Top Tweets for #MySkinIsRare
Thank you to everyone who took part in #RareDiseaseDay 2026 💜
By sharing your story, posting, or standing in solidarity, you helped break stigma and amplify the #MySkinisRare Campaign & our #RareDERM voice.
More people are learning & supporting because of you!
On #RareDiseaseDay, we stand with 6.8M people living with 800+ rare skin diseases. Many face delayed diagnosis & limited care.
Join our #MySkinIsRare campaign to raise awareness, amplify #RareDERM voices & drive change worldwide.
– Jennifer Austin, GlobalSkin CEO
#GlobalSkin
🌍 On #RareDiseaseDay 2026, we raise awareness and honor those living with rare dermatological diseases.
In 2025, the World Health Assembly recognized skin diseases as a global public health priority.
Share your story: https://t.co/UD7JZ0ulwF
#RareDERM #MySkinIsRare
Le 28 février est la Journée mondiale des maladies rares. Pour cette année, l'accent est mis sur la visibilité, la reconnaissance et le diagnostic rapide. Sous le thème "RENDRE VISIBLE L'INVISIBLE" #rarediseaseday #myskinisrare #globalskin
💜 This #RareDiseaseDay (Feb 28, 2026), share your story of living with a rare skin condition. Your experience helps raise awareness, build understanding, and support others who may feel alone.
Submit: https://t.co/UD7JZ0ulwF
Share & repost!
#RareDerm #MySkinIsRare
Maria souffre du #lupus, diagnostiqué début 2024 après 4 ans d'errance médicale. Nous appelons à un accès aux diagnostics, traitements, soins et opportunités pour tous. #RareDERM #MySkinIsRare #Lupus @LutteLupus #RareDisease
Savez-vous que 300millions de personnes vivent avec une maladie rare dans le Monde, cela équivaut a la population du 3eme plus grand pays du Monde #RareDiseaseDay #RareDERM #MySkinIsRare
Hoy es el #DíaDeLasEnfermedadesRaras. Como miembro de @IADPO Fundapso lucha por un mundo donde las personas que viven con enfermedades dermatológicas raras lleven vidas saludables y plenas. #RareDERM #MySkinIsRare
GlobalSkin Members shared their experiences with living w/ a rare derm disease. We received stories from all over the 🌍. 💜 We'll be sharing small snippets & full stories will be on our site on #RareDiseaseDay - 28.02.2025 https://t.co/43wA7MaPYg
#RareDerm #MySkinIsRare
#RareDiseaseDay is on February 28th! CSPA is part of the GlobalSkin RareDERM Community. Many of the conditions that fall under our umbrella are rare dermatological diseases. As a community, we are raising awareness for rare dermatological diseases worldwide. #MySkinIsRare
People with rare skin conditions often face a myriad of challenges but show remarkable resilience. Today on #RareDiseaseDay2024 (Feb. 29), join us to raise awareness, extend support, and foster understanding for these individuals. https://t.co/FIupxjXis4
#RareDERM #MySkinIsRare
Today (Feb. 29) is #RareDiseaseDay, and GlobalSkin reaffirms its dedication to spreading awareness, breaking down barriers, and developing a community of support and empowerment for people with rare skin conditions. https://t.co/sldeDlJbb2 #RareDERM #MySkinisRare
Rare Disease Day (February 29, 2024) is an international day where we raise awareness for rare diseases, including rare dermatological diseases. #myskinisrare #Globalskin #notjustmyskin
#RareDiseaseDay2024 is taking place on Feb. 29, 2024! Join GlobalSkin in supporting the #RareDERM Community with a range of customizable awareness day materials. Access them here: https://t.co/IiIJwV22ji
#MySkinIsRare
February 29, 2024 Rare Disease Day. Giant Congenital Nevi: How do parents experience the impact of a child with a visible skin condition?
https://t.co/YgswEFJ7tA
#NevusNetwerkNederland #CongenitalMelanocyticNaevus #CMN #RRD2024 #RarediseaseDay #ZZD2024 #MySkinIsRare #RareDERM
In the lead up #RareDiseaseDay, we are spotlighting our members’ Rare Disease experiences. Here’s Amanda story of living with #ichthyosis. Like & share the video to show your support. Find more info & resources here: https://t.co/rUfVdyHh2z #RareDERM #MySkinIsRare
@ISG_charity
#RareDiseaseDay is on February 29th! NFED is part of the GlobalSkin RareDERM Community. Ectodermal dysplasias are a rare dermatological disease. As a community, we are raising awareness for rare dermatological diseases worldwide. #MySkinIsRare
#RareDiseaseDay2024 is on Feb. 29, 2024! GlobalSkin is elevating the #RareDERM Community through customizable awareness day materials available here: https://t.co/IiIJwV22ji
#RareDERM #MySkinIsRare
#GlobalSkin thanks everyone who participated in this year's #RareDiseaseDay. We have received some very moving stories from Members about what it's like to live in their skin. Check them out https://t.co/pGp9ZXibMP & share them with your own networks! #MySkinIsRare
Today is #RareDiseaseDay! As a supporter of GlobalSkin, the CSPA strivea for a world where people living with rare dermatological conditions lead healthy and fulfilling lives.
Learn more about Stevens-Johnson Syndrome at https://t.co/pNREjdmB40
#RareDERM #MySkinIsRare
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