Top Tweets for #FacesOfCF
#FacesOfCF DIVERSITY & INCLUSION PROGRAM EXPANDS #CysticFibrosis COMMUNITY RESOURCES & CONNECTION
Download #CFRI's series of fact sheets (English/Hindi/Spanish) to raise #CFawareness in the #SouthAsian, #EastAsian, #Black and #Hispanic/Latinx communities: https://t.co/sm0zF5ej3I
During #CFAwarenessMonth, hundreds of you shared your unique life experiences with cystic fibrosis, furthering understanding of what life looks like with a rare disease and helping others who are in a similar situation. Thank you for sharing! #FacesOfCF
Thanks to advancements in cystic fibrosis treatment, Josh Carey is able to enjoy typical teen activities, like joining the high school marching band and getting his driver's license.
#CysticFibrosisAwarenessMonth #CFAwareness #FacesOfCF
https://t.co/KUCwBBmvG0
“Braylon is excited to get back to doing what he loves: school, playing sports, and being active. Our family has self-isolated this past year which meant home school, no sports, and no public outings. He is looking forward to playing soccer and basketball again.” #FacesOfCF
“I wish others understood that people with cystic fibrosis may struggle with mental health issues like depression and anxiety, and it wears you out, along with all the medications you have to do. Be kind, understanding, and supportive – that’s all we need.” –Eden Hunt #FacesOfCF
During Cystic Fibrosis Awareness Month, the cystic fibrosis community comes together to celebrate every new milestone – from climbing up a flight of stairs, to graduating high school, growing families and so much more. #FacesOfCF #HOPEandHEALTH
https://t.co/aweWeo7a2R
“One thing I wished people better understood about my life with cystic fibrosis is that it doesn’t define who I am and it doesn’t limit my abilities. CF is a part of me, and because of that, it motivates me to push myself harder in everything I do.” –Jojo Vang #FacesOfCF
Every person’s journey with cystic fibrosis is different. During #CFAwarenessMonth, we want to celebrate your unique experiences. Use #FacesOfCF to share your story with CF and help shed light on the realities of life with a rare disease. #CFAwareness
@CF_Foundation This is our son Braylon. He is the joy and laughter of our family. He is 8 and can’t wait to get back to doing what he loves: Basketball, Soccer, Football, Karate, and going to school. #FacesOfCF #CureCF #CysticFibrosis #TeamBraylon
May is Cystic Fibrosis Awareness Month. Over the past 35+ years Advocis Chapters have raised over $5 million dollars for @CFCanada and will continue to volunteer and support the foundation. Get involved! Tell your CF story on social media using the hashtag #FacesOfCF.
May is Cystic Fibrosis Awareness Month!
Each person living with CF has a story to tell. It’s easy to get involved. Tell your CF story on Twitter using the hashtag #FacesOfCF. The @CF_Foundation will be sharing your stories all month long!
Cystic fibrosis can present itself differently for everyone, and affects people of all ages, races, and life experiences. This #CFAwarenessMonth, we want to share your unique experiences with CF. Tweet your story using #FacesOfCF, and we’ll share your posts all month long.
Victotia was diagnosed with CF at 8 months. At 16, everything changed in the blink of an eye, she was dying at 16. By the grace of God, she got the call and got a second chance at life. She lives every day to the fullest and makes her dreams a reality! #BlueCaboose #FacesofCF
HCPs celebrate transformational milestones in cystic fibrosis treatment @cftrust @CF_Foundation #CysticFibrosis #FacesofCF
@VertexPharma #Orkambi #Symkevi #Trikafta #Kalydeco
@LauraCREATION17 @CREATION
https://t.co/AIZ7Wowtc2
We are so happy for the #CF community. This is the face of a girl who has been given a brighter future. Almost. #Symkevi licensed for 12 & over. We shall wait until she gets it. Thank you #facesofCF
Constant campaigning & seeing what is right & moral #Orkambi
Dum Spiro Spero
Things are sounding positive for once but don’t dare get excited!! Please just give us some good news 💛 @MattHancock @ChrisMRiches @BorisJohnson @NHSEngland #lifechangingdrugs4cf #facesofCF it would be the best start to married life I could imagine 💛
I am amongst the #facesofCF in the #Express today. We are really hoping all our lives will be changed soon. Can anyone remember what life was like before this campaign?
Thank you @ChrisMRiches
#CF
#cysticfibrosis
#WorldMentalHealthDay2019
#mattstheman
#lifesavingdrugsnow
https://t.co/Yb8VnmwlFR Click on this link to see more videos about my reasons these #lifesavingdrugs4cf are needed for @camhutch2010 and everyone else in the UK suffering with this illness. #facesofCF 💛
My beautiful daughter front page tomorrow. Please remember Harriet and all #FacesofCF when looking at those technicalities @NHSEngland @MattHancock. Give Harriet the best birthday present ever #LifeSavingDrugsNow huge thanks @ChrisMRiches @Daily_Express 🙌🏻🙌🏻🙌🏻
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