#key4oi - Twitter Hashtag

over 5 years ago

I’m a small part of this global collaboration. The #key4oi study aimed to identify a core set of #CROMs and #PROMs for #OI, in collab with patient societies and focus groups. This was a fun project to be part of over the past years. @EfeOuh @OUHhospital https://t.co/hsTpPoZ1p7

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Kara Ayers @DrKaraAyers

almost 6 years ago

Getting an update with @Care4BB on finding common outcome measures for ppl with Osteogenesis Imperfecta with an aim for more equity across the world. #osteogenesisimperfecta #Key4OI #patientcentered

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Care4BB @Care4BB

about 6 years ago

Over 200 people from the #OI Community and the #healthcare institutions have participated in generating Key4OI together in 2018 & 2019. Their logos are displayed on the picture! A unique #worldwide alliance! Find out all about #Key4OI: https://t.co/lKHo9uf8yG ❤️ #care4bb #health

Care4BB's tweet photo. Over 200 people from the #OI Community and the #healthcare institutions have participated in generating Key4OI together in 2018 & 2019. Their logos are displayed on the picture! A unique #worldwide alliance!
Find out all about #Key4OI: https://t.co/lKHo9uf8yG

❤️ #care4bb #health https://t.co/YhmgKBl1Jz

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Care4BB @Care4BB

about 6 years ago

#NEWSLETTER OUT NOW, ALL ABOUT KEY4OI PLUS Join the #journey and sign up for the virtual focus-groups and workshops! https://t.co/Z4g1wRNNCt sign up: https://t.co/XcNwwY6GZd ❤️ #care4bb #glasknochen #osteogenesisimperfecta #brittlebones #care4brittlebones #oi #key4oi #key4OIplus

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Kara Ayers @DrKaraAyers

almost 7 years ago

Early results for the Key4OI Project: The OI community worldwide largely agrees with what outcomes matter most to us.#key4OI #QualityofLife4OI

DrKaraAyers's tweet photo. Early results for the Key4OI Project: The OI community worldwide largely agrees with what outcomes matter most to us.#key4OI #QualityofLife4OI https://t.co/xMbspLxTu6

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Kara Ayers @DrKaraAyers

almost 7 years ago

Enjoying the start of #key4oi conference in Amsterdam! The next few days will be focused on how the international OI community can improve quality of life for ppl w OI.

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