#FacesofLFS - Twitter Hashtag

over 4 years ago

Our storytellers this week are navigating rare disease diagnoses. This episode was produced in partnership with the @ChanZuckerberg Initiative’s Rare As One Project. Listen: https://t.co/V7bvgmaXNk @HPSNetwork @LFSAssociation #facesoflfs #lfsstrong

storycollider's tweet photo. Our storytellers this week are navigating rare disease diagnoses. This episode was produced in partnership with the @ChanZuckerberg Initiative’s Rare As One Project. Listen: https://t.co/V7bvgmaXNk
@HPSNetwork
@LFSAssociation #facesoflfs #lfsstrong https://t.co/vAOubPMhZP

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The Story Collider @storycollider

over 4 years ago

Our storytellers this week are navigating rare disease diagnoses. This episode was produced in partnership with the @ChanZuckerberg Initiative’s Rare As One Project. Listen: https://t.co/V7bvgmaXNk @CureHPS @LFSAssociation #facesoflfs #lfsstrong

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LFS Association @LFSAssociation

about 5 years ago

Learn more from National Cancer Institute about their involvement with the LFS Awareness Month and the current studies about LFS at the NIH Clinical Center! @theNCI @NCIEpiTraining #LFSAwarenessMonth #LFSAwarenessDay #LiFraumeniSyndrome #FacesOfLFS https://t.co/x2eJkyFPbn

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Sarah Scollon @SarahScollon

about 5 years ago

Today is International Li-Fraumeni Syndrome Awareness Day. I wanted to bring attention to #GCchat of the resources available at https://t.co/kZeQfeyAlz in multiple languages as well as international chapters to serve our patients and their families @LFSAssociation #FacesofLFS

SarahScollon's tweet photo. Today is International Li-Fraumeni Syndrome Awareness Day. I wanted to bring attention to #GCchat of the resources available at https://t.co/kZeQfeyAlz in multiple languages as well as international chapters to serve our patients and their families @LFSAssociation #FacesofLFS https://t.co/D8N6TB5MMf

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Sarah Scollon @SarahScollon

about 5 years ago

Today is International Li-Fraumeni Syndrome Awareness Day. Visit https://t.co/pzSzx8uQzT to learn more about the many resources that are available to patients and their families living with LFS @LFSAssociation #LFSAwareness #FacesofLFS

LFS Association @LFSAssociation

about 5 years ago

Too few people know about Li-Fraumeni Syndrome, which predisposes people to a range of often rare and early on-set cancers. Learn how patients and families can find more and better opportunities to connect, share knowledge, and access solutions. Visit https://t.co/IwAI7kWeF9!

LFSAssociation's tweet photo. Too few people know about Li-Fraumeni Syndrome, which predisposes people to a range of often rare and early on-set cancers. Learn how patients and families can find more and better opportunities to connect, share knowledge, and access solutions. Visit https://t.co/IwAI7kWeF9! https://t.co/RHdF4meA56

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Stacy W. Gray @stacywgray

about 5 years ago

May 3 is Li-Fraumeni Syndrome Awareness Day! Connect with @lfsassociation to learn more about LFS. #LFSAwareness #KnowYourGenes #LFSandthriving #Li-FraumeniSyndrome #Cancer #CancerGenetics #LFSStrong #FacesofLFS #LFSAssociation

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LFS Association @LFSAssociation

over 5 years ago

Join LFSA Germany in a question and answer session about LFS with Dr. @cpkratz. This will be held over Zoom tomorrow at 6pm CEST, and registrations and questions can be sent to [email protected]. #lifraumenisyndrom #facesoflfs #krebspraedisposition #kinderkrebsforschung

LFSAssociation's tweet photo. Join LFSA Germany in a question and answer session about LFS with Dr. @cpkratz. This will be held over Zoom tomorrow at 6pm CEST, and registrations and questions can be sent to info@lfsa-deutschland.de.

