Top Tweets for #MetabolicDisordersAwarenessWeek
Weโd just like to say thank you so much for supporting #MetabolicDisordersAwarenessWeek to all of our partners and people in our communities!
Swipe to find out how many people you helped learn about #InheritedMetabolicDisorders in just one week ๐
Thank you to everyone who supported #MetabolicDisordersAwarenessWeek!
To anyone new to following us, hello! ๐ weโre so happy youโve joined us on our fight for to improve the lives of people affected by Inherited Metabolic Disorders.
Your rare condition. Our common fight.
Today is the last day of #MetabolicDisordersAwarenessWeek! For great resources and practical support contact @weareMSUK
Have you read our Metabolic Matters magazine? This month we covered #UreaCycleDisorders and the dangers of #Hyperammonemia and next month weโre writing about Congenital sucrase-isomaltase deficiency (#CSID).
Which conditions would you like to see us cover?
Today is the last day of #MetabolicDisordersAwarenessWeek!
Here are some common themes we identified through speaking to people in our communities, have you faced any of these challenges?
Share them below ๐
This week is #MetabolicDisordersAwarenessWeek!
Share this post to raise awareness about how many Inherited Metabolic Disorders there are and how many people they affect.
Individually rare. Collectively common.
#MetabolicDisorder #InheritedMetabolicDisorder #IMD #RareDisease
Sadly, accessing emergency care in a crisis isn't always easy as shown by @MetabolicSuppUK's survey
If you're living with an #IMD and would like guidance/support, visit our friends at #MSUK
They are always there for you along the way! (3/3)
#MetabolicDisordersAwarenessWeek
Why do #MetabolicCrises occur you ask?
@MetabolicSuppUK has the answer! (2/3)
#MetabolicDisordersAwarenessWeek
Our community fundraisers are at the heart of MSUK! They work hard to raise funds and keep the wheels turning towards a better future for people living with Inherited Metabolic Disorders.
Celebrate #MetabolicDisordersAwarenessWeek and fundraise this weekend ๐
Now that you know how #MetabolicDisorders are diagnosed, learn how they are treated!
#MetabolicDisordersAwarenessWeek
@MetabolicSuppUK
This week is #MetabolicDisordersAwarenessWeek!
Share this post with your friends and family to let them know more about Inherited Metabolic Disorders and keep your eye out for more of these explainers ๐
Are you keeping your ๐ peeled on @weareMSUK this week for
#MetabolicDisordersAwarenessWeek..?
Find out more about #InheritedMetabolicDisorders by following them here! And remember to #DareToThinkRare
Do you know how #MetabolicDisorders are diagnosed?
@MetabolicSuppUK explains below ๐
#MetabolicDisordersAwarenessWeek
This week is #MetabolicDisordersAwarenessWeek!
Share this post with your friends and family to let them know more about Inherited Metabolic Disorders and keep your eye out for more of these explainers ๐
Itโs #MetabolicDisordersAwarenessWeek!
Make sure youโre following @weareMSUK- an organisation dedicated to raising awareness about IMDs - who are sharing information and patient stories throughout the week ๐งฌ
#InheritedMetabolicDisorder #IMD #RareDisease #DareToThinkRare
This week is #MetabolicDisordersAwarenessWeek!
Share this post with your friends and family to let them know more about Inherited Metabolic Disorders and keep your eye out for more of these explainers ๐
What are Inherited Metabolic Disorders you ask?
@MetabolicSuppUK explains below ๐
#MetabolicDisordersAwarenessWeek
We are supporting #MetabolicDisordersAwarenessWeek! Head over to @weareMSUK for daily IMD stories and some useful information on living with a Metabolic Disorder
This week is #MetabolicDisordersAwarenessWeek
Keep your ๐ on @weareMSUK who support patients worldwide with #InteritedMetabolicDisorders - they'll be sharing info all week to help those living with #Metabolic conditions
#MetabolicDisorder #IMD #RareDisease #DareToThinkRare
@weareMSUK are in international organisation working exceptionally hard to support patients worldwide with #InteritedMetabolicDisorders. This week is also #MetabolicDisordersAwarenessWeek and we'll be sharing some info later to help those living with #Metabolic conditions
#MetabolicDisordersAwarenessWeek is here! This week weโll be sharing IMD stories and information.
Weโll also give you ideas on how to support our work in ensuring anyone affected by an IMD has the best life possible!
Pictured: Kirsty who lives with PKD.
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