Top Tweets for #FormulaCrisis
Another abysmal failure by the @US_FDA to protect kids. Again. First #CovidVaccines then #FormulaCrisis. Now significant amounts of lead. In baby food. We took lead out of *GASOLINE* and paint. But aren't protecting the *FOOD*? #Momvocate
Not your average food safety notice
In @US_FDA alert re: fruit puree
"recently made aware of a developing investigation by the @ncdhhs and @NCAgriculture regarding four children with elevated blood lead levels, indicating potential acute lead toxicity"
https://t.co/na9s5CdZUh
Today marks the 1-year anniversary of the start of what's been called the #formulashortages but people in my rare-disease community know as the #formulacrisis: a way-too-long thread.
Heading into the 11th month of the #formulacrisis. @DrCaliff_FDA & @HHSGov please help. @rosadelauro I testified to your committee last May that we were not ok. We are STILL not ok. And getting worse. @SenBooker this food is our medicine in #metabolics. We need systemic change.
Abbott has released an updated timeline for metabolic formula release. A significant number of products (shown below) have been pushed to April 2023. Full details are here: https://t.co/uD0ZSjBULj
The urgent needs program is still in effect for any products not yet released.
@erinlschumaker @politico Build on the great work of @meredithllee & @hbottemiller about the crisis of access to medical formula & #medicalnutrition. We’re almost a year into the #formulacrisis & even when that resolves 1000s do at have access to their primary medical treatment due to poor coverage.
Today is #pkuawarenessday celebrating those like Izzy who have #PKU. #newbornscreening identified her disorder at birth, but it’s tough to manage & the #formulacrisis has made this year even harder. Pls help us by going to https://t.co/l7oTay3XlU to help pass the MNEA this year!
Idaho reporters, want a story? #formulacrisis is still going...
@dugganreports @KelcieMMorris @davlinnews
We need national leadership to feel the pressure. #metoboliccommunity cannot live without their formula. #nutritionequity needs to happen. @MikeSimpson4ID knows.
The #formulashortage is still a #formulacrisis for those in the #metabolic community who rely on lifelong #medicalnutrition. @DrCaliff_FDA @HHSGov we need to do better. @foodfixco @BuildUpRDNs @thatnursemom @theformulamom @meredithllee @hbottemiller @megoliver @FrancesSSellers
The #formulashortage is still a #formulacrisis for those in the #metabolic community who rely on lifelong #medicalnutrition. @DrCaliff_FDA @HHSGov we need to do better. @foodfixco @BuildUpRDNs @thatnursemom @theformulamom @meredithllee @hbottemiller @megoliver @FrancesSSellers
Thank you @meredithllee and @politico for keeping the #formulashortages and particularly those at risk in the #metabolic community as part of the story of the #WHConfHungerHealth. Our #formulacrisis won’t end until we have #supplyANDaccess @DrCaliff_FDA
Plans Biden will unveil this wk to tackle hunger, nutrition + diet-related diseases include FDA, per ppl familiar. The agency, which helps ensure Americans’ food is safe, is at the center of serious failures in the fed baby formula food safety response
https://t.co/2TlVkT6dSZ
@BuildUpRDNs And #metabolic formula, which is not just for infants or kids, but lifelong treatment for genetic conditions. The #formulashortage that caused a #formulacrisis is not over.
2/2 And that's a "normal" where we have supply and *only* have to grapple with access, constant coverage denials, prior auth battles, and DME discontinuations. Assuming supply from other providers catches up, and we're not there yet. #formulacrisis #supplyANDaccess #MNEA
Thank you @EmilieIkedaNBC and @NBCNightlyNews for keeping the focus on the fact that the #formulacrisis persists. People of all ages with #metabolic disorders are particularly hard-hit. @BuildUpRDNs @hbottemiller @meredithllee @howmuchphe
The baby formula shortage that has had families across the nation scrambling for months is not over yet.
@EmilieIkedaNBC has the latest updates.
https://t.co/9L80BUDktc
.@SenMikeLee's FORMULA Act passed the Senate yesterday and has now been signed into law by @POTUS.
This law will give the "desperately needed relief" for families struggling to feed their babies.
#FORMULAact #formulacrisis
@kkf Let’s not forget, the #FormulaCrisis, like most crises families with young children face, is rooted in our nation’s long history of inequity. #FormulaShortage
This is what happens when you put academics and bureaucrats in charge. Pete Bootigieg is the Transportation Secretary, and HE'S A PRESIDENTIAL HOPEFUL? Please, for what? @PeteButtigieg @JoeBiden #bidenfail #Transportation #formulacrisis #fjb #lgb
https://t.co/LgdJMLAesW
The #formulacrisis won't end when supply resumes. We need #SUPPLYANDACCESS. I'm excited to share my perspective on the formula crisis, the rare disease community and the #MedicalNutritionEquityAct on tomorrow's webinar alongside these other advocates.
Join us for this month's June RDLA Monthly Webinar to discuss legislation and developments that affect the #raredisease community.
When? June 23rd, 9:00 am PT/12 pm ET
Where? Register here: https://t.co/ln67VcrTGg
Baby Shortage Formula - ECONOMIC ANALYSIS – #BABYFORMULASHORTAGE #NANCYPELOSI #FORMULACRISIS https://t.co/pOqjk0gmrg
#formulacrisis . #dairycrisis . #syntheticbiology . #BIOMILQ ...connect the dots.
Think about history, think about now.
We are in the future yet technology is such a boobpunch: https://t.co/3TlRjAv3VS
High milk prices are trickling down to other dairy products, forcing consumers to make tough choices when shopping for butter at the grocery store and putting makers of cheese in a potential supply crunch.
https://t.co/Um0xeEbBXM
@mayakauf Looking for more details on this as I'm hearing that #Coram is ceasing servicing #metabolic patients, in the middle of a national #formulacrisis, further reducing access to these lifesaving treatments. Is this how @CVSHealth cares for these #rare patients?
Not being able to find formula on the shelves is an extremely stressful situation. We know as parents your primary concern is nourishing and protecting your baby.
Tips if you are having a hard time finding formula ⬇️ 🧵
#FormulaShortage #FormulaCrisis
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