Top Tweets for #Msstat2
Just had confirmation that I was given a placebo whilst I was on the #MSstat2 trial.
https://t.co/ko8SjfDAHr
@aid4disabled @italoromeno @MsStat2 Wonder how others feel they are faring on the @MsStat2 trial. I'm with you Patrick. Overall felt I'm going downhill rather than being on pause. #SPMS #MSSTAT2 #MultipleSclerosis
Had my visit 9 of the #MSstat2 trial today over the phone with the registrar Neuro. Literally 3 questions..do you walk with or without an aid,how far with 1 stick & how far with 2....result EDSS stayed stable at 6.5
That's it until my final visit in 6mths time which is in clinic
As part of the #MSstat2 assessment,the Neuro noticed that I've developed weakness in my fingers..bugger!!..that's the end of my promising professional tiddlywinks career!! #MultipleSclerosis #SPMS
Well still no phone call from the MS team.
I'll be seeing a Neurologist Registrar as part of the #MSstat2 trial assessment tomorrow afternoon so I'll speak with them instead even though they won't know anything about me. #MultpleSclerosis #SPMS
Just got to St Lukes hospital Bradford for my #MSStat2 check up/assessment.
Wonder how I'm progressing!?
#MultipleSclerosis #SecondaryProgressive
Our MS-STAT2 trial is testing if simvastatin (a cholesterol-lowering drug) can slow disability progression for people with secondary progressive MS.
Trial Staff and participants have kept fighting to keep the research going throughout the pandemic: https://t.co/75kdPbiuxd
Two more participants randomised @UCLIoN for #MsSTAT2; 3 more lovely people booked in for the coming weeks...
I continue to be hugely impressed by our patients’ generous support for this trial! 🙏🙏🙏
Pushing on to our target of 1000!
@mssocietyuk #stopms
#WorldMSDay - definitely a time to thank all our amazing #MsSTAT2 participants for their time and continued support for the trial through these difficult times! Nothing would happen without you! @WorldMSDay #stopMS @mssocietyuk
#MsSTAT2 does Deliveroo!
Who ordered the 9 hole peg test?!
(Contactless delivery of course!)
@mssocietyuk @UCLIoN #stopms
Just heard from the trial nurse that blood tests all came back normal, so I'm ok to continue with the trial drug. #MSstat2 #MultipleSclerosis
Just had my phone check up with my #Msstat2 trial Neurologist. Thankfully don't have to go to the hospital to have a blood test as I've had them in the past 12mths with no issues. Big relief!
#MultipleSclerosis
Our friends at the @UKMSRegister are researching links between #COVID19 & #MultipleSclerosis - can you help? The more MSers that join, the more accurate the results.
Sign up to the register here ➡️ https://t.co/jkJRV4D2IQ
Learn about the study here ➡️ https://t.co/JjG0nECdJZ
A rare sighting this morning...
A Professor of Neurology with a stethoscope 😱
Team #MsSTAT2 coming to the #NHS frontline near you! #ms #MSCOVID19 @mssocietyuk @UCLIoN
Big thank you to Edgar for coming in for #msstat2 assessments today. Quick walkies around Queen Square whilst mum was in the scanner, EDSS 0, 25 foot walk in under 2 secs! 😂
Getting to the main news story of the day...
#msstat2 @UCLIoN have hit their recruitment target! 240th patient randomised today!
Well done everyone, big effort!
(We will keep going for a bit, so any new patients still very welcome!)
#stopms @mssocietyuk @mssociety
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