Top Tweets for #Cfids
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://t.co/0H2vOhIaG1
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
#LongCovid=#CFIDS Chronic Fatigue Immune Dysfunction Syndrome
It doesn't matter if initial infection was mild. Look at #HIV. Most don't even notice brief cytokine storm at infection. A year (rapid progressor) or years (slow progressor) later, without antivirals, they get #AIDS.
Someone posted on the covid19positive subreddit- they got Covid for the 1st time 3 weeks ago & it was mild.. but now have ongoing symptoms & are scared of having long Covid. I commented, suggesting they rest completely (mentally, emotionally & physically) for 2 months or so to
I cannot recommend CFIDS foundation high enough! Gonna need more overflow stars!
⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️
#pwME #neurotwitter #myalgicE #MECFS #MCAS #LC #ME #FIBROMYALGIA #LongCovid #Lyme #DrJayAGoldstein #CFIDS #DrMothersill
#KathyCollettResearch #BetrayalByTheBrain
@scott_scientist #DrJayGoldstein told me that an org would be starting up to support #pwME lt was in the late 1990s that they joined forces and Dr Goldstein was their first Medical Director.
Over the years they have funded $5 million for research & it continues. Website: https://t.co/imW0LSEoS3
🤯Just Wow.
A new model for #MECFS and #RadiationExposure covering so much ground - multiple systems, skin, blood, cellular, exosomes, new tests and they are working on treatments at #CFIDS🥹
#pwME #DrMothersill
#MCAS #LC #ME #FIBROMYALGIA #LongCovid
#KathyCollettResearch
Published paper:
https://t.co/VIbVsE8lSF
Here’s two extraordinary accounts that are sharing the latest research and advocacy news for #MECFS and #LongCovid:
@TomKindlon
@MECFSNews
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFIDS #LC #LongHauler #PostViral
@Jmsesq555 @Joanne60183156 @JohnS15966744 @AnnieO1717 @labrozzi1163 @hitthegspot2 @jburke4908 @Doctim111 @stratmanpicks @TugsMC84 @misspennyblack @TheWinterWolf53 @Stylzbeats @CDMayor @RuBQ_11 @BrainStorm_Joe @light_qf17823 @TestDummy04 @ArgOFawkurself @Gsully017 @GH17TAFKAG @11DarkKnight11 @EDranir @TifaniesweTs @TwatIntelHQ @watche222 @melaniadargie @songstress1970 @Speqlation97544 @AnonWeaponry3 @8Notables @Allenma15086871 @andweknow @1776Tron @LFGRT99 @hhpatriotnc @kevincorke @VincentCrypt46 @AlCatel3937 @AgSamu86258 @DrfmnMtl @faulkner951 @FFreeSSpeech @Vltra_MK @t_lesik @thermhalth9k @BostonJ781 @realDonaldTrump rec’d 👆3🩸Transfusions at a Well-renowned “Teaching” Hospital
• Just wondering: Where was this “USA Blood?”
Note: Yes, my Good MD helped me,
😱BUT he said I must TEST for HIV for 10 yrs! I Decided to Test for 15 yrs.
#CFIDS thriver
@MEActNet 18/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #18
#MyalgicE #MyalgicEncephalomyelitis #CFIDS
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://t.co/PAW33jvDIr
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC #PostCovidSyndrome #postcovid #postcovid19
@hopefullizzy Bless your sweet heart! I get it.
💔😢 #PwMe 💜
#MillionsMissing
#MyalgicEncephalomyelitis
#MECFS
#Cfids
#ChronicFatigue
#ChronicFatigueSyndrome
#POTS #PANS, #MECFS #MCAS
#LongMECFS 💜
And now #LongCovid
Many just don't understand.🥲
@ProperChels34 There is hope you will learn to live around your illness. I have had a post viral syndrome since 1987. And there are more than a million Just like me. #MillionsMissing And it still sucks. You might try finding an #CFIDS or #ME Group for tips.
@AbbeyScott16 @Nealwigle @julianakilrose My condition went through a slew of name “conditions” from “lazy,” “psychological,” “#CFS,” “#CFIDS,” “#MECFS,” to finally, recognition; “Systemic Exertion Intolerance Disease (#SEID).”
It, too, took years before it was recognized and added to the medical lexicon!
@twoShaws @Dakota_150 Yes!!! This book is excellent.
I found a copy on Amazon a few months ago.
It is a must read for anyone trying to advocate for people with ME.
#PwMe
#MillionsMissing💔
#MyalgicEncephalomyelitis
#MECFS
#Cfids
#ChronicFatigueSyndrome
#LongMECFS 💜
And now, #LongCovid
We have now joined Bluesky: @irishmecfsassoc.bsky.social
Looking forward to seeing many of you over there too.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #NeuroME #millionsmissing
@sibylle_berlin @mona221107 @Dan_Wyke Elaine DeFreitas found #retrovirus in #mitochondria of #CFIDS #MEcfs patients!
Here is her patent from 1991:
https://t.co/i1gmlgm2JH
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