Top Tweets for #LongME
#ME #MECFS #pwme
How long have you been ill?
Weeks, months, years, decades?
#LongME #LongMECFS #LongMyalgicE

The permanent headache started when I was six. In debilitating pain by age 11. Guts went out at 20. Excruciating pain began at 33. ME by 34. MCAS at 36. I'm 38. Basically always. #LongME #LongMECFS #LongMyalgicE
#ME #MECFS #pwme
How long have you been ill?
Weeks, months, years, decades?
#LongME #LongMECFS #LongMyalgicE
@doctorasadkhan @resiapretorius 'Early on there is severe hypercoagulability- best time to intervene'. ๐ญ
#LongME
#LongCovid ppl must follow their own path. This person with #LongME since 1982 tried everything many times. I was desperate. I've tried graded exercise a number of times since 1991; didn't help. Tried intense psychological therapies since circa 1995; only helped with coping.
@Dakota_150 @NINDSdirector @NIHDirector I approve of this message ๐ฏ๐๐
๐๐ข When are you going to take #PwMe seriously & help?
Move us forward out of the dark ages NOW! PLEASE HELP #PWME ๐๐
#WeHaveSeenThisBefore
#MillionsMissing ๐ข
#PwMe ๐๐๐
#MECFS
#Cfids
#ChronicFatigue
#LongCovid
#LongMECFS
#LongME
@NINDSdirector ๐๐ข #WeHaveSeenThisBefore
#MillionsMissing
#PwMe
#MECFS
#Cfids
#ChronicFatigue
#LongMECFS
#LongME
#LongCovid
So when are you going to take #PwMe seriously & help?
@did_40 @NICEComms Feck me...here we go again. Nothing much has changed since the 1980s. Yes, when we're desperate we'll try anything. #LongCovid #LongME
@Aarsil0 @Petra_ikhebME_ Wow! I'm so sorry. I was always punished for my incapacities. Now people are "getting it". Per Fink sounds like a...{searches for a polite word but can't find one). Karina Hanson endured exteme medical abuse. X #LongME #MyalgicEncephalomyelitis #LongCovid
When I was young with #ME my Gran used to say how sad she was as I should be enjoying my life. Now I am old I understand her feelings. Young people now suffering so much and losing what could be wondrous years. #pwME #longME #LongHaulers
@CaroleBruce17 Yes, Exactly! ๐๐ข
#PwMe
#WeHaveSeenThisBefore
#MillionsMissing
#MECFS
#Cfids
#ChronicFatigue
#LongME #LongMECFS #LongMyalgicE
๐๐ข
#PwMe
#WeHaveSeenThisBefore
#MillionsMissing
#MECFS
#Cfids
#ChronicFatigue
Add this to the number of #ME sufferers terrified of catching Covid & resultant #LongCovid which has high likelihood of worsening their #ME #LongME #SevereME & we certainly do have a potential worldwide health & social economic problem
I donโt think UK can take a new wave of #LongCovid with rising infections & a potentially more transmissible variant spreading in younger unvaccinated groups. Already 1.1 million people with LC estimated. How will the system cope? This will def affect livelihoods & other services
Exciting news! Patients with #MECFS #POTS #MCAS #hEDS & #LongCovid can register here for a new @MEActNet study run by @exceedhergrasp1. Congratulations Jaime!
#MEAwarenessDay #MillionsMissing #LongME
https://t.co/5M3Kzpdeee
Living the #ME Life!
Doctors: "This is what you have but it doesn't exist!"
#MEAwarenessDay2021 #LongME #MillionsMissing #MECFS


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