Top Tweets for #IntPPIeval18
Back in April, during a #PPIImpact tweetchat, I mooted this - the 'I Had no Idea' log. A few people thought it was interesting, so me and @laura_j_chapman followed it up, we asked some researchers & patients for their thoughts, made a poster and showed it at #intppieval18 ...
Every time I hear a researcher say “I had no idea that...” after speaking to patients, I feel the impact. We should write it all down. Have a “I had no idea” log. Also works for public, record what new knowledge everyone has gained. #PPIimpact
@Rebecca_Baines_ & John, great webinar #coproduction #coproweb2 , good to hear more after #intppieval18, thank you for sharing @NIHRINVOLVE
On Nov 15 and 16, Teresa Finlay and I attended the conference #intppieval18 in Newcastle. Check out our lessons learned on evaluation of patient engagement. @tmdfac @VUAthenaInst
.@imi_paradigm spoke to Teresa Finlay (@tmdfac), Researcher at Oxford University & Lidewij Eva Vat (@LidewijVat) Researcher at Vrije Universiteit Amsterdam as they shared '4 lessons learned on evaluation of #patientengagement & public involvement' read: https://t.co/fXWdM3bYC6
Enjoyed the presentation on this work at #intppieval18
A very important piece evaluating the impact of patient and public involvement #ppiimpact #whywedoresearch @NIHRINVOLVE @matt_westmore @sthomas65474209 @jmec73 @OfficialNIHR @SDenegri @TriciaWilson100 @jonathanboote
If you’ve not seen it the thread from super PCPI conf may interest you incl BMJ & mandatory reporting as measuring impact was hotly debated see #intppieval #intppieval18 & variations (i get confused by complicated hashtags)
Very wise @VivaldiC Let's hope this become a quality marker for #ethically based practice #ReSNetSLT
Reflections from @KristinaStaley2 about #intppieval18 Are we asking the right questions? Is #PPI involvement achieving culture change & more relevant research? Is research actually helping patients, carers, the public & health/social care staff? Isn’t that the most important
To measure or not to measure... is that the right question? Reflections after the Newcastle intppieval18 conference at https://t.co/l1JLx8mOcp @intppieval
Great to see a well developed example of involving the public in basic & pre-clinical research to show it isn't just research that recruits people where involvement can add value
@DerekCStewart @SDenegri #intppieval18
For those of you who couldn't make it to @intppieval, there is a recording of some of it! You can see talks from @SDenegri @tessajlrichards @DavidGr07230561 on day 1 & the debate about evaluating #PPI on day 2! https://t.co/xoVvpMynIU #intppieval18 @donnalittlewood @VOICE__Global
Not everything that counts can be counted, and not everything that can be counted counts.
@amdickinson1 @PIRGatCRIPACC Sue was great! @CRIPACC1 It was a really good session with others also sharing their reflections, great examples & really inspiring! @intppieval #intppieval18
Nice poster from #intppieval18 conference on the practicalities of co-research in dementia. Some good transferable knowledge & a reasoned call for more in the way of national guidance & support
#intPPIeval18 @intppieval thank you for a great conference, so good to catch up with familiar faces and meet new PPI colleagues & we continue to spread the word about the importance of PPI feedback! #PPIFeedbackloop #PPIFeedbackcycle @CLAHRC_EoE @CRIPACC1
Flying back to Barcelona after such amazing days in Newcastle #intppieval18. I've learnt a lot on sharing knowledge, (better) patient involvement & democratising research. Inspirational! Great to meet you @AuLEsp @L_Luna_P @intppieval
One of my highlights from @intppieval was @YPAGne presenting on their impacts on various research projects & how the #YPAG had impacted them. It was inspirational & engaging. The slides had minimal text & lots of images; we should all take tips! @Ria_Varma_ #intppieval18 #YPVoice
Great to hear from an audience member that they could see the #genuine rapport & trust between @DewaLindsay @AnnaLJswede & the co-researchers (young people with past mental health difficulties) when they co-presented on their co-produced project at @intppieval #intppieval18
Great to see @Emma_cockcroft at @intppieval with her poster (w/ @PenCLAHRC_PPI @KLiabo @kateboddyPPI) about how measuring impact of #PPI can be non-linear & is influenced by the space in which it takes place. Does the space facilitate productive collaboration? #intPPIeval18
Well done @deemtembo @HeidiSurridge https://t.co/G5KGKiKACM.
Great poster for a great initiative! #intppieval18 #learnforinvolvement
Thrilled our copro 'IMP' group coordinated by the excellent @HeidiSurridge won best poster at #intppieval18 . Watch out for our open access resource for anyone assessing PPI in @nihr research! @SDenegri @Sharebank1 @TinaColdham @NIHRINVOLVE @jmec73 https://t.co/iL8BLTNYv8
Thrilled our copro 'IMP' group coordinated by the excellent @HeidiSurridge won best poster at #intppieval18 . Watch out for our open access resource for anyone assessing PPI in @nihr research! @SDenegri @Sharebank1 @TinaColdham @NIHRINVOLVE @jmec73 https://t.co/iL8BLTNYv8
Interesting & inspiring Twitter feed #intppieval18. Instead I spent 2 days reviewing strategic medicine initiatives @ the MRC. Inspiring & ground breaking science for patient benefit but mostly dull & unimaginative involvement that missed the opportunity to add value for patients
Great adaptation of the late great Doug Altman's statement about research to public involvement - yes, yes yes - less, better and for the right reasons. Cut out the tokenism and do it properly #intppieval18
#intppieval18 How about less Patient and Public Involvement (PPI) in research, better PPI in research and PPI in research for the right reasons? Carrying on the legacy of the great Doug Altman #intppieval18 as @LLocock recently said #dontalljumponme
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