Top Tweets for #MakingTSCMatter
@emmattonkin @Ataxia_and_Me @USWHealthcare @WalesGenePark @GeneticAll_UK Thank you! Always a pleasure to share a little insight #TSC #TuberousSclerosisComplex #MakingTSCMatter #BrainAwarenessWeek
Thank you @WalesGenePark very much appreciate the continued opportunities to raise awareness of #TuberousSclerosis #Epilepsy #Autism #RareDisease with future healthcare professionals.
#MakingTSCMatter 🧬
Diolch yn fawr/thank you so much to the brilliant @PMTJames for joining @CUHealthSci midwifery students today for a 'Living With Genetic Conditions' session & sharing your family's experiences of tuberous sclerosis complex #tsc #RareDisease 👏🏻👏🏻👏🏻🧬 @ResearchWales @GeneticAll_UK
15 May Tuberous Sclerosis Complex Awareness Day #15MayTSCawarenessday
#tuberoussclerosiscomplex #ETSC
#makingTSCmatter
#becauseTSCmatters
#findacure4tsc #epilepsy
#raredisease #autism https://t.co/uzMuTU461C
Giornata Mondiale per la sensibilizzazione sulla Sclerosi Tuberosa (TSC Global Awareness Day)
Il Comune di Pordenone promuove la ricerca contro la #SclerosiTuberosa
#Ast4ever #TSCglobalDay #LuciXlaST #makingTSCmatter
Dr. Chris Kingswood #tuberoussclerosiscomplex #ETSC
#makingTSCmatter
#becauseTSCmatters
#findacure4tsc #epilepsy
#raredisease #autism https://t.co/I1HzKYzOf1
Dr. John Bissler #tuberoussclerosiscomplex #ETSC
#makingTSCmatter
#becauseTSCmatters
#findacure4tsc #epilepsy
#raredisease #autism https://t.co/JO6ApJyTUU
Dr.Tanjala Gipson #tuberoussclerosiscomplex #ETSC
#makingTSCmatter
#becauseTSCmatters
#findacure4tsc #epilepsy
#raredisease #autism
https://t.co/R5IgUrOarM
On Global TSC Awareness Day I want you to know that the Tuberous Sclerosis Association is here to help everyone affected by this rare, genetic condition. Please get in touch if you need us: you should never feel alone with TSC #MakingTSCMatter
This Sunday (15 May) is Global TSC Awareness Day. Use our special poster and #MakingTSCMatter to tell the world what TSC means to you - perhaps how the condition affects you, or the daily challenges of the condition. Let's get TSC to the top of the world agenda! #MakingTSCMatter
This Sunday (15 May) is Global TSC Awareness Day. Use our special poster and #MakingTSCMatter to tell the world what TSC means to you - perhaps how the condition affects you, or the daily challenges of the condition. Let's get TSC to the top of the world agenda! #MakingTSCMatter
Have you heard about #tuberousclerosis?
Our pod coordinator @ViraIefremova is working on studying this #raredisease🧠👩🔬
Check her account to learn more😉
#unite4TSC #Together4TSC #makingTSCmatter #tuberoussclerosis #raredisease #TSCGlobalAwarenessDay #WomenInSTEM #scicomm
May 15th is #TSCGlobalAwarenessDay
#TSC is:
#raredisease caused by mutations in TSC1 or TSC2 gene
genetic disorder with no cure that causes
non-cancerous tumors in vital organs
#TSC affects each individual differently throughout life
#Together4TSC #tuberoussclerosis #scicomm
On #TSCGlobalDay sharing a little video of our Trystan & other #TSCWarrior friends from TS Mums & Dads Uk 💜 #TSComplex #TSCGlobal
#RareSpecialPowers #TSCMatters #BecauseTSCMatters #UNITE4TSC
#IamTSC #MakingTSCMatter #TogetherStrongerCollectively4TSC
https://t.co/NveTl3c6FI
🌹#15maggio #TSCglobalDay
🔎La #SclerosiTuberosa è una malattia rara che causa epilessia e disabilità intellettiva
📊Colpisce circa 1 neonato su 6.000, un nuovo nato ogni 4 giorni
💡Accendiamo le luci sulla #TSC
👉Scopri su https://t.co/0fwlBwvcyE
#makingTSCmatter #unitiXlaST
#15Mayo #DiaInternacionaldelaEsclerosisTuberosa
Es un trastorno genético raro e incurable. En este día se divulga información sobre su importancia que afecta en el mundo a miles de personas #TSCglobalday #makingTSCmatter #becauseTSCmatters.
15 de mayo
Día Internacional de la Esclerosis Tuberosa #DiaInternacionaldelaEsclerosisTuberosa #TSCglobalday #makingTSCmatter #becauseTSCmatters @cortum_club
https://t.co/a2ZAvBdqiJ
Today is #TSCAwarenessDay
I'm trying to figure out more details about the mechanism of the #TSC with #organoids aka #minibrains.
🔹 8 in 100.000 is affected
🔹 #TSC is a genetic disorder with no cure that causes
non-cancerous tumors
🔹 2/3 of individuals have no family history
Diolch yn fawr Marie #rarediseases #TSC #MakingTSCmatter #TreatMeWell @UKTSA @rarediseaseuk @GeneticAll_UK
Delighted to be invited to share a little insight into our life with #TSC #IamTSC @UKTSA #MakingTSCMatter #BecauseTSCMatters #TreatMeWell #RareSpecialPowers
Delighted to be invited to share a little insight into our life with #TSC #IamTSC @UKTSA #MakingTSCMatter #BecauseTSCMatters #TreatMeWell #RareSpecialPowers
Looking forward to our Living with Genetic Conditions session with @SwanseaUni @ILS_EI @SwanseaMedicine @SwanseaPostgrad MSc #Genomic Medicine students tomorrow with @MedGenWales Genetic Counsellor Ben, @PMTJames and @morgan_adele #genomics #genetics #rarediseases @ResearchWales
Great share a little insight into #TSC family life with Medical Students @SwanseaUni today #IamTSC #@UKTSA #MakingTSCMatter #BecauseTSCMatters #RareSpecialPowers #TuberousSclerosisComplex
Jessie De Ridder illustrates how immature EEG background in infants with TSC predicts the later occurrence of autism #EPNS2019 #EPISTOP #makingtscmatter
@UKTSA @Autism please can you RT Nicholas Jones was only 27 when he died. #learningdisabilities #autism #IamTSC #TreatmeWell #EqualHealthCareForAll #makingTSCMatter @ETSCAssociation #hsjpatientsafety #Oliverscampaign
HSJ Patient Safety Congress 2019 - Nicholas' story https://t.co/gnUYwJzGd0 via @YouTube Please read and Retweet we need to share this
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