Top Tweets for #IBDSC
I’m happy to join my mom at the tenth annual #IBDSC summit! I’ll be posting about the importance, ins and outs, and how tos of health advocacy on here and my blog. Stay tuned throughout the week! J&J has paid for my travel, all opinions expressed are my own. #JNJPartner
Check out IBD Social Circle new blog featuring lots of #IBDSC advocates like me, @JaimeEditor and @ownyourcrohns . check out my blog post on Single-Solo Mommying it with IBD: https://t.co/uQgOjFpvNB
@DCharabaty @IBDMD @GuildConference @UmaMahadevanIBD @ownyourcrohns @mustbthemusic @DrTiffTaft @aboutIBD @FITWITMD @drlauriekeefer I’m here for this!!! Treat a whole person!
Now—how to do it & implement it already beyond a pipe dream? 🤔 @EdwardLoftus2 @ibddoctor @IBDMD @ibdtweets were harping on these points with a big group of pts back at #AIBD15/16 #IBDSC. Please, let’s find a way to do it already.
🚨HAPPENING TONIGHT🚨Hope you’ll join us for the first #IBDSC Instagram live. Always love collaborating with @ownyourcrohns and @DCharabaty! #IBD #crohns #colitis #COVID19
A13: I didn't realize how challenging it is to be the caregiver. Maybe not until I became a parent and my kids had some health difficulties, which resolved, but at the time outcomes were uncertain. I wish I'd known that being the caregiver is the harder role! #IBDSC
I can't thank you all enough for joining our #IBDSC #Caregiver chat tonight! So thankful for @ostomydiaries for hosting and @JanssenUS ! It was so much fun!!!
Thank you for being a part of tonight’s conversation and recognizing #NationalCaregiversMonth with us. Thank you to everyone for contributing to tonight’s chat. Thanks to @JanssenUS for sponsoring and follow us on Facebook #IBDSC https://t.co/UJB90jEV2m
A13: It didn’t take me long to learn how to take things day-by-day. Sometimes even moment-by-moment. I used to do a lot of long term planning. #IBD and being a #caregiver means sometimes, it’s about now rather than tomorrow. #IBDSC
A7: I am not used to being on the caregiver side, and I have to say, I'm far more comfortable being on my side of things! It's really challenging and stressful to be the one in the waiting room. I deal with it mainly by distracting myself! #IBDSC
A11: Try not to withdraw or hold back. I understand needing time to feel comfortable. You don’t have to tell everything on day one, but try to communicate as much as you can and let your caregiver know it’s okay to be confused and ask questions. Be open to their questions. #IBDSC
A11: Honesty! Always be honest! Whether it’s what the person wants to hear or not. That doesn’t mean be brutally honest. As with any relationship, the foundation of a successful one is built on honesty and trust. #IBDSC
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