, not always. #endometriosis #extrapelvicnotrare
Hanging on to the end of summer and supervising the launch of fall. #ExtrapelvicEndometriosis #ExtrapelvicNotRare #SunflowersBrightenTheDay #SunflowersMakeMeSmile

If you didn’t get to order an #ExtrapelvicNotRare tee or hoody to support this unique #grassroots #nonprofit closes Sunday July 7th. #BeTheChange #ItTakesAVillage order @ https://t.co/FVYIGEOl4r #ExtrapelvicEndometriosis #WeAreExtraNotRare

Not all superheros wear capes. Some battle invisible disease AND injustices from gaslighting, delayed & misdiagnosis, & lack of access to skilled surgical teams to treat #endometriosis among numerous body systems. Support grassroots: https://t.co/4Ffeb7qmyR #extrapelvicnotrare

Support the mvmt to acknowl. #endometriosis as a disease w/ #bodywide lesion potential. The grassroots #nonprofit #ExtrapelvicNotRare mission incl. ID barriers to diagnosis & interventions for disease outside the repro system. Learn abt our campaign @ https://t.co/4Ffeb7qmyR

@metraux_julia #endometriosis is a disease w/ #bodywide lesion potential that’s not ltd to the reprod system of persons afab. Always looking to collaborate to ensure accurate, up-to-date info abt a disease freq. mired in myth & misinfo among media & well know institutes. #ExtrapelvicNotRare
#Natural occuring #endometriosis isn’t ltd to humans & menstruating primates. It’s been identified in anestrus mammals, like dogs. Head over to website https://t.co/CFm8KBZHS3 to learn more. Also watch the video on Welcome page re: Tee’s & Hoody Campaign. #extrapelvicnotrare

Support the #grassroots #endometriosis 501 c3 registered non-profit #ExtrapelvicNotRare. Video highlighting purpose of Tee’s and Hoodies Campaign available on link to order EPNR swag. https://t.co/4Ffeb7qmyR

https://t.co/CFm8KBZHS3 (501 c3) has launched a fundraiser to cover expenses for IRB Review & assoc. fees for upcoming research projects for awareness, education & shift toward inclusive policies, higher care standards & curricula. #ExtrapelvicNotRare https://t.co/4Ffeb7qmyR
@malstumd @FMIGS1 @DrSamarNahas1 @sadikah6 @UCRHealth @UCRSoM Excellent!!!! Steps in the right direction. Pushing comfort zones w/ disease beyond traditional practice patterns & embracing collaboration brings growth to ea.surgical team member, does right for the patient. & offers diff. perspective of #endometriosis #ExtrapelvicNotRare
Accurate information about #endometriosis. Far more than ‘bad menstrual cramps’. #ExtrapelvicNotRare #BowelEndometriosis

Adolescent persons afab DO have #endometriosis; DO have disease beyond the reproductive tissues and DO develope #DeepInfiltrating disease. #Adolescent #BowelEndometriosis #NotIBS #ExtrapelvicEndometriosis #ExtrapelvicNotRare
Teenage endo:
This was a case of an 18year old with severe dysmenorrhea and bowel symptoms since a few years who was bounced from doctor to doctor and put on hormonal suppression since the age of 16. Of course she was also told to get married soon and start popping out babies

Thank you for helping me learn. I am so very grateful. #endometriosis #endometriosiseducation #extrapelvicnotrare #extrapelvicendo #neuropelveology
Always look for extra pelvic disease !
#endometriosis #endostrong💛 #endometriosisawareness #endometriosisindia #endometriosissurgery #extrapelvicendometriosis #extrapelvicnotrare
It's Merch Monday. Head on over to our website! https://t.co/JlXBcKgEMM #supportingcharity #smallbusiness #endometrisois #endo #1in10 #endoaffectseveryone #chronicpain #painispain #chroniccondition #extrapelvicnotrare #endolgbtqia
#lgbtqia #transendo #transendometriosis

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