Top Tweets for #IBDMOMS
Working on a patient experience article for Lights, Camera, Crohn's regarding #ADHD meds & #IBD. #MedTwitter any considerations patients/caregivers should take before starting them? Already have 25 patient quotes--so have that perspective covered!
It is VITAL that you include a dermatologist who is familiar with #IBD on your med squad! And talk to your GI about your skin issues as soon as they pop up! It's crucial. Speaking from experience. #CCCongress25 #IBDMoms
Skin manifestations of #IBD: Inflammatory cells from the gut can enter the circulatory system. Is it Crohn’s related—a reactive response or treatment related? Patients can have multiple skin issues, 15% of pediatric patients deal w/cutaneous Crohn’s, 5% of adults. #CCCongress25
One of the reasona I started @IBDMoms was because so many of us suffer in silence. My PPD lasted longer than it needed to. I just didn't have the healthcare tools and support for both my PP & IBD health. We need to treat the whole body & the mind. #CCCongress25 #IBDMoms
Love this panel discussion w/ @DrRiehl on #anxiety in #pregnancy in #IBD. #MentalHealth has so many dimensions within #chronicillness. We hear from many #IBDmoms in our @southasianIBD @ibdesis who suffer from postpartum #depression too. Need whole body care after pregnancy too 🙏🏽
Love this panel discussion w/ @DrRiehl on #anxiety in #pregnancy in #IBD. #MentalHealth has so many dimensions within #chronicillness. We hear from many #IBDmoms in our @southasianIBD @ibdesis who suffer from postpartum #depression too. Need whole body care after pregnancy too 🙏🏽
@CrzyCreoleMommy @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd Brooke, TYSM for sharing the #IBDMoms perspective to IUS 🙏🏽
You make a critical point: as patients we are so much more than our collection of symptoms & have a role within social structures to fulfil. IBD care & monitoring def needs to be enabling here
#MondayNightIBD
How Self-Advocacy Helped Me Navigate Crohn’s Disease and Healthcare Bias
#IBD #IBDMoms #GITwitter #Advocacy #VeryWellIBD #CrazyCreoleMommyLife https://t.co/9HFv7nTNri
@Youcantmakethi4 @rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd @keyla_ic We've come so far, and still have so far to go. I'm sure for @keyla_ic as stressful as it is to have a child with IBD, it's got to be a bit of relief to be a patient and have the proper education and tools to be able to advocate for her kid effectively. #MondayNightIBD #IBDMoms
@rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd The IUS is an absolute game changer in so many ways to help patients continue to function normally in their lives. #MondayNightIBD #IBDMoms #IBD #GITwitter #MomTwitter
@rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd I am also thinking about those ped patients who are scared of the procedure or YA patients in college or starting a career who are now in charge of their care and are not self motivated to do the prep properly or to get a scope #MondayNightIBD #IBDMoms #IBD #GITwitter #MomTwitter
@rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd Doing an IUS where you don't have to prep, can function before and after appointment is a game changer for those patients who are also care partners and parents. #MondayNightIBD #IBDMoms #IBD #GITwitter #MomTwitter
@rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd Being a single solo parent with a chronic condition is already a major financial strain, but a colonoscopy comes with extra costs: prep, liquid diet, takeaway for my kid, Ubers for my kid if no one can take to and from school #MondayNightIBD #IBDMoms #IBD #GITwitter #MomTwitter
@rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd Having a colonoscopy entails me taking off time from work, finding someone to drop and pick my child up from school, organize meals for kid, someone to take me to colonoscopy. And that's if I'm well for the visit. #MondayNightIBD #IBDMoms #IBD #GITwitter #MomTwitter
@rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd Even though I only have one child, being a single solo parent an hour and half away from my support system makes it extremely hard to take any time "off". It wasn't easy w/ a support system. #MondayNightIBD #IBDMoms #IBD #GITwitter #MomTwitter
@rebelliousgut @MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk @keepingmyshitTG @Youcantmakethi4 @enlightenedlg @GutlessGlamour @DoubleBagginIt @StaceyNellC_RD @IBDgirls @LoriPlung @bottomlineibd The thought of IUS versus a colonoscopy is so exciting to me and I'm sure for other patients like me. Having to take a full day off to prep and for the procedure is not easy at all! #MondayNightIBD #IBDMoms #IBD #GITwitter #MomTwitter
@TartanCushion @nataliesparacio Sending you a HUGE hug! 🫂 It's wonderful that Natalie and other #IBDMoms are speaking so openly about this- and already changing the standard conversation for those who come after us. A shift has definitely started. Here to lend an ear to listen any time you want to chat. 💜
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