#lifraumenisyndrom #facesoflfs #krebspraedisposition #kinderkrebsforschung https://t.co/hDNNJqTMFv

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Jenn Perry @EquiholicJenn

almost 7 years ago

Thank you Dr. Achatz! You have always been such a caring leader that is a tremendous force making a difference in the lives of so many with LFS! ❤️#LFSA #Facesoflfs

Maria Isabel Achatz MD PhD @AchatzIsabel

almost 7 years ago · Belo Horizonte

In a country with so many disparities such as Brazil, with limited access to health care, we must give better care to our patients and educate health care on hereditary cancer. This week will be 5 states and 5 lectures, in one week. Raising awareness on Li-Fraumeni syndrome!

AchatzIsabel's tweet photo. In a country with so many disparities such as Brazil, with limited access to health care, we must give better care to our patients and educate health care on hereditary cancer. This week will be 5 states and 5 lectures, in one week. Raising awareness on Li-Fraumeni syndrome! https://t.co/nOLaRwVLVB

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Fulgent Genetics @FulgentGenetics

about 7 years ago

At Fulgent, we believe others shine the brightest when meaningful relationships, passion, and purpose come together - which is why we have partnered with LFSA. For more info on how to get support for your patient to attend, DM us! #lfsassociation #facesofLFS #shinebrightly

FulgentGenetics's tweet photo. At Fulgent, we believe others shine the brightest when meaningful relationships, passion, and purpose come together - which is why we have partnered with LFSA. For more info on how to get support for your patient to attend, DM us! #lfsassociation #facesofLFS #shinebrightly https://t.co/FtD1NsqrWA

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Emily Quinn @EAQuinn

about 7 years ago

Check out ‘Robot Music’ – an informative and fun new children’s book for families living with #LFS! https://t.co/lYFATZfDch via @amazon #GCchat #LFSA #cancer #genetics #facesoflfs #LiFraumeni @LFSAssociation @LivingLFS @GeneticCouns

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Jenn Perry @EquiholicJenn

about 7 years ago · Chicopee

Such important work to be done! Our group is working hard to represent patients with LFS everywhere. #LFSA, #facesoflfs

LFS Association @LFSAssociation

about 7 years ago

Volunteer #LFSA board member Kathy Higgins attended Child Health Advocacy Day with @BostonChildrens at the @MAStateHouse today! #BCH150

LFSAssociation's tweet photo. Volunteer #LFSA board member Kathy Higgins attended Child Health Advocacy Day with @BostonChildrens at the @MAStateHouse today!
#BCH150 https://t.co/uDGzBEY2iD

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LFS Association @LFSAssociation

over 8 years ago

Candids, headshots, selfies, family, friends, individuals - if you're #LFSStrong in your experience with #lifraumeni, we want your smiles and stories for our #FacesOfLFS 2018! Send in your pics to: [email protected] by March 1st!

LFSAssociation's tweet photo. Candids, headshots, selfies, family, friends, individuals - if you're #LFSStrong in your experience with #lifraumeni, we want your smiles and stories for our #FacesOfLFS 2018! Send in your pics to: info@lfsassociation.org by March 1st! https://t.co/JXBEAI6Dc8 https://t.co/RMwzjcmae7

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LFS Association @LFSAssociation

over 8 years ago

We are looking for your #LFSStrong smiles and stories! Join the 2018 #FacesOfLFS campaign and send in your pics to [email protected] by March 1st!

LFSAssociation's tweet photo. We are looking for your #LFSStrong smiles and stories! Join the 2018 #FacesOfLFS campaign and send in your pics to info@lfsassociation.org by March 1st! https://t.co/RYocipMEZ5

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LFS Association @LFSAssociation

over 8 years ago

ISO YOUR #LFSSTRONG PICS! Share your story of living with #lifraumeni with pics for our 2018 #FacesOfLFS campaign - Submit a hi-res photo to: [email protected] by March 1st!