#LSDSS - Twitter Hashtag

over 4 years ago

#LSDSS participated in the Pinnacle Conference in Singapore from 25-27th May 2022, organized by @APARDO35252194 and @rarecancers to empower rare-disease patient organizations in the APAC region. https://t.co/9koGqSCE1o #rarediseases #patientadvocacy #lysosomalstoragedisorders

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over 5 years ago

Also Francesca Fumagalli presented durable clinical benefits and safety of lentiviral hematopoietic stem and progenitor cell #GeneTherapy in early-juvenile #metachromatic leukodystrophy at #WORLDSymposium #lysosomal #LSDSS #RareDisease

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over 5 years ago

Great news from Emily de los Reyes at the #WORLDSymposium presenting efficacy and safety good results of a single-dose AAV9-CLN6 #Batten disease gene in variant late infantile neuronal ceroid #lipofuscinosis at 12 and 24 months. #GeneTherapy #LSDSS #lysosomal #RareDisease

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over 7 years ago

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over 7 years ago

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almost 8 years ago · Bengaluru South

Thank you Dr K S Rana for your appreciation of my work at #ORDindia and #LSDSS in your inaugural address #NIMHANS observing 11th annual #Rettsyndrome #Awareness Meet @ #bengaluru by #IRSF Indian Rett syndrome Foundation. #ORDI #globalgene #EveryLifeIsPrecious