Top Tweets for #FairforRare
BREAKING - We were thrilled to join @StephenJonesMP and Dr Jane Tiller this morning for the banning of life insurers from using genetic tests to deny cover or hike premiums on cancer patients💪 #fairforrare
Have you had a chance to do this yet ? If not you can still contact your local MLA’s to get them on board with helping to establish Rare Disease All Party Group (APG) at the NI Assembly.
#RareDiseaseNI #FairForRare
#IWD2020 | Our patients are our Why. People like Anita inspire our work every day and push us to make it #FairForRare. #RaisingTheTide
Chief Executive of Rare Disorders New Zealand Lisa Foster at Parliament launching their #FairforRare campaign. Calling for a national framework for rare disorders in New Zealand.
@RareDisordersNZ #RareDiseaseDay
Rare Disease Day is an annual event for the Victorian Support Sector and will be held from 9.30am – 4.30pm at the Royal Children’s Hospital in Parkville
RSVP here: https://t.co/7OFIrv6cwm
#RareDiseaseDay #fairforrare #knowyourgene #ShareYourStripes
A big thank you once again to everyone who came along to our Parliamentary Event yesterday! Here are some more photos from the event. #raredisease #rarevoicesaustralia #health #rarediseases #fairforrare
13 to 19 October is HPN Awareness Week. RVA Partner, Parenteral Nutrition Down Under (PNDU), is providing informative resources, interactive games & this video to mark the week: https://t.co/m7D4NsgqHM #hpnawarenessweek #raredisease #fairforrare #rarediseases
A reminder for us all as we head into the weekend #raredisease #health #rarediseases #selfcare #mentalhealth #rarediseases #fairforrare #rarevoicesaustralia
"When my kids were alive I promised them that I'd fix it. I couldn't fix it for them, but I'm damn sure I can fix it for everyone else." - @smaaustralia CEO Julie Cini
More: https://t.co/QXvA6sherv #RareDisease #spinalmuscularatrophy #rarediseases #fairforrare #health
An informative piece published in
@ConversationEDU about population #DNAtesting for disease risk, co-authored by Dr @PaulLacaze who is a member of RVA's Scientific & Advisory Committee: https://t.co/HQUGXbMns1 #raredisease #rarevoicesaustralia #fairforrare
A mid-week reminder for us all #raredisease #rarevoicesaustralia #rarediseases #fairforrare #rare #health
For anyone having a tough week so far #raredisease #rarevoicesaustralia #fairforrare #rarediseases #rare #health
#RareDiseaseDay has arrived in the Southern Hemisphere. #ShareYourRare on this special day. #AcuteNecrotizingEncephalopathy #AussieANE #KiwiANE #SouthAfricaANE #FairforRare @RareVoices @NZ_ORD @RarediseasesSA
What do young people want? Carolyn Thompson @CHFofAustralia explains what is important for our youth. Thanks to the panelist @GidonGoodman, Sean Millis & Anna Kirkman @RareVoices #NationalRareDiseaseSummit #FairForRare #RareDiseases
@Asher_Wolf @VictorianGreens @vic_socialists @LiberalVictoria @VictorianLabor Hey Asher have a great interest in #FairForRare - many of the issues are about federal funding - what can we do at a state level? Are there examples of other rare conditions that get state attention?
Nicole Millis, CEO @RareVoices “there is a lack of data, variation and uncertainty with rare diseases, time is a factor and treatment and management plans are not always equitable” #NationalRareDiseaseSummit #FairForRare #RareDiseases #swanaus
Nicole Millis @RareVoices - why advocate for rare diseases: change and reform needed, no other choice, can work and can make a difference #NationalRareDiseaseSummit #FairForRare #RareDisease #swanaus
Pleased to be attending and speaking at @RareVoices National Rare Disease Summit today
#raredisease #fairforrare #RVA #RareDiseaseSummit
Last Seen Hashtags on Sotwe
omegle
Seen from United Kingdom
lilybrawlstars
Seen from United States
เย็ดพยาบาล
Seen from Thailand
trans
Seen from Germany
whiteboy
Seen from Turkey
Shilpa
Seen from Bahrain
연능
Seen from Korea
Guarefirme
Seen from United States
ladyboy_riyadh
Seen from Saudi Arabia
batsford
Seen from United States
Most Popular Users
Elon Musk 
@elonmusk
240.9M followers
Barack Obama
@barackobama
119.2M followers
Donald J. Trump
@realdonaldtrump
111.8M followers
Cristiano Ronaldo
@cristiano
111.7M followers
Narendra Modi
@narendramodi
107.1M followers
Rihanna
@rihanna
97.9M followers
NASA
@nasa
92.2M followers
Justin Bieber
@justinbieber
91.1M followers
KATY PERRY
@katyperry
88.3M followers
Taylor Swift
@taylorswift13
82.1M followers
Lady Gaga
@ladygaga
73.6M followers
Virat Kohli
@imvkohli
70.8M followers
Kim Kardashian
@kimkardashian
70.1M followers
YouTube
@youtube
68.7M followers
Bill Gates
@billgates
64.2M followers
Neymar Jr
@neymarjr
63.7M followers
The Ellen Show
@theellenshow
62.4M followers
CNN
@cnn
61.8M followers
Selena Gomez
@selenagomez
61.3M followers
X
@x
60.8M followers