Top Tweets for #FNDisReal
Hope: FND Stories https://t.co/oO0n35q4wE via @YouTube
For those of you who do not know about FND or are skeptical, some good stories to watch here. It's a true neurological disorder & there is real science behind it. Do educate yourself, a patient will thank you
#FNDisreal
I try to keep most of my FND stuff on #Instagram but it is #FND #awareness month so I am sharing on different social media platforms. Some wonβt want to see it or theyβll be rolling their eyes bored of this so please feel free to unfriend or unfollow I wonβt be arsed #FNDISREAL
Every day is a fight, some days (like today) itβs a fight to stay awake (I lost) some days itβs proving to myself that Iβve got this and some days to the medical professionals that #FNDISREAL but together #wearestronger
We have to believe things can change and Hope the lives of FND warriors improve in the future. #fndawareness
A very real disorder. I myself had no idea it existed until we thought we were losing my niece, and after months of fighting she got her diagnosis..... You don't need to know everything about it but don't deny its existence to people battling it daily. #FNDawareness #FNDisreal
Are you #FND aware? Is your family FND aware? Are your friends FND aware? Are your work colleagues FND aware?
Today we unite as one voice to make as many people as possible aware of Functional Neurological Disorder. We demand better understanding and care. #Voices4FND

Raising #awareness one post at a time #fndisreal itβs taken 3 years of my life so far!! Believe me when I say no one would pretend they had this disorder, I had a happy life before, working, socialising, independence no I have none of it! I donβt choose this life!
Are you #FND aware? Is your family FND aware? Are your friends FND aware? Are your work colleagues FND aware?
Today we unite as one voice to make as many people as possible aware of Functional Neurological Disorder. We demand better understanding and care. #Voices4FND

What is Functional Neurological Disorder... explained by Professor Mark Edwards.
Created and produced by @FNDHopeUK and Rumsey Films
#FND
#fndhopeuk
#functionalneurologicaldisorder
#FNDisReal
#LetsTalkFND
#livingwithFND
#BreakTheStigmaofFND
π¨ Every Monday & Friday we host a FREE online art journaling class for those living with FND. It is a great way to relax your mind while being creative. Classes are held via zoom and open to anyone over the age of 18.
Sign up via our website!
#LetstalkFND #FNDisReal

To celebrate #volunteersweek we're highlighing some of our incredible volunteers. Today meet:
π Clair Boyle
π Jayne Menzies
π Lauren White
π Vanessa Jefferson
#volunteersweek #FND #FNDisreal

To celebrate #volunteersweek we're highlighing some of our incredible volunteers. Today meet:
π Steve Portelly
π Callum Alexander
π Sophie Fleetwood
π Suzanne Hutchinson
#volunteersweek #FND #FNDisreal

To celebrate #volunteersweek we're highlighing some of our incredible volunteers. Today meet:
π Alison Newland
π Isabella Harding
π John McLean
π Lorraine Down
#volunteersweek #FND #FNDisreal

Finding out your child has FND can be a stressful and confusing time. Particularly if this is your first experience of FND. Here is the typical roadmap created by the Pediatric FND Consortium of what the progression of care for you and your child might look like.
#FNDisReal

Spent 35 min speaking with an MD trying to convince them that FNDs are truly neurological disorders & not all mental (as they called it). At the end of it, he said he was going to deny the patient's claim. WT*!!! We have to fight this battle hard for our patients.
#FNDisreal
Caroline hopes the more awareness is raised on #FND, the more it will help the medical professionals to include it in their training modules.
#FNDAware #fndawarenessmonth2023 #fndawareness2023 #fndawarenessmonth #LetsTalkFND #fndisreal #FND2023 #AreYouFNDAware #IamFNDAware
Caroline explains how she copes living with FND by being positive and educating medical professionals.
How do you cope living with #FND?
#FNDAware #fndawarenessmonth2023 #fndawareness2023 #fndawarenessmonth #LetsTalkFND #fndisreal #FND2023 #AreYouFNDAware #IamFNDAware
Caroline explains what is FND in her own words.
How do you explain #FND?
#FNDAware #fndawarenessmonth2023 #fndawareness2023 #fndawarenessmonth #LetsTalkFND #fndisreal #FND2023 #AreYouFNDAware #IamFNDAware #IamFNDAwareAreYou #functionalneurologicaldisorder #fndawareness
Caroline talks about receiving her #FND Diagnosis.
#FNDAware #fndawarenessmonth2023 #fndawareness2023 #fndawarenessmonth #LetsTalkFND #fndisreal #FND2023 #AreYouFNDAware #IamFNDAware #IamFNDAwareAreYou #functionalneurologicaldisorder #fndawareness #BreaktheStigma #livingwithfnd
We were joined by @GNielsen_Physio & @CNicholsonOT discussing
How to diagnose
Symptoms
Terminology
How to treat patients
Thanks to Glenn and Clare for joining us at the @Neuroconvention
#FND #FunctionalNeurologicalDisorder #LetsTalkFND #FNDisReal #FNDawareness

All set up for the @neuroconvention, ready to discuss all aspects of #FND, including myth busting.
The Neuro Convention is for medical professionals.
#LetsTalkFND #FNDAware #functionalneurologicaldisorder #fndawareness #AreyouFNDAware #FNDisReal #fndhopeuk

Recognising #FND in Primary Care - Infographic & paper written by @jonstoneneuro & @AlanCarson15 on how to recognise #FND
Please do share this with your GPs & HCPs
https://t.co/hHP1oXRnyV
#FND #functionalneurologicaldisorder #functionalseizures #fndawareness #FNDisreal

@TomPlender @WFKARS #FNDisReal #GenuineCauseOfNeurologicalSymptoms #FNDisNotMadeUp #UnfortunatelyFNDisOftenTrivialised Prof Edwards explains: https://t.co/ga0QDMRL8Q
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