Top Tweets for #Fshd
Paul Bugeja shares why disability is part of his life, but it doesn’t stop him from loving it, owning his choices, and moving forward.
Listen: https://t.co/EwLgwRDk8n or https://t.co/dFsE8Hqd4d
#UnstoppableMindset #accessibility #Mindset #Inclusion #FSHD #DisabilityAdvocacy
“It's possible to meet your challenges.”-Paul Bugeja
You can catch the full episode on Apple Podcasts/iTunes at: https://t.co/EwLgwRDk8n or on our website at https://t.co/dFsE8Hqd4d
#UnstoppableMindset #accessCast #accessibility #Mindset #Inclusion #FSHD #DisabilityAdvocacy
Paul Bugeja shares how living with muscular dystrophy shaped his resilience, career choices, disability advocacy, and love of life.
Listen: https://t.co/EwLgwRDk8n or https://t.co/dFsE8Hqd4d
#UnstoppableMindset #accessibility #Mindset #Inclusion #FSHD #DisabilityAdvocacy
Mobility is more than a person’s in/ability to walk.
An overwhelming majority of folks with #FSHD lose upper-body mobility which has outsized impact on daily living and maintaining independence.
Learn more: https://t.co/EcTmhsboQn
#FSHDResearch #UpperBodyMobility #Mobility
Paul Bugeja shares how living with muscular dystrophy shaped his resilience, career choices, disability advocacy, and love of life.
Listen: https://t.co/EwLgwRDk8n or https://t.co/dFsE8Hqd4d
#UnstoppableMindset #accessibility #Mindset #Inclusion #FSHD #DisabilityAdvocacy
DUX4 plays an important role in the biology of FSHD. When inappropriately active in muscle cells, it can contribute to muscle damage and progressive weakness.
Explore RESTEM’s work:
https://t.co/BQ0IXZ4qJe
#FSHD
In this episode of FSHD Straight Talk, Rami Jokinen joins Tim for a discussion about building community globally & the power of positivity in persevering as #FSHD progresses. From walking his dog to studying languages to rocking out, Rami persists.
https://t.co/ZJNhCTgkSk
It takes a village - or a construction crew- to move progress forward towards a cure. Start a corporate team and help us hammer out #FSHD.
https://t.co/kEiXkyyyST
#FSHDWalkRoll
100% Solidario: Recaudación a favor de @fshd_spain para apoyar la investigación de esta enfermedad rara.
¡Si estáis por la zona, venid a buscarnos!
#SpanishGarrison #501stLegion #Coca #FSHD #BadGuysDoingGood #StarWars
2716 PR IGL at age 34 with an extreme muscle wasting disease! No one does it like us! ZB competitive #fortnite consistently improving daily! We’ve raised $2655.00 towards @FSHDSociety in hopes of finding a cure for facioscapulohumeral muscular dystrophy! #fshd
You're invited to our next Multi-Chapter Meeting covering #FSHD research updates from the International Research Congress. Join us for a conversation with Amanda Hill.
We hope to see you there!
July 29 RSVP: https://t.co/dfg8n30tOv
July 30 RSVP: https://t.co/LWrgfUi9cb
The FSHD Connect 2026 Conference brought together researchers, advocates, and members of our community to power the path forward. We sat down with attendees to ask why they chose to attend Connect FSHD 2026.
#FSHD #FacesofFSHD #VoicesofFSHD
The FSHD Connect 2026 Conference brought together researchers, advocates, and members of our community to power the path forward. We sat down with attendees to ask about their favorite part of the conference.
#FSHD #FacesofFSHD #VoicesofFSHD
Testimonio de Ana Isabel que tiene distrofia muscular facioescapulohumeral #FSHD:
“Si creo que soy igual que tú ¿por qué te doy pena?” #distrofiafacioescapulohumeral #EnfermedadesRaras
Por @estrewinnie #GrandesMinorias
https://t.co/VrbFXrAmnH
The FSHD Connect 2026 Conference brought together researchers, advocates, and members of our community to power the path forward. We sat down with attendees to ask them why they chose to come to the event.
#FSHD #FacesofFSHD #VoicesofFSHD
US Paralympic Climber Johnny Quintana, who lives with #FSHD, recently climbed Sqwatstruck, one of the longest & most intense sports climbs in the US. Congrats on your latest feat Johnny!
Read the full story on @frictionlabs: https://t.co/qnBIOQ3u1X
Join Marisa Spain for an info session covering vocation rehabilitation services from eligibility and available services to creative accessibility asks.
RSVP: https://t.co/Fp7g3yuYjt
#FSHD #Accessibility #FSHMuscularDystrophy
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