Top Tweets for #LFSStrong
Our storytellers this week are navigating rare disease diagnoses. This episode was produced in partnership with the @ChanZuckerberg Initiative’s Rare As One Project. Listen: https://t.co/V7bvgmaXNk
@HPSNetwork
@LFSAssociation #facesoflfs #lfsstrong
Our storytellers this week are navigating rare disease diagnoses. This episode was produced in partnership with the @ChanZuckerberg Initiative’s Rare As One Project. Listen: https://t.co/V7bvgmaXNk
@CureHPS
@LFSAssociation #facesoflfs #lfsstrong
May is #BrainTumorAwarenessMonth. People with #LiFraumeniSyndrome have an increased risk of developing #BrainCancer. Learn more: https://t.co/3mQz3604CD
#LFSawareness #LivingLFS #IAmLivingLFS #LiFraumeniSyndromeAwareness #LiFraumeni #LFSStrong #Glioblastoma #ChoroidPlexus
#LiFraumeniSyndrome in one handy image. Visit https://t.co/NtAVKWLmrl for more.
#LFSawareness #LivingLFS #IAmLivingLFS #LiFraumeniSyndromeAwareness #LiFraumeni #BreastCancer #LFSStrong #BrainCancer #sarcoma #P53 #TP53 #TP53gene #Cancer #CancerGenetics #GeneticCancer #genetics
May 3 is Li-Fraumeni Syndrome Awareness Day! Connect with @lfsassociation to learn more about LFS. #LFSAwareness #KnowYourGenes #LFSandthriving #Li-FraumeniSyndrome #Cancer #CancerGenetics #LFSStrong #FacesofLFS #LFSAssociation
Friends and lunch with Maria Isabel in Brazil...stay tuned for a special announcement tomorrow at the conference! #lfsa #lfsstrong
A HUGE “thank you" to the AU/NZ top tier of #lifraumeni researchers: @BrittanycMcGill, @ballingermandy, @ProfDMThomas, @Rowan_ForbShep, @LEForrest, and Dr. Kathy Tucker! We're so excited to have you all aboard!
#LiFT4LFS #LFSstrong
https://t.co/7ZTjH21Yyo
تبارك منظمة لي فيرميني للدكتور جوشو�� شيفمان، من المجلس الطبي الاستشاري للمنظمة لحصوله على مليون دولار لدعم بحثه عن سبب مقاومة الفيل 🐘 للسرطان وذلك لبحث العلاجات الممكنة لسرطان العظام عند الأطفال.
#وجوه_متلازمة_لي_فيرميني
#LFSStrong
A HUGE congratulations goes out to Dr. Joshua Schiffman, #LFSA Medical Advisory Board member, for receiving a $1 Million grant for his ground-breaking work in studying #cancer resistance in elephants and its potential implication to treat #osteosarcoma in children. 🐘 #LFSStrong
A HUGE congratulations goes out to Dr. Joshua Schiffman, #LFSA Medical Advisory Board member, for receiving a $1 Million grant for his ground-breaking work in studying #cancer resistance in elephants and its potential implication to treat #osteosarcoma in children. 🐘 #LFSStrong
The 10 day countdown to national #pediatriccancerawarenessmonth has begun! For our first day of the countdown we had the pleasure of awarding a Quantum Grant, totaling $1 million to @primarychildren to be used for life saving research.
#endchildhoodcancer
Wow! @Levine_Alison was the guest speaker at our #LFSA Youth Workshop last summer. Thank you for sharing your amazing story with us and so many others, Alison! #LFSStrong https://t.co/y9ylgnLmVk
"My knowledge has both empowered and broken me". Short personal essay on having a p53 mutation #LFSStrong
https://t.co/6EtsBeaMIy
The talented @KatePeytavin sings a beautiful tribute in loving memory of Addie Brady. Kate’s own family is #LFSStrong and Kate does a wonderful job raising #lifraumeni #cancer awareness! Enjoy the show!
https://t.co/liyDYeKIpi
Stop by the registration table and sign up for a time slot to share your #LFSStrong story with Patrick Moscatiello! Patrick will be conducting short video interviews for a new LFS Awareness project and needs the voices of #lifraumeni families and professionals.
#LFSA
Cameron Block and Jamie Higgins inspiring all of us #LiFraumeni syndrome symposium. “Look beyond youself & be a game changer.”
“We will continue to celebrate life despite the lumps & bumps that come along.”
#LFSA #LFSStrong @LFSAssociation @SickKidsNews
Listening to an incredible teenage perspective of life with #lifraumeni. Our #LFSStrong youth are the driving force behind the work of #LFSA.
We are excited to present Saudi Arabia and Middle East in @LFSAssociation annual meeting @SickKidsNews #LFSStrong #وجوه_متلازمة_لي_فيرميني https://t.co/zNfKLo0jGw
في مؤتمر متلازمة لي-فيرميني الدولي لتمثيل السعودية ومنطقة الشرق الأوسط، الان اجتماع الأعضاء من مختلف دول العالم، وسنوافيكم بالمستجدات في الايام ال��ادمة على هاشتاق #وجوه_متلازمة_لي_فيرميني
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