Top Tweets for #Key4OI
I’m a small part of this global collaboration. The #key4oi study aimed to identify a core set of #CROMs and #PROMs for #OI, in collab with patient societies and focus groups. This was a fun project to be part of over the past years. @EfeOuh @OUHhospital
https://t.co/hsTpPoZ1p7
Getting an update with @Care4BB on finding common outcome measures for ppl with Osteogenesis Imperfecta with an aim for more equity across the world. #osteogenesisimperfecta #Key4OI #patientcentered
Over 200 people from the #OI Community and the #healthcare institutions have participated in generating Key4OI together in 2018 & 2019. Their logos are displayed on the picture! A unique #worldwide alliance!
Find out all about #Key4OI: https://t.co/lKHo9uf8yG
❤️ #care4bb #health
#NEWSLETTER OUT NOW, ALL ABOUT KEY4OI PLUS
Join the #journey and sign up for the virtual focus-groups and workshops!
https://t.co/Z4g1wRNNCt
sign up: https://t.co/XcNwwY6GZd
❤️ #care4bb #glasknochen #osteogenesisimperfecta #brittlebones #care4brittlebones #oi #key4oi #key4OIplus
Early results for the Key4OI Project: The OI community worldwide largely agrees with what outcomes matter most to us.#key4OI #QualityofLife4OI
Enjoying the start of #key4oi conference in Amsterdam! The next few days will be focused on how the international OI community can improve quality of life for ppl w OI.
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