Top Tweets for #GetMyHealthData
Folks, this is *not good*. 0 of my 5 randomly sampled EHRs is even claiming to do anything close to EHI Export.
@ONC_HealthIT I know vendors only *attest* to this, but maybe someone could give the docs a once-over for rough consistency w/ the stated requirements for EHI Export?
Sharing broadly with @amianiwg @informaticsani #Nurse4HIT colleagues + our collective advocacy for #GetMyHealthData @JoyceSensmeier @JudyMurphyHIT @RagaNursing @nbealern @vtiase @karendunnlopez @GregAlexanderg @SarahRossetti47
Thanks @JudyMurphyHIT for inviting all of us #Nurses4HIT to be a vital part of leading this #GetMyHealthData @informaticsani #Nurses2020
Thank you @lesliekellyhall for your unwavering mentorship + leadership for patients consumers #PersonAtTheCenter #GetMyHealthData @carinalliance #ONC2020
Today began with great insights from #ONC2020 then @WhiteHouse executive bldg @carinalliance then lecturing @GWtweets. A great day for advocacy and technology and access. @Lygeia @LMoriarty1 @SusanCHull @NPWF @BechtelHealth @MegMarshallHIT @aneeshchopra @jjseidman @JoshCMandel
Tracing history of smart substitutal apps @mandl @SMARTHealthIT innovation ecosystem for patients clinicians not dependent on one at a time #EHR integration enabling #GetMyHealthData #ONC2020
Please broaden your language @SecAzar from #HealthRecords to #HealthData and allow me to correct my previous post #GetMyHealthData #ONC2020
Pleased to hear @SecAzar puts the #PersonAtTheCenter #Choice #CoProduction as focal point of his remarks and his personal challenges #GetMyHealthRecords #ONC2020
Wow, as someone who has paid HealthPort $350 for e-copy of a record (PDF) that originated from an EHR... good to see a change! #GetMyHealthData #MyHealthMyData cc @HealthPrivacy @SavageLucia
$35.4M fine for a hospital who for 8 years charged individuals & their authorized representatives for access to their medical records in violation of Wisconsin state law. ๐ณ
Between this & the OCR $85k fine for 1 person, these are significant precedents. https://t.co/IRWeNBpxba
Headed to my 19 year old daughterโs clinical trial with her medical records. Where is our Blue Button? #getmyhealthdata #healthIT #bluebutton #interoperability
Thanks @vtiase asking #FutureOfNursing2030 panelists about examples #Nurses engaged in supporting #Patients to #GetMyHealthData understand #CDeX @carinalliance a must thread for the commissions report!
Once again โฆ@ePatientDaveโฉ captures and clarifies the #PatientPerspective with respect to #HealthDataAccess and the evolving #HealthApp ecosystem. Share this with your parents/kids! https://t.co/TSURWA8oTC
Honoring Steven Keating RIP relentless #curiosity #3dprinting #advocacy #humanitarian #GetMyHealthData https://t.co/HKfjE8ptU0
@hmkyale @politico @BraveBosom @SavageMeHealth @ePatientDave @GilmerHealthLaw I am inspired today by the Puerto Ricans. Also, there were over 2000 comments, 100s from individuals. Lots of whom wanted data to be more #private, others to just #getmyhealthdata. These quantities count, esp when part of the offical process.
"Having my own data let me succeed" and regain his health says @Doug_Lind_Say #getmyhealthdata #HDPalooza @hdpalooza
We have tremendous shared accountability to engage patients/members to #GetMyHealthData & make sense of aggregated health care + payer data via API +app of their choice @informaticsani #Nurses4HIT @vtiase @JudyMurphyHIT @JoyceSensmeier
.@CMSgov proposes that health plans use an API to give patients access to their #healthcare information similar to how #BlueButton 2.0 currently works for #Medicare beneficiaries enrolled in the FFS program. #CMSonFHIR #MyHealthEData https://t.co/tLoXPW8FSd
Count on us, we're working on this. Similar #GetMyHealthData findings led our practice councils to develop a HIPAA-compliant model ROI form for patients in 2017. Which led to the free Health Record Request Wizard digital smart form, just released in Sept: https://t.co/XVFHxtSWhD
Please, Hospital CIOs, #EHR configurers, @CIOCHIME, and @AHIMAResources professionals, please find a way to make these RIGHTS real, meaningful, and easy to exercise. We are counting on you.
Congratulations eager to hear next chapter. Humbling how hard it has been to #GetMyHealthData
1st time I've been able to get my medical data from 1985 -> present
4 health systems @ScrippsHealth @UCSDHealth @ClevelandClinic @umichmedicine + @23andMe + @fitbit +@MyFitnessPal with labs from diff't systems all connected @seqster (trying it <24 hrs)
step in the right direction
HHS Secretary Azar admitted to hospital for โminor infection,โ and being treated with IV antibiotics -HHS says in brief statement tonight.
Roses are red, violets are blue. #HIPAA says I can #getmyhealthdata, and you can get yours, too. #healthpolicyvalentines. Happy ๐ day @SavageMeHealth
